It is currently Wed Aug 23, 2017 11:42 pm

News News of Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Site map of Chronic Cerebrospinal Venous Insufficiency (CCSVI) » Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Medicare/Medicare Advantage

I'm so glad to discover this community of people reaching out to help each other. Thank you for your time and efforts. I've been searching to see if any of you have experience with Medicare or Medicare Advantage paying for the tests anywhere in the US or the surgery at Stanford. I haven't seen anything in the forum so far. So if you have, please post.
Read more : Medicare/Medicare Advantage | Views : 1307 | Replies : 1

How do I approach a GP in the UK?

Hi Everyone,

I'm following all your stories with great interest and I'm wishing all of those who have had the Liberation procedure or who are embarking on the scans: best wishes, speedy recovery and I pray for many improvements in the coming months.

I'm in quite a lucky situation I suppose as my fathers best friend is a Consultant Vascular Surgeon and Director of Surgery.

He has really taken this on board and fully supports ...
Read more : How do I approach a GP in the UK? | Views : 1376 | Replies : 3

How to get Dr. Haake's MRI writeup?

My wife is seeing her neuro this Tuesday, and we'd like to give her Dr. Haake's write up on how to properly do an MRI/MRV. As people may know, Dr Haake's MS-MRI website is now shut down (due to overload?). How can we get a copy of the technical instructions?
Another question - was this write up to pick up iron deposits AND blockage or just iron deposits?
One more question - how do you ...
Read more : How to get Dr. Haake's MRI writeup? | Views : 2412 | Replies : 3

Where do you go to get tested for CCSVI?

I am very interested in the CCSVI theory. Where do you go to get tested for this - your family doctor or your neurologist to refer you? Also, can you get tested through ultrasound only or do you need an MRI?
Read more : Where do you go to get tested for CCSVI? | Views : 1330 | Replies : 0

other forums?

Just curious if other TIMS members also post on other forums (I mostly lurk neurotalk and braintalk, can't seem to get with msworld though). I've noticed some absurd ideas being thrown around re:CCSVI. The latest one that was mentioned lately on another forum-- That only Zamboni is finding 100% of MSers with CCSVI, that small studies have only found CCSVI in only 10% of MSers. Whaaat?? I just wish people would, at the very least, ...
Read more : other forums? | Views : 1455 | Replies : 2

Hope this isn't too personal, but how are people paying for

...this procedure?

...I'm new here and trying to read everything in one four-day weekend 8O !!

... The thing I don't seem to see in many posts is how folks are paying for this procedure at Dr. Dake's. I guess my real question is, has anyone been successful having his/her HMO insurance cover this?

...Sorry to be so upfront.

Thanks for your help,
Lisa G
Read more : Hope this isn't too personal, but how are people paying for | Views : 1437 | Replies : 2

In Honor of Jeff and Joan

On an earlier post, Joan (cheerleader) informed us that Jeff did the music for tonight's "A Dog Named Christmas" on the Hallmark Hall of Fame. The time is 9ET/8CT on CBS television. My husband and I are going to watch this show in honor of Joan and Jeff. It makes me happy that they have done so much for people with MS, and I am waiting to hear the music !!

For people who are ...
Read more : In Honor of Jeff and Joan | Views : 1678 | Replies : 3

Dr. Dake--Stint only?

Hello everyone. Thank you for answering my newbie questions. Your site and insights are all very helpful to me.

Question: Am I correct in assuming from what I've read that Dr. Dake is only doing stints with angioplasty and not just angioplasty alone?
Read more : Dr. Dake--Stint only? | Views : 1304 | Replies : 0

How long is wait to see Dr. Dake?

After much research I have sent an email request to Dr. Dake for an appointment. Does anyone know how long it is taking for him to respond and how long the waiting list is?
Read more : How long is wait to see Dr. Dake? | Views : 1960 | Replies : 2

Continue using DMDs after procedure...?

Hey all,

those of you who have had the procedure (stent or balloon) or are planning on getting it, are you planning on staying on your current DMDs (copaxone, rebif, avonex, betaseron, etc.)? What are everyone's thoughts on this?

I added a poll, but I'd like to hear why or why not,. I'm just curious about my future options if I decide to get this done - weigh costs/benefits - but wanted everyone's experiences, thoughts, ...
Read more : Continue using DMDs after procedure...? | Views : 1374 | Replies : 2


Login  •  Register


Total posts 239293 • Total topics 26107 • Total members 17382

Contact us | Terms of Service