A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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Post subject: Waiting To Hear Posted: Thu Jul 02, 2009 11:07 am |
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Alex from Dr. Dake's called me yesterday and needed insurance informatioin which I gave her as well as faxing a copy of my card. Have a tentative date of August 4. We will see what they say. Having some mixed emotions that I'm guessing others that have chosen this route have experienced as well. From the research that others (Marie, Cheer, etc.) have been so kind to share, CCSVI looks so logical and it certainly ...
Read more : Waiting To Hear | Views : 2796 | Replies : 19
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Post subject: testing mice... Posted: Thu Jul 02, 2009 9:40 am |
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I boldly asked Dr Simka if we could put sclerosing foam in mice jugular veins and azygos veins to see if they get MS like lesions.
He said no because it is not possible to make an animal model of leg ulcers because the mice do not live long enough for one to develop.
HHHmmmmmmm.
So. that answers the question about how long it takes for these venous stenoses, in legs at least, to result ...
Read more : testing mice... | Views : 1301 | Replies : 5
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Post subject: Jacobs Neurological Institute Posted: Wed Jul 01, 2009 3:13 pm |
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I know their study has been covered in parts of other topics. I wasn't sure where to put this, so I thought I'd start a new one. I finally got confirmation and my dates are set for September. The one thing I was told that's a bit different from what others have said is that I will get a written report of my doppler and MRI results a week or so later. I wasn't expecting ...
Read more : Jacobs Neurological Institute | Views : 1826 | Replies : 11
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Post subject: Re: CCSVI treatment pain relief Posted: Wed Jul 01, 2009 2:19 am |
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I know that the few that have been treated with stents have discussed the need for some heavy duty pain meds following surgery. I just ran across the following article and wondered how it might affect future treatments? I'm sure that there are other options available if the FDA follows this recommendation.
FDA advisers vote to take Vicodin, Percocet off market
http://www.cnn.com/2009/HEALTH/06/30/ac ... index.html
NHE
Read more : Re: CCSVI treatment pain relief | Views : 1624 | Replies : 8
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Post subject: intracranial hypertension (IIH or PTC) Posted: Mon Jun 29, 2009 2:36 pm |
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I've been looking at other diseases in which venous pressure is a problem, and finding a lot of stuff to chew on ... did a search for "intracranial hypertension" and didn't find any threads with the phrase, thought it might be something worth looking into ... apologies if I missed or forgot about a huge discussion on the subject.
Anyway, here are a few of the links I found interesting for various reasons - if ...
Read more : intracranial hypertension (IIH or PTC) | Views : 2148 | Replies : 7
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Post subject: Geographic distribution, MS and CCSVI Posted: Sun Jun 28, 2009 6:15 pm |
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Hi Guys,
First, a shout out to all of you guys who are forging ahead........Thanks to all you brave ones!
One of the more accepted aspects of MS is its geographic distribution. How does one marry the CCSVI theory with this?
Here is my quandry--- if we were only talking genetics, inheritance could be used to explain incidence geographically because of ethnic makeup in regions, for example, higher rates of MS in people of northern ...
Read more : Geographic distribution, MS and CCSVI | Views : 5010 | Replies : 39
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Post subject: Migraines and MS Posted: Sun Jun 28, 2009 2:32 pm |
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Any MSer's on here with confirmed CCSVI have migraine headaches? Never had them until about 7 years ago which was about 4 years into what has now become an 11 year return of the MS disease. My neuro prescribed Imitrex which does help. They usually start with tension on one side of my neck and moves up behind my ear around the mastoid process and progresses to a unilateral nagging headache that would hang around ...
Read more : Migraines and MS | Views : 1746 | Replies : 9
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Post subject: MS and Sweating Posted: Sun Jun 28, 2009 12:30 pm |
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One of the unusual and unexpected side effects of the stent procedure at Stanford - for both Jeff and Sharon- has been increased sweating. Jeff and Sharon were the most physically active MSers to receive stents (so far)...so it is hard to judge if the others will see this side effect. Marie...now that you're back to the elliptical, you working up a "glow"? :)
This reaction happened ...
Read more : MS and Sweating | Views : 4022 | Replies : 25
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Post subject: Grant system leads medical researchers to play it safe Posted: Sun Jun 28, 2009 11:20 am |
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a terrific article in the NY Times today. Specifically deals with cancer research, and why doctors who think "outside the box" are not funded-
Quote: “Scientists don’t like talking about it publicly,” because they worry that their remarks will be viewed as lashing out at the health institutes, which supports them, said Dr. Richard D. Klausner, a former director of the National Cancer Institute. But, Dr. Klausner added: “There is no conversation that I have ever ...
Read more : Grant system leads medical researchers to play it safe | Views : 1081 | Replies : 1
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Post subject: mysterious symptoms Posted: Sun Jun 28, 2009 11:06 am |
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Hi,
I'm French boy of 29 years old. I’ve got ms and all this call me out because of my background.
When I was 18 (1998), I woke up one morning with very strong confusion and vertigo that made me vomit about ten times during morning. It happened two mornings, those two past nights, I was sleeping on the back with the head straight, looking at the ceiling. The doctor sent me to an ear ...
Read more : mysterious symptoms | Views : 1336 | Replies : 3
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