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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Sleeping in

I know this probably belongs in General Discussion, but I always like the feedback from here for me since I now have stents put in and need to come from that frame of reference, ie no MS drugs messing with me. As most MS'ers, sleep has always been somewhat tricky. Moreso in the beginning, but has crept back in as the bladder has gotten worse over the years. Despite night time cathing (which has been ...
Read more : Sleeping in | Views : 3136 | Replies : 16

Mutley goes to Poland, and returns home liberated.

As some of you may know I’m quite new to this site. I was drawn here by the wealth of information regards CCSVI so you don’t need me to tell you about how exciting the developments are in this field. Suffice to say that the possibility that there is finally something on the horizon that could make a major difference to people diagnosed with MS, their symptoms and long term outlook is absolutely epic.

Like ...
Read more : Mutley goes to Poland, and returns home liberated. | Views : 32283 | Replies : 144

We had good news and bad news

Yesterday, my husband went for a phlebography in Paris, with an interventional radiologist. For those who don't know, my husband had a doppler done with one of the doctors working with Dr Zamboni, and he told my husband that his left Jugular appeared absent. The good news was that the left jugular was operable. He had 3 places of stenosis, and the doctor was able to balloon them, but one will need further ballooning, as ...
Read more : We had good news and bad news | Views : 24068 | Replies : 41

CCSVI as underlying cause


I am interested to know if any of you think that sometime in future CCSVI will treated as a disease by itself rather than being just a diagnosis support tool. For example, First diagnose MS then check for CCSVI and then treat it.
I am asking this question because there are lot of conditions which are similar to MS and the real cause is still not known. Today some proof is available to show ...
Read more : CCSVI as underlying cause | Views : 1886 | Replies : 11

Our past MRI's

Excuse my English, I'm french-speaking and never write in your language.

I've been diagnosed with multiple sclerosis in 1980. I had my first MRI in 2001, and five others since that time.

Since I saw CTV's program W5 last friday on CCSVI, I wonder why our radiologists didn't notice venous anomalies in the data from our past MRI's. Is it so difficult to detect a twisted or malformed vein?

Thanks in advance.
Read more : Our past MRI's | Views : 1367 | Replies : 5

Hope But Hopeless

Having watched the documentary (I live in Canada). I am filled with such hope, I mean it all makes total sense in my opinion . I am a 33 year old women who has been sick since 20 . It started with bladder problems, then 2 years later I developed left drop foot and heaviness in my thighs. A year later I was diagnosed with MS, after they initially thought it was either spinal tumor ...
Read more : Hope But Hopeless | Views : 2980 | Replies : 16

US Neurologist, Dr. Daniel Kantor's blog about CCSVI

A well written blog by a US Neurologist, Dr. Daniel Kantor about CCSVI.

Click on blogs.

Entry dated November 25, 2009 entitled Going to the other side.

Read more : US Neurologist, Dr. Daniel Kantor's blog about CCSVI | Views : 3120 | Replies : 13

neurologique !!!! EVERYONE READ THIS

please go to this link !!!!!!! Does it sound familiar ???
Read more : neurologique !!!! EVERYONE READ THIS | Views : 1766 | Replies : 11

Oh, Radeck?

Expected to hear from Radeck by now. High stents are the only thing I can think of that would keep such a man quiet this long, but I didn't think high stents were in the cards for him. Anyone know anything?
Read more : Oh, Radeck? | Views : 39303 | Replies : 194

My Neuro REFUSES to complete forms for CTEVD Study in Buffal

Hi all...

I haven't posted here much but I've been following since February or so. I have also posted on the FB page and I'm more active at Brain Talk.

So yup, uhuh. My Neuro flat out REFUSED to complete the forms to allow me to potentially participate in this study.

Okay, so I've had the forms for a week or so and yes, I didn't fax them to the MS Clinic until 8:15 Monday ...
Read more : My Neuro REFUSES to complete forms for CTEVD Study in Buffal | Views : 2387 | Replies : 13


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