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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Coach Did Get Two Stents After Delay of Game

Just wanted to report in briefly about my return trip to Stanford. I was there Nov. 11 and 12. Tests on the 11th and stents on the 12th. One 29mm stent in the left IJV in the upper thoracic area and a 29mm stent in the azygous. Really felt good the first few days. More energy and better rest. Stilll feeling better. I'd do it all over again. Waking up in the morning feeling like ...
Read more : Coach Did Get Two Stents After Delay of Game | Views : 1686 | Replies : 6


CCSVI in France ?

Hi,

Any people being diagnosed for CCSVI in France ?
Who are the doctors to meet ?

Best wishes

Jean
Read more : CCSVI in France ? | Views : 1969 | Replies : 4


MRI protocol

does anyone know what happened to Dr. Haackes MRI protocol or related websites, they are no longer online, probably overwhelmed? False Creek surgical centre can do the testing but need a requisition from my doctor but I know she'll have no idea what to order.
Read more : MRI protocol | Views : 1616 | Replies : 2


CCSVI and pre-existing damage

I see everyone is all excited about this CCSVI and you all should be I on the other hand have some reservations about it being a "cure." I have been living with MS for 27 years and yes I am still high functioning but I still have questions: For those of us that have had MS for an extended period of time and know there is pre-existing damage to our nerves already, how are they ...
Read more : CCSVI and pre-existing damage | Views : 2016 | Replies : 4


Turned down at Stanford

Despite having MS for 35 years with all the corresponding symptoms, Dr. Dake did the test (MRV) and found NO blockage. No stents were placed. no relief of symptoms. I have no blocked veins. I cried all the way back from Standford.
Read more : Turned down at Stanford | Views : 2944 | Replies : 15


123

123
Read more : 123 | Views : 5049 | Replies : 36


to the critics

Hi,

I am sure there are lot of Dr critics out there on CCSVI.
I think one question they need to ask is if one of the medicine that is used to "treat" MS were to show the same results as liberation procedure has done, would they be criticizing the treatment. Probably not ... the person who found that medicine would be preparing for Nobel speech ... so give credit when evidence is so clear ...
Read more : to the critics | Views : 1296 | Replies : 3


Question only for ladies!

Couple of women asked me how to manage our every month little problem during the procedure and the night after.

I have not been thinking about that as I and my gynecologist stopped the problem last May.
Since I was 12 every month first 3-4 days were just nightmare. I had extremely strong pain. My Ms alwas got worse during these days. It was better again after one week.
So I get now every 12 ...
Read more : Question only for ladies! | Views : 1698 | Replies : 5


The BBC have covered the story too..

http://news.bbc.co.uk/1/hi/health/8374980.stm


PS Thanks, Cheerleader, for your reply to my last post in this forum.
Read more : The BBC have covered the story too.. | Views : 1357 | Replies : 0


FCSC in Vancouver doing the MR imaging

Hi All,
Newbie here, (lurking for a while ;) but very excited with all of the new info on CCSVI.
Just got off the phone with the MR Dept at False Creek Surgical Centre in Vancouver BC Canada and they will do the MR imaging of veins of the head and neck (with the serum creatinine blood work for the contrast media) with a requsition from your ...
Read more : FCSC in Vancouver doing the MR imaging | Views : 9349 | Replies : 47


 

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