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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

IVIg

Hello everyone. Because I am highly allergic to copaxone and my body blocks the effects of the interferons my doctor has me on an "off-label" treatment for MS which is a once a month infusion of intravenous immunoglobulin (IVIg). I have been trying to figure out how this fits in with the CCSVI model for MS and have been having difficulty figuring it out. From what I can understand IVIg is antibodies extracted from plasma ...
Read more : IVIg | Views : 1176 | Replies : 6


exercise and CCSVI

hey all, I am still on the newbie-train when it comes to CCSVI and thus I don't necessarily understand everything. So, wanted to see what you all thought about the implications of CCSVI on exercise. If there is a blockage in the vein which causes reflux, and if exercise increases blood flow, wouldn't exercise result in worsening of the condition because of increased reflux? Conversely, would lowering the blood pressure have positive effects on MS/CCSVI? ...
Read more : exercise and CCSVI | Views : 1296 | Replies : 3


Quick Update From Mel & Jamie @ follow up!

All is great, scans look good for flow in both jugs, off the meds and see Dr. Dake in a year. Didn't have the MRI ready, but Mel's MRI has been stable since hicy anyway, and with all due respect we'd only be bothered about that if she hadn't shown a 100% turnaround. If we were searching for 'evidence' you know? But we're not. The evidence is there everytime I look at her.

Lots more ...
Read more : Quick Update From Mel & Jamie @ follow up! | Views : 1119 | Replies : 8




Horse Chestnut??

My wife just had some varicose veins fixed up. The doctor suggested she start taking 'horse chestnut extract', that it is tremendous for veins and he feels even works as good as the compression stockings that she is also supposed to use.
Just wondering if it might not be a bad supplement to use..

"The herb horse chestnut (Aesculus hippocastanum) is one of the most widely used natural treatments for varicose veins and chronic venous ...
Read more : Horse Chestnut?? | Views : 1892 | Replies : 12


After the procedure...

Has everyone stayed on an MS drug?

Also, has anyone had any adverese effects from the procedure?
Read more : After the procedure... | Views : 1685 | Replies : 11


To what extent are stenoses and reflux congenital?

I am starting this thread in the hope that it can become a summary of evidence we have for the i) venous malformations and ii) venous flow anomalies being congenital on one side, as well as of arguments for CCSVI starting later in life on the other side. There's been some discussion over in the antibiotics forum of the stenosis being caused by Cpn, etc:

http://www.thisisms.com/ftopic-6670-day ... asc-0.html

On ...
Read more : To what extent are stenoses and reflux congenital? | Views : 1843 | Replies : 11


CCSVI occluded veins

Hi,
I was wondering whether y'all could anwser a quick question I have?...

Why do some people present with inflammation on MRI's and others don't, even from the start of their disease?

Even if its the jugulars that are effected like in myself, no enhancement has ever shown (although ESR levels are high)


L
Read more : CCSVI occluded veins | Views : 1653 | Replies : 13


Coincidence?? It just can't be...

Ok. I just had to share this with you all. I stopped to get my mail this morning and struck up a conversation with a fellow dog walker. She mentioned that her and her husband were both physicians. After a bit, I asked what his specialty was... Drum roll... He is an Intervential Radiologist! I asked her to ask him what he thought of this. She seemed really interested and said she was going home ...
Read more : Coincidence?? It just can't be... | Views : 1649 | Replies : 10


Anybody going to be at Stanford the 1st week in November?

I go back for my followup on the 3rd.

My husband and I would love to meet others who are there.

Cat
Read more : Anybody going to be at Stanford the 1st week in November? | Views : 1687 | Replies : 12


 

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