A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
| Message |
Post subject: Dr. Dake's address? Posted: Mon Jul 27, 2009 9:03 pm |
|
|
Anybody have Dr. Dake's address handy? I want to send him the disc of my CT scans, but I don't know where to send it to. I left a message at his office today, but never received a return call. I'm sure they'll call tomorrow, but I'd like to get a jump on this...
Read more : Dr. Dake's address? | Views : 1873 | Replies : 4
|
|
| Top |
 |
Post subject: Getting the blood thinned to the theraputic level Posted: Mon Jul 27, 2009 11:37 am |
|
|
Anyone else having trouble getting the blood to thin to the therapeutic levels. My first blood work came back at 1.04 which is just in the high end of normal. I was taking warferin at 5 mg / day up to that point. Now taking 7.5 mg / day and will be re tested next week. Even with the higher dose it seemed after suffering an attack of the ankle grabbing blackberries that my blood ...
Read more : Getting the blood thinned to the theraputic level | Views : 7010 | Replies : 74
|
|
| Top |
 |
Post subject: What a bummer! Posted: Mon Jul 27, 2009 10:03 am |
|
|
Hi everyone! I just got back from a week vacation in Rhode Island and boy did I miss a lot! I have a lot of reading to do to catch up on everything. Thanks to needled (she PMed me) I have already read the preliminary reults of the liberation 100. How exciting!
So here what's going on in CT. I spoke with my Neuro and my PCP about all of this and both were interested ...
Read more : What a bummer! | Views : 1698 | Replies : 12
|
|
| Top |
 |
Post subject: Risk factors for or clues to CCSVI??? Posted: Fri Jul 24, 2009 8:25 pm |
|
|
I recently stumbled on this forum for CCSVI and would like your thoughts. Obviously you cannot diagnose me and are not doctors/nurses (at least I don't think most of you are!) but I am stunned by the notion that MS could be vascular in nature. My case history seems related in strong ways.
I was diagnosed 2 years ago with optic neuritis, headache, dizziness, and cognitive issues. I have T2 lesions and black holes.
I ...
Read more : Risk factors for or clues to CCSVI??? | Views : 1513 | Replies : 6
|
|
| Top |
 |
Post subject: Vascular Disease among Hospitalized MS patients Posted: Fri Jul 24, 2009 7:51 pm |
|
|
This study took place between 1988 and 2002.
It found that MS patients were less likely to be hospitalized for ischemic heart disease (OR = 0.58, 95% CI = 0.51-0.66) or myocardial infarction (OR = 0.78, 95% CI = 0.64-0.96), but more likely to be hospitalized for ischemic stroke (OR = 1.66, 95% CI = 1.33-2.09) than matched non-MS controls.
The conclusion:
MS patients have decreased rates of hospital admission for ischemic heart disease and ...
Read more : Vascular Disease among Hospitalized MS patients | Views : 1294 | Replies : 3
|
|
| Top |
 |
Post subject: Hey all, sure this was mentioned before about ID tags Posted: Fri Jul 24, 2009 11:14 am |
|
|
|
| Top |
 |
Post subject: CHARING CROSS - paper on line for free.... Posted: Thu Jul 23, 2009 2:08 pm |
|
|
|
| Top |
 |
Post subject: Ballooning, shoulder pain, etc Posted: Thu Jul 23, 2009 8:36 am |
|
|
Hi all- It's been so wonderful to read all the stories of folks who've seen Dr Dake and had various stenting procedures done. Since I'm the first, Joan mentioned that several are curious about the shoulder/neck pain issue. Like many, after my 1st procedure, this was very slow to dissipate - I'd say it was completely abated by about 8 weeks. Very gradual, so if you are feeling like it's 'never' going to get better ...
Read more : Ballooning, shoulder pain, etc | Views : 1511 | Replies : 8
|
|
| Top |
 |
Post subject: MS as a Vascular Disease Posted: Thu Jul 23, 2009 7:56 am |
|
Don't know if this article has been cited already. Given the obvious relevance of the title, it's a good bet you guys have, so sorry if this is old info.
http://www.shreveportphysiology.com/Ale ... MS.pdf.pdf
I have only had a chance to skim it, so I don't know if it adds much to the discussion. I did find the authors' take on the effects of interferon-beta interesting.
Read more : MS as a Vascular Disease | Views : 1134 | Replies : 1
|
|
| Top |
 |
Post subject: relapse Posted: Thu Jul 23, 2009 7:50 am |
|
|
When someone has a bad relapse and then makes an almost total recovery and this recovery lasts for years and years how is this related to ccsvi,
Read more : relapse | Views : 1167 | Replies : 4
|
|
| Top |
 |
|
Last 10 active topics
|