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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

A Logo and a Name for us

Discussed in the "Marketing"-Thread ( ), there's some evidence (though preliminary :wink: ) that the CCSVI movement could use a logo. It really looks like there's some sort of new organisation forming! So I made some attempts but wasn't satisfied with it myself. Now I've finished it.

But my thoughts were, there also should be a name to the movement ...
Read more : A Logo and a Name for us | Views : 1684 | Replies : 7

CCSVI Intro for your doctor

I can't read anymore... whew...will have to finish off tomorrow ;)

I feel a little more educated thanks to everyone one here. I have a GP appt coming up and would like to discuss the new treatment buzz.

A part of me wants to rush to the closest participating doctor and shout for treatment....but that's not realistic now. It's sad in a way, we are all so ...
Read more : CCSVI Intro for your doctor | Views : 1908 | Replies : 2

A real Thanksgiving!!

I'd like to wish everybody a Happy Thanksgiving. We all owe a lot of thanks to first God!!!, then God again for giving us all the people trying to help us, including but not limited to Dr. Zamboni, Dr. Dake, and Cheer and her family for getting this effort moving in the US!
I have a special thanks too, I finally got my call yesterday and I am set for February!!!

Happy Thanksgiving, and God ...
Read more : A real Thanksgiving!! | Views : 1688 | Replies : 2

position dependent stenosis?

I need Your help !
I know, i've been reading somewhere about stenosis that is dependent on position of our body-is present only in some positions of our body...but I can not remember where I saw it...somebody help?
Read more : position dependent stenosis? | Views : 1675 | Replies : 4

Iron in Zamboni's theory

Now Iron bothers me, cause one neuro said something like this:
"Biochemicly Zamboni's theory can't be right about iron accumulation, cause iron is in red-cells and redcells has to break to release iron.. and there is no proof of that"
And "Iron should be seen in MRI clearly, but you don't.." etc etc

So what do you think? Im sure Zamboni is right that iron accumulation relates to CCSVI, but precisely how? This iron thing ...
Read more : Iron in Zamboni's theory | Views : 3623 | Replies : 17

Torben Fog

Found this blog post this morning - don't recall reading about this guy before, though tit might be of interest ...

Fog reviewed the literature on the relationship of the vessels to plaques from Rindfleisch’s observations in 1863 to 1947. Noting the theory of Putnam (1930-1939) that thrombosis of small veins may be the underlying mechanism of plaque formation, and the studies on this by Dow and Berglund (1942), Zimmermann and Netsky (1950), and his ...
Read more : Torben Fog | Views : 1294 | Replies : 3

Sleeping in

I know this probably belongs in General Discussion, but I always like the feedback from here for me since I now have stents put in and need to come from that frame of reference, ie no MS drugs messing with me. As most MS'ers, sleep has always been somewhat tricky. Moreso in the beginning, but has crept back in as the bladder has gotten worse over the years. Despite night time cathing (which has been ...
Read more : Sleeping in | Views : 3453 | Replies : 16

Mutley goes to Poland, and returns home liberated.

As some of you may know I’m quite new to this site. I was drawn here by the wealth of information regards CCSVI so you don’t need me to tell you about how exciting the developments are in this field. Suffice to say that the possibility that there is finally something on the horizon that could make a major difference to people diagnosed with MS, their symptoms and long term outlook is absolutely epic.

Like ...
Read more : Mutley goes to Poland, and returns home liberated. | Views : 33928 | Replies : 144

We had good news and bad news

Yesterday, my husband went for a phlebography in Paris, with an interventional radiologist. For those who don't know, my husband had a doppler done with one of the doctors working with Dr Zamboni, and he told my husband that his left Jugular appeared absent. The good news was that the left jugular was operable. He had 3 places of stenosis, and the doctor was able to balloon them, but one will need further ballooning, as ...
Read more : We had good news and bad news | Views : 24724 | Replies : 41

CCSVI as underlying cause


I am interested to know if any of you think that sometime in future CCSVI will treated as a disease by itself rather than being just a diagnosis support tool. For example, First diagnose MS then check for CCSVI and then treat it.
I am asking this question because there are lot of conditions which are similar to MS and the real cause is still not known. Today some proof is available to show ...
Read more : CCSVI as underlying cause | Views : 2033 | Replies : 11


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