YES!!! Seek and ye shall find!!!

Spinal cord myelopathy attributed to bilateral jugular vein occlusion and impaired venous drainage....
This gal had demyelinating lesions (just like MS) on her spinal cord because her jugular veins were blocked. This is the disease model we are seeing in patients tested by Drs. Zamboni and Dake.

http://thejns.org/doi/pdf/10.3171/spi.2007.6.1.60

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I checked into Stanford on Monday at 7am for magnetic resonance imaging of the upper body which took place for about an hour. I then discussed the results with Professor Dake in the afternoon. The scans showed up some pretty severe narrowings of both jugular veins for quite extensive lengths.

Yesterday I had a 4 cm stent placed into the right jugular at C1 to 2 and a 2cm and a 4cm stent placed into ...

Hi all.

I would like to ask a question. I have many lesions in my brain, most of them periventricular or in the corpus callosum. A very typical "Dawson's finger" image that could be a perfect example for a book, according to my neuro.

In addition, I have some small lesions in my spinal cord, at the cervical region. Finally, I have 2 very tiny at the level of T4 - T5 that are 100% ...

Could you please ask him if he knows anybody qualified and interested, who is a surgeon, in France? It might help to have him spread the word to other doctors here, as they aren't very open to hearing anything from the patients. My husband was seen by one Dr who knows Zamboni (and he says he is a very serious doctor...), but when it comes to intervention, that Dr will need to find others who ...

Do you guys agree that there is value in cautiously/respectfully spreading this new research and hope to other online communities?

It's somewhat delicate because I don't feel qualified to answer many questions about it, and Admins tend to frown on new members linking people to other "competing" forums ... maybe someone more knowledgeable could go be a CCSVI missionary to other boards?

(It would be interesting to compare and contrast the way different forums react ...

Can anyone tell me about how this works out? I have health insurance through my job, it's not great but it's OK ... ar there problems to anticipate? Have others submitted claims, and how large was the expense, etc?

:?:

I love Northern CA and have some vacation time to use up this summer ....

I had my MRI, Tysabri and saw my Neuro on Monday. No new lesions and no change in MRI. (yeah)

I asked if he had heard about the research being done with CCSVI. He said he had and it sounded very exciting. He said it was great the some docs were thinking out side the box and looking at stuff like the venous issues. He even showed me on a brain poster hanging on the ...

Okay-been thinking about this for a while. The body protects itself in so many ways. After a stroke, for example, blood pressure rises to feed the brain more oxygen. Docs not so long ago fought the higher BP, thinking it was bad, and actually caused less healing.
Is there anything that CCSVI could actually be protecting? I have thought and thought- came up with nada- thought I'd ask.

Hi everyone,

So, I spoke with Dr. Dake and have provisionally agreed to see him on Monday 6th July.

He is a very interesting guy to talk to, very open minded and positive about all this.

He has cleared his summer to accommodate any MS patients who contact him.

Houston has been NASTY with record heat for the past few weeks. Mel has really struggled, finally succumbed to provigil, felt better for a day or ...