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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

My Evidence

This might sound foolishly romantic, pathetic and naive, but to me, one conclusive evidence for the CCSVI paradigm is what the CTV show revealed: The love of Dr. Zamboni to his wife as a motor to his studies. In a quite logical way, at least to me, this really is a quite weightily fact. The conclusion is: Let's assume (for a very VERY short moment :wink:) that ...
Read more : My Evidence | Views : 1389 | Replies : 2

MS expert questions CCSVI...

11-25-2009: The Ottawa Citizen reports that MS expert downplays Italian surgeon’s treatment. With all due respect to Dr. Freedman, I think MS patients have absolutely nothing to lose by testing themselves to see if indeed they have partially or completely blocked veins. I come from a family of doctors and while I am cautious, the cost benefit analysis suggests that you have nothing to lose by testing yourself. These doctors should disclose their research grants ...
Read more : MS expert questions CCSVI... | Views : 6399 | Replies : 44

Oh what a week I'm having!

OK, most of the detail is going on my blog post later. I have a pretty cool story to tell that has surprised me in a big and good way. As you all know I've been doing "pretty well" here as of late. Finally have had enough accumulation of little things that have resulted in me having to admit that it's changed for the better.

So yesterday I got my hardest test to date and ...
Read more : Oh what a week I'm having! | Views : 3190 | Replies : 22


Does anyone have the particulars for the MRI and doppler tests regarding CCSVI? I have been trying to get into the UB study but I am sure that they are inundated with calls given the recent W5 program. I was thinking about having the MRI and doppler done myself and submitting the results for review but I wanted to get the particulars before I try and book anything. Any help would be appreciated.
Read more : CCSVI | Views : 1048 | Replies : 0

Bucket of Cold Water from National Hospital doctor

Hey lovely people
I've been around here for years and would really love some advice...
During an appt for a higher dose of Baclofen in my 6month old Baclofen pump (pretty useless so far),I asked her opinion on CCSVI.
She gave mr the usual "doctorspeak"reply saying that nothing was proven,much more research needed,would say don't do anything at all etc,etc.
She did however promise to speak to speak to other MS specialists and ask their ...
Read more : Bucket of Cold Water from National Hospital doctor | Views : 1385 | Replies : 2

requirements for CCSVI procedure


I am new to this forum.

* I would like to know if being diagnosed with MS is a must to have this procedure?

* What if few other issues that behave like MS are indeed caused by CCSVI?
(e.g. fibrymyalgiz)

* It is possible that CCSVI leads to different types of issues depending the area and level of insufficiency?

* Is it not enough if the scan shows deformity and the patient has ...
Read more : requirements for CCSVI procedure | Views : 1799 | Replies : 6

MS Society of Canada requests research-grants for CCSVI

MS Society of Canada announces request for research operating grants related to CCSVI and MS

The Multiple Sclerosis Society of Canada announced it will request research operating grants related to chronic cerebrospinal venous insufficiency (CCSVI) and MS.

A recent study released by Dr. Paulo Zamboni, University of Ferrara, Italy, describes CCSVI as a disruption of blood flow in which the venous system is not able to efficiently remove blood from the central nervous system ...
Read more : MS Society of Canada requests research-grants for CCSVI | Views : 1778 | Replies : 1

Medical Myths website Re: CCSVI - Comments please

Hi folks,
would anyone care to comment? ... boni-myth/

I've put my 2 cents as a comment at the bottom of the page.

Read more : Medical Myths website Re: CCSVI - Comments please | Views : 4213 | Replies : 27


Read more : 12345 | Views : 2011 | Replies : 7

Need info ASAP!!

Hello there! Hate to seem ignorant, but I just learned about the Liberation Procedure this evening. I am so hopeful, my husband, as I type is in a drug induced stupor as he sits inpatient at the local hospital receiving his third day of steroids.
He has been battling for 15 years with RRMS, he is 35 years old and has been in the most severe case of depression for the past 2 years. His ...
Read more : Need info ASAP!! | Views : 9225 | Replies : 52


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