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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

40-50k out of pocket??!!

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Read more : 40-50k out of pocket??!! | Views : 2863 | Replies : 23


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Dr Simka (Poland)

Good evening,
I was diagnoised with PPMS 17/02/2009 & i've my 2nd MRI+MRV 11/11/2009.I've made an appointment with Dr Simka 30/11/2009.
Best Regard's
Edser
Read more : Dr Simka (Poland) | Views : 94954 | Replies : 436


the 'Random CCSVI Notions' thread

It seems like many of us get random ideas about how CCSVI night be connected to some other thing - sometimes they don't seem worth mentioning in their own thread. I thought it might be neat to have a place to put the results of these brainstorms - if they happen to get some traction in here, perhaps at that point break it out into a new thread.

The idea being that nothing is too ...
Read more : the 'Random CCSVI Notions' thread | Views : 8113 | Replies : 57


Need a workable, simple definition of CCSVI & stenting

Hi everyone,

I've mentioned this elsewhere in posts, but now I'm starting a new thread about the huge need for a short, simple definition of CCSVI that explains the concept and stenting for both the jugular and azygous veins.

Perhaps everyone can help develop one???

Otherwise, I'm afraid patients aren't going to be telling their doctors much of anything.

After all, a major symptom in MS is cognitive problems, so a boiled-down definition would help ...
Read more : Need a workable, simple definition of CCSVI & stenting | Views : 1847 | Replies : 7


Anyone been to Stanford who has no CCSVI?

Well, the question sounds silly so I must explain it.

Apart from me another german woman had her veins checked by Dr. Simka in Poland via doppler without finding any problems in the jugulars.

But at least in my case Dr. Schelling said after seeing my MRT's that I have quite definitely a problem with the veins concerning the lesions in my head (I also have lesions in the spine but the azygos vein can't ...
Read more : Anyone been to Stanford who has no CCSVI? | Views : 4372 | Replies : 21


Questions - Possible New Underlying Cause Of MS Investigated

I came across this article and though it was interesting, but I have some questions of my own that it raises.

http://www.medicalnewstoday.com/articles/168653.php

Possible New Underlying Cause Of MS Investigated By Neurologists

“The possibility that the symptoms of MS result from narrowing of the primary veins outside the skull, a condition called "chronic cerebrospinal venous insufficiency," or CCSVI” - (Now I want you to notice the words possibility & symptoms ...
Read more : Questions - Possible New Underlying Cause Of MS Investigated | Views : 1069 | Replies : 1


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what do I need from my GP? (pre/post stent)

I am going in for my first GP doctor visit since I was a child for a full checkup - I have a neurologist, but never had a regular doctor.

But since I am going out to Stanford in December, I thought I should probably get one, to help deal with the post-op blood thinner stuff, etc.

OK, so in addition to letting him take my health measure across the board, I want to prepare ...
Read more : what do I need from my GP? (pre/post stent) | Views : 1117 | Replies : 3


 

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