This Is MS Multiple Sclerosis Community: Knowledge & Support
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I've been lurking here for a few weeks- so much to read! Thought it was time to introduce myself.
I have advanced PPMS. Full time wheelchair user. Problems were confined to my legs until about a year ago. Now I have difficulty with my hands. I use Dragon Naturally Speaking a lot for dictation software. Took long term disability from my engineering job in May.
My question today is, does anyone know if procedures have ...
OK... so I've seen posts on this board about a Canadian documentary coming out on the 24th of November. That's not very far away. I searched the whole board for the word "documentary" and got only a few hits. This sounds HUGE !!! Would anyone out there who knows more than I do (which is NOTHING) give us some more scuttlebutt on this ????????
I have been emailing him all the scientific and awesome stories about CCSVI and he is VERY interested. He is also a science writer and assured me that he would write a column on CCSVI probably in January. Right ...
Need a how-to guide on this one. Don't know if my neuro ever did that for me, had all the usual studies/tests etc including the EVP which confirmed delayed response on my right side optic nerve, which matched my original presentation of sudden onset diplopia (eye turned inward). I'd like to fill out the patients log deal but neuro has never communicated much of anything other than when my next appt is, and how soon ...
I just got the November eNews from the National Multiple Sclerosis Society and CCSVI has top billing. Of course they add a disclaimer that results are unconfirmed, many questions remain, etc. But I'd say they're definitely paying attention.
Right now I am just so glad that the procedures are over. I've been doing this since July and I am just procedure weary. My hat is tipped to anyone who has to go through months of chemotherapy and other long term unpleasant drug therapies. I can see why some people who've done it once, just choose to not to round 2 if the Dr. recommends. And this wasn't even close to feeling like that. ...
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