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News News of Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

italian forum?

My questions is : do italian forum about ccsvi exist somewhere in the web?If someone has info about it please let me know
Read more : italian forum? | Views : 2059 | Replies : 4

CCSVI in Google Webtrends


CCSVI is now recognized by Google trends due to the Canadian TV report! ... all&sort=1

Before Google showed:
"Your terms - ccsvi - do not have enough search volume to show graphs."

But there is still a long way to go as the comparison of the terms ccsvi and multiple sclerosis shows: ... all&sort=0

I think it might also interest ...
Read more : CCSVI in Google Webtrends | Views : 1624 | Replies : 1


Read more : 12345 | Views : 1903 | Replies : 4

first paid ad in Google for "CCSVI"

I searched Google News for CCSVI just now, and noticed someone has a paid ad up for the term, saying,

"If you know what CCSVI is and you are aware of Dr. Zamboni, read this."

The paid listing leads to this page (copy and paste the link to follow):

Code: Select all

The scammers are landing ... a sure sign that interest is taking off!
Read more : first paid ad in Google for "CCSVI" | Views : 1456 | Replies : 1

Update from NIH: I do have stenosis, I don't have MS...

Sorry it's taken so long for me to follow-up on my visits to the National Institutes of Health and their reaction to my CT venogram that showed stenosis in my left internal jugular.

Just to review, for the newbies: I've had a diagnosis of atypical PPMS for the last 6 1/2 years. For most of that time, I've disputed this diagnosis.

My MRIs have always shown only two nonenhancing lesions, and only one that is ...
Read more : Update from NIH: I do have stenosis, I don't have MS... | Views : 6552 | Replies : 37

Finally approved by insurance!!!!!

Well, I talked to Alex today and she told me my BCBS insurance finally approved everything. :D There was a big mix-up and apparently she thought I needed pre-approval for the MRI/MRV but it turns out I never did. Sitting around waiting was stressful since I sent off my records in early August (I had booked the appointment for Dec. because I have a month off ...
Read more : Finally approved by insurance!!!!! | Views : 1849 | Replies : 11

Canadian MS Society Homepage!!!!

Front page is an announcement about CCSVI!!

Well done Canada!!
Read more : Canadian MS Society Homepage!!!! | Views : 2129 | Replies : 13

E-mail from Dr. Haacke....

OK. Overwhelming the docs that want to help us is not going to work. Dr. Haacke understands this, but his e-mail accounts are full, his phone won't stop ringing and people have found out his private information to contact him. This is not good. Believe me, he understands the desperation, but we've got to do better.

Dr. Haacke wants to help establish a testing protocol for MS patients. He will not be able to treat ...
Read more : E-mail from Dr. Haacke.... | Views : 5036 | Replies : 13

RV parking close to Stanford?

Hi all,
I’m one of the many who have their paper work in and are waiting for the call from Dr. Dake and then the next call from Darcey or Alex to schedule.
I’ve been following all the posts from our pioneer brother’s & sisters on pre- & post surgery suggestions, and I thank them from the bottom of my heart. The info on negotiating the Stanford hospital and local lodging is extremely helpful.
Now ...
Read more : RV parking close to Stanford? | Views : 2268 | Replies : 2

There is a sticky on CCSVI on MS World!!!

I was thrilled to see a sticky with information on CCSVI at the top of the general message board of MS World. Wow, the avalanche of CCSVI info is spreading fast!
Read more : There is a sticky on CCSVI on MS World!!! | Views : 1604 | Replies : 0


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