:)

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She's got far too much energy and I haven't got it in me to keep up with her.

Friday, Saturday, Sunday I went to bed first and was up second!

It's amazing how much you get used to the other person (the MS'er) becoming almost like a ghost in the house.

Mel was usually either at work or asleep with a few hour bursts of life every now and then, that pretty much left me ...

Hi all

I've been lurking through the CCSVI discussion and it seems to me a facet of CCSVI that doesn't seem to have received a lot of attention yet is the whole concept of slowed or "hypoperfusion" and its relationship to MS. I've found it's a pretty fascinating topic.

Per Cheer in the "Just the Facts" thread,

I know I'm a nervous ninny and am about as impatient as an ADHD child with 2 mountain dews in him, but was anyone else's experience with their legs during the first week or so that they were weak? My legs don't get tingly like they would before the operation with very little use, but they are just feeling weak. I know I just got the procedure Tues. late afternoon, but I was just curious ...

I found this article couple of yrs ago. What do you think.. does this relate any to CCSVI?

http://www.sciencedaily.com/releases/2007/03/070322105436.htm

Hi all,

I am interested in knowing how it feels to have stents inside your jugular veins?

Are you aware of them all the time?

Do you feel something sharp when you turn your neck or when you are chewing food?

Is it something that is uncomfortable or annoying?

Or do you not notice them at?

Thanks

L

Hi

I live in Switzerland and speak German. There are two German forums I know where CCSVI is currently discussed.
http://www.ms-forum-weihe.de (Germany, in German!)
http://www2.multiplesklerose.ch/forum/v ... f=3&t=1862 (Switzerland, in German!)
BTW: I'll soon start a thread in the French speaking forum of Switzerland, and maybe France

This subject is very important for me.

I think it's important to distribute the ideas. But in ...

Is this the guy on the foundation's scientific committee?
http://main.uab.edu/Sites/cpodd/about/c ... m/gcutter/
and is the washington guy from the state or the DC?
and did they take locations away from the committee page?
http://www.fondazionehilarescere.org/eng/comitato.html

Here's an example of why This Is Ms is such a special place. Someone trying to post about looking into CCSVI and being tested in Albany has their links removed from the post: