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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI Research Transparency web site

Dear friends My wife has been afflicted with MS for 20 years now, wheel chair. WE live in canada and last week you may be aware that our national ctv w5 presented "the Liberation Treatment" CCSVI. Needless to say it has stood the canadian MS population on its head.

I/WE believe that due to the amount of Money involved in the Business of MS CCSVI has a difficult fight on its hands.

We further believe ...
Read more : CCSVI Research Transparency web site | Views : 1713 | Replies : 0


alternative MS mgmt for now

Very interested in all this new MS info. Collecting bits of info for my MD
to see. Hoping that it won't be too long until we can all get releif from MS.

Have been dealing with RRMS for more than 20yrs & remained in remission for almost 10. Bladder functions normally now, can walk easily with a cane & found alternative methods to sleep better than I had ever hoped I would.

No pain at ...
Read more : alternative MS mgmt for now | Views : 1394 | Replies : 0


Jugular veins

Hi,

I have RRMS. Diagnosed 3 years ago. I am excited about all the CCSVI. I went to my neuro yesterday. I told him a lot about CCSVI.
He is pretty young and ready to try whatever. He hates big pharmas.
So we downloaded "Doppler guide" made by Dr.Simka and checked
my neck veins. My doctor said he is examining veins for the first time
and therefore we cannot expect any kind of conclusion since ...
Read more : Jugular veins | Views : 2644 | Replies : 1


Buffalo CTEVD Study MRV images

I participated in the CTEVD study on Monday and Tuesday of this week, while I was home in Buffalo visiting family for Thanksgiving. I'm glad I set this up back in September, because they were swamped with phone calls on Monday after the CTV W5 program! It was a great experience, I had the dopplers, MRI/MRV, study questionnaire, even a mini neuropsych exam and a neuro exam from Dr. Bianca Weintock-Guttman, one of the PIs ...
Read more : Buffalo CTEVD Study MRV images | Views : 4621 | Replies : 14


Is it a case worth trying ????

Hi group members,
I am Bibek from India,had several diagnosis since 2003.First PPMS than Aqueductal stenosis in 2004 , Deymelinatory dieses ? Progressive MS in 2003.In your opinion is it looks a case to try out CCSVI angle ?I have gone through the posts in this site and know there are much knowledgeable people out there.In Aug'09 I had a relapse ,the effects of which are still there,my legs are hairless below knee and seems ...
Read more : Is it a case worth trying ???? | Views : 1149 | Replies : 1


CTEVD Study in Buffalo - How long for results?

Does anyone know when the results from the CTEVD Study in Buffalo will be published.

Will there be any interim releases of information or will the Study have to be completed before any results are released?

I expect I am not alone in wanting to find out if the CCSVI hypothesis is independantly proven ASAP.

Many thanks

(Please accept my apologies if this has been covered elswhere)
Read more : CTEVD Study in Buffalo - How long for results? | Views : 1488 | Replies : 0


Hope for MS? CBC National News Story 27 November 2009

This story ran on the CBC (Canadian Broadcasting Corporation) National newscast tonight.

http://www.cbc.ca/video/#/News/TV_Shows ... 1344104506
Read more : Hope for MS? CBC National News Story 27 November 2009 | Views : 1725 | Replies : 6


some questions about ccsvi... thank you!

hi. i have some questions i am hoping someone can answer for me. we know the facts now about what ccsvi is and that it is related to multiple sclerosis so i have to ask now:
1. what are the consequences of having ccsvi and not being treated for it? what can happen medically until it is fixed?
2. how long does it take for symptoms to show of ccsvi? years?
3. can you live ...
Read more : some questions about ccsvi... thank you! | Views : 1533 | Replies : 4


ZAMBONI AND SALVI'S POSTERS FROM LISBONA CHARCOT FOUNDATION

Hi all!
Here published on "CCSVI nella sclerosi multipla" posters presented in Lisbona at Charcot Foundation.

Chronic Cerebrospinal Venous Insufficiency in Multiple Sclerosis.
Onset symptom and clinical course in relation to the hemodynamic pattern.

"Venography and transcranial and extracranial Color-Doppler high-resolution examination (TCCS-ECD) permitted us to detect 5 different malformative patterns of the venous vessels (annulus, septum/valve malformation, twisting, membranous obstruction, agenesis/hypoplasia) and 4 major hemodynamic patterns of extracranial-extravertebral venous outflow. The aim of this ...
Read more : ZAMBONI AND SALVI'S POSTERS FROM LISBONA CHARCOT FOUNDATION | Views : 1540 | Replies : 3


Coach Did Get Two Stents After Delay of Game

Just wanted to report in briefly about my return trip to Stanford. I was there Nov. 11 and 12. Tests on the 11th and stents on the 12th. One 29mm stent in the left IJV in the upper thoracic area and a 29mm stent in the azygous. Really felt good the first few days. More energy and better rest. Stilll feeling better. I'd do it all over again. Waking up in the morning feeling like ...
Read more : Coach Did Get Two Stents After Delay of Game | Views : 1702 | Replies : 6


 

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