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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

List of Those Who Had/Scheduled to Have Procedure-Stanford

This is a list of those who had or are going to have procedure at Stanford. This list was part of another topic and it was suggested that I move it under its own topic. Also noted those who have posted to the Tracking Sticky.

The names I can remember:

Jeff (Cheerleader or Jeff w MS) 5/12/09 -posted to Tracking sticky
Marie (MRhodes40) 5/19/09 -posted to Tracking sticky
Sharon (Sharon) 6/2/09 -posted to Tracking sticky ...
Read more : List of Those Who Had/Scheduled to Have Procedure-Stanford | Views : 9997 | Replies : 58


Woe is Finland

I am a Brit who resides in Finland and my wife who is a Finn has RRMS.

I feel as though Im banging my head against a brick wall over here. The Finns as a people are fairly Passive and have no culture of protest or positive societal action. Now, when a call to action is required Im looked upon as a piece of shit.
Typical responses include, "we dont do things that way over ...
Read more : Woe is Finland | Views : 1190 | Replies : 8


Why arent any of you using the media to get this out there?

Here is a tip folks

I am about to begin informing European media personalities who suffer from MS about CCSVI.

You guys in the US could start by contacting people such as Montell Williams or Richard Pryor. Ge the word in the right ear and watch what transpires.


Williams even runs his own MS foundation with money available for research!!! Come on folks get writing, calling and informing.

Peter
Read more : Why arent any of you using the media to get this out there? | Views : 1478 | Replies : 12


NMSS

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Read more : NMSS | Views : 4135 | Replies : 41


Got the call now where to stay in Palo Alto/Stanford

We got the call from Dr. Dake. After the call I felt a bit guilty. Here's a renowned surgeon calling my house and I give him 'tude...kind of. PMSing again. Two weeks straight. We forgot to mention that to him and forgot to ask him all kinds of other questions such as

How long do these stents last?
What other materials are they made of? I'm allergic to nickel
Where do I go for recovery? ...
Read more : Got the call now where to stay in Palo Alto/Stanford | Views : 1128 | Replies : 6


Question for those who have had an MRV

I will be a participant in the Jacobs Neurological Institute study and will have an MRV. Is it similar to having an MRI with conrrast?

Very excited about qualifying for this study. Buffalo is my hometown so I will get to visit again. The weather is not as bad as rumored. And if you like chicken wings, Frank and Theresa's Anchor Bar is the HOME of chicken wings and near Buffalo General Hospital and was ...
Read more : Question for those who have had an MRV | Views : 1201 | Replies : 4


123

123
Read more : 123 | Views : 1596 | Replies : 14


To those without insurance/who can't afford this

We were given a tremendous gift yesterday. Dr. Mark Haacke has challenged the MS/radiology world to look at a new paradigm. He is a giant in the world of radiology and disease diagnosis.

If you live anywhere near a university that has a radiology department and diagnoses MS using MRI...PLEASE do this. (radeck, I'm talking to you-dear friend)

Send Dr. Haacke's website to the school with the following introduction:

"I am an MS patient and ...
Read more : To those without insurance/who can't afford this | Views : 3907 | Replies : 26


Skydog

Hi Mark,
Just wondering how you are doing and if there is any more news on what the plan is for the restenosis in the lower jugs?

L x
Read more : Skydog | Views : 1200 | Replies : 7


What are the restrictions after surgery?

I'm wondering about the restrictions/limitations after surgery. I have my procedure in 2 weeks and I'm trying to prepare. Thanks :)
Read more : What are the restrictions after surgery? | Views : 2285 | Replies : 15


 

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