Hi guys,

I've been lurking on this forum for a few weeks now, trying to educate myself on CCSVI, and trying even harder to locate and keep up with the post-op results of the venous stent insertion patients. Those post-op results are exactly what potential patients and physicians are looking for when considering whether or not to pursue treatment. Unfortunately, they are rather tough to find.

It would be very helpful if each insertion patient ...

I been following this topic off and on for the past year. Since I been getting sick again I returned to the forum. This screenname was made by my husband when he was looking into revimmune for me.

The chemo scares me quite a bit, I am not saying I wont do it. But I just dont think I am ready for something like that at the moment. When I saw this, at first I ...

I can't find the number to the Jacobs neurology clinic. I know it was posted but I can't seem to find it.

Also does anyone have anymore details? Such as how long the study is. What the exclusion/inclusion criteria are? Is their an application process? And any other info you would like to share. Thanks!

Magnetic Resonance Imaging to Detect Brain Damage in Patients With Multiple Sclerosis
This study is currently recruiting participants.
Verified by National Institutes of Health Clinical Center (CC), February 2009
First Received: May 3, 2006 Last Updated: June 9, 2009 History of Changes
Sponsored by: National Institute of Neurological Disorders and Stroke (NINDS)

Information provided by: National Institutes of Health Clinical Center (CC)
ClinicalTrials.gov Identifier: NCT00321568

Purpose
This study will evaluate the ability of magnetic resonance ...

Does the presence of stenosis all by itself indicate that repair SHOULD be done?

In legs the answer is yes............. and that is just in a leg! yeah, you need your leg but the BRAIN, I would argue, is even more important...

FOUND HERE

Just out of the blue he calls me to see if "there's anything I need or any questions I may have". I actually don't think he knew that I already had a concrete date because he allluded to that but even so, to have the Dr. call and not the assistant; cool and makes you feel special. I think he was calling because they just got all my MRI's and patient history and at the ...

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We've mentioned this disease model as an example of how damaged veins can cause demyelination...without activating the immune system. Veins that become blocked create collateral drainage. This leads to reflux and leakage, which causes demyelination.

I'll be posting studies that prove this model. Look for the tie ins to CCSVI-


Study Number 1
http://www.springerlink.com/content/n086758m65115886/

Hey all,

Well I'm in the middle of a damn relapse. I don't know if it's the heat, the stress of 'waiting my turn', or if it's just relapse time. At any rate, this one is nasty since my legs were already weak. They aren't doing well and I have one question, and the urgency is related to the fact that the home nurse will be here in about 4 hours!

My question is if ...