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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Angioplasty v. Stenting (blood thinners?)

So did Dr. Zamboni's patients have to take blood thinners after the balloon angioplasty? If so, for how long? Someone probably answered my question already but I can't find it in the forum or on the Internet in general descriptions of angioplasty. Thanks.
Read more : Angioplasty v. Stenting (blood thinners?) | Views : 2082 | Replies : 0

what does everyone think of this?

I was just given this info from a Consultant radiologist in the uk on ccsvi:

"I am suspicious of the syndrome. Anyone with heart failure, pericardial
constriction or superior vena cave obstruction would have restriction of
venous return and yet no neurological symptoms occur. Also the azygos
vein actually drains the lower body so could not account for cranial
problems." So this does put some doubt on the whole idea. Also he drew my attention ...
Read more : what does everyone think of this? | Views : 1762 | Replies : 3

MRI Procedure in Buffalo

Has anyone in the GTA or Buffalo area spoken to one of the private imaging co's in Buffalo about the MRI Protocol for CCSVI? UB has the study but I can't get anyone to call me back. I am sure that they are inundated with calls & requests. I was hoping to just go and have the appropriate MRI procedure completed and submit the results. I have an MRI scheduled for next week at Mac ...
Read more : MRI Procedure in Buffalo | Views : 1259 | Replies : 0

Back from Poland

Wow, words cant express what a wonderful experience Poland was, or my words cant, but here goes.

It turns out I didn't have stenosis but one jugular had a valve that was upside down, the other jugular had a membrane across it.
Both problems were congenital and have been cleared using balloons rather than stents. My Azygous vein was O.K.
Already my voice is clear and strong, last night there were none of the sleep ...
Read more : Back from Poland | Views : 15450 | Replies : 82

Regarding Dr. Zamboni's article

I couldn't wait anymore, so I called the Journal of Vascular Surgery, who directed me to the editors at Elsevier.

They told me that the article should be on-line sometime this week. The original date for publication of the December issue was November 24th, but that was delayed as a result of usual processing delays.

Apparently they've been getting a number of calls about it...
Read more : Regarding Dr. Zamboni's article | Views : 5415 | Replies : 28

Great CTV/W5 article for new people

If you click around on the CTV/W5 site you find this, but I thought I'd make it easier for new people. It's a great CCSVI synopsis.
Read more : Great CTV/W5 article for new people | Views : 1507 | Replies : 1

NHS- their concerns are expressed....

First releases coming out from NHS express the following:

ConclusionThis is valuable research that builds on what is known about the physiological changes that occur in the venous system draining the brain and spinal cord in people with MS. The findings also indicate that there are differences in the venous abnormities in people with the four different disease courses of MS. This suggests that the venous obstruction and its location may have a role in ...
Read more : NHS- their concerns are expressed.... | Views : 1879 | Replies : 10

There's something going on in Italy: Zamboni blocked

Hi all,

On our Dutch forum, someone posted a mesage from an Italian MS forum, about Zamboni being very frustrated because eveyone is blocking his research.

Because my Italian is very bad (it only can buy food in restaurants :D ), I am looking for help. Can someone translate and understand what's going on?

This is the information I could gather:

Taken form the italian MS ...
Read more : There's something going on in Italy: Zamboni blocked | Views : 4920 | Replies : 22

Anomalous venous blood flow and iron deposition in multiple

Image Multiple sclerosis (MS) is primarily an autoimmune disorder of unknown origin.

This review focuses iron overload and oxidative stress as surrounding cause that leads to immunomodulation in chronic MS. Iron overload has been demonstrated in MS lesions, as a feature common with other neurodegenerative disorders.

However, the recent description of chronic cerebrospinal venous insufficiency (CCSVI) associated to MS, with significant anomalies in cerebral venous outflow hemodynamics, permit to propose a parallel with chronic venous ...
Read more : Anomalous venous blood flow and iron deposition in multiple | Views : 1540 | Replies : 0

UK: Article on ‘NHS choices’ website re CCSVI

Great news that CCSVI is slowly creeping onto the UK NHS radar but this is somewhat tempered in that the information listed doesn’t quite correlate with what I’ve already read elsewhere about CCSVI. This is quite sad because a number of UK health professionals refer to this site and may well be influenced by the underlying tone of the article. Reading between the lines, they seem to be pushing the angle that it is ...
Read more : UK: Article on ‘NHS choices’ website re CCSVI | Views : 1943 | Replies : 5


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