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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Consortium Comments re: CCSVI

From the CMSC web site - To me this is much more positive than the MS Socieities responses, especially point #2- ... Itemid=180

We asked Dr. Alex Rae-Grant, CMSC website's Project Leader for Neurology, to share his expertise and views about this article "The Liberation Treatment: A whole new approach to MS". Here is his reply:

Multiple sclerosis, even in 2009, remains mysterious and has escaped our full ...
Read more : Consortium Comments re: CCSVI | Views : 3517 | Replies : 19

Thank You

Just wanted to drop a note to say Thank You to all of you who are pioneering us through these early stages of CCSVI. Your posts and stories have given me and my wife hope that we haven't had since her original diagnoses. Just learning about CCSVI recently I kinda feel in a fog with anticipation and excitement, my wife who after being diagnosed just three years ago is already using a walker and only ...
Read more : Thank You | Views : 1696 | Replies : 11

Low Vitamin D in Mothers cause CCSVI in unborn?

This is my dad's theory, that low vitamin D in the mother causes CCSVI in the unborn child, kind of like a birth defect. This would explain why, in a study I read, people born in the spring have a higher chance of having MS, because the mother did not get as much sun during her pregnancy. It also explains why people in cold climates are more susceptible and why there are more and more ...
Read more : Low Vitamin D in Mothers cause CCSVI in unborn? | Views : 4110 | Replies : 17

Circulatory collapse

...has anyone ever seen this listed as a possible side effect? I just came across this for the first time, after randomly opening up a book about natural remedies. It talks about chemicals and pesticides, particularly lindane, which was widely used in head lice treatment shampoos. Does anyone remember a product by the name of Kwell? Lindane is the active ingredient, and in addition to neuromuscular damage, I noticed "circulatory collapse." I used this product ...
Read more : Circulatory collapse | Views : 1147 | Replies : 0

2009 European Charcot Symposium

I trust this hasn't been posted before?

Here is the link for the '2009 European Charcot Symposium' which met for the 3 day conference in Lisbon to discuss “A new treatment era in multiple sclerosis: options, challenges and risks”.

Klaus Schmierer & Gavin Giovannoni report on CCSVI in a predictably negative way - see, in particular, the penultimate paragraph of the article. The concluding sentence is 'Without firm ...
Read more : 2009 European Charcot Symposium | Views : 3408 | Replies : 16


Gang, I was thinking about Dr. Zamboni's call to action to patients: bring CCSVI to doctors.

Cheerleader built the #1 essential resource for patient education on CCSVI.

Any interest in a central spot to keep abreast of current conversations? At least another molecule to pin to the CCSVI nook on the web. (link popularity)

I registered a domain for kicks, to see what might happen if I rope ...
Read more : Venous.MS | Views : 1476 | Replies : 0

Info prior to take the Doppler test

Hello Fellas;

I saw the Neurologist Today and he scheduled me right away for a Doppler exam (sonography I guess) on Thursday (starting with and he will see how that come out).
Nonetheless; they have no prior experience in CCSVI therefore I inquire to anyone who already passed those tests.
This is exploratory only and no surgery procedure has even been talked over, it is far too early especially because no one here in Taiwan ...
Read more : Info prior to take the Doppler test | Views : 2577 | Replies : 13

Are trials still going on in Detroit??

Hi! I am brand new to both this website and CCSVI.( I'm 27 and was dxd at 19)
I just learned of CCSVI tonight and am overwhelmed on how to interpretate the data. I really want to get my neck scanned I live in the Detroit area, and have been reading a lot about Dr. Haacke. I went to his website and it was down. Now I kinda lost all hope at this point. Am ...
Read more : Are trials still going on in Detroit?? | Views : 1598 | Replies : 4

New Blog Post-CCSVI: Separating Fact from Fiction

I just posted this to my blog, in response to the massive waves of misinformation and mistaken assumptions that are flooding the Internet chat rooms and forums.

Comments please. ... ating.html
Read more : New Blog Post-CCSVI: Separating Fact from Fiction | Views : 8949 | Replies : 45

Anybody going to chelate the iron or attempt to?

I posted the following in another reply, but I thought I would repeat it here... I am just wondering and of course I don't know the answer is whether one could chelate the iron out of the arteries. Iron is also high in Parkinson's and they have been trying to develop iron chelators for years for Parkinson's that they could use without harm but I gather it is tricky to chelate iron out of the ...
Read more : Anybody going to chelate the iron or attempt to? | Views : 10624 | Replies : 59


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