Hey all,

Well I'm in the middle of a damn relapse. I don't know if it's the heat, the stress of 'waiting my turn', or if it's just relapse time. At any rate, this one is nasty since my legs were already weak. They aren't doing well and I have one question, and the urgency is related to the fact that the home nurse will be here in about 4 hours!

My question is if ...

HERE IS A COMMENT on Dr Zamboni's paper published in December.
The author is Steven Brenner MD from the St Louis Veterans hospital neurology department.

I have so many questions about CCSVI. It makes sense to me. I have an appointment with my neuro this month. I want to be armed and dangerous. :lol: I wish I could fly to Stanford, but it just is not physically possible in my hummer wheelchair.

Could the CCSVI cause optic neuritis?

Could it cause Bell’s palsy?

Could it cause syncope?

Could it cause us to ...

I'm quite curious about the stent operation.. I would be pleased if you (who know) could tell main things about surgery.

So far I know something like this:
- usually problems are in jugular vein/s or Azygos vein (typical to ms)?
- jugulars are at neck area? and Azygos lower, between heart and neck, and near spine?
- patient is awake during operation?
- after operation patient has to use medicine to keep blood thin? ...

Hmmm.

I know everyone is really focused on the downstream stenoses, but Zamboni's paper also focuses on the immediate mechanism of damage - namely, he thinks high iron concentrations are a cause, and not just a symptom of the lesions and damage.

At the end of his paper Zamboni suggests investigation into "induced iron deficiency" - perhaps indicating we might try avoiding foods high in iron?
Or go for iron-binding proteins, iron inhibitors, chelators, therapeutic ...

Hi All,

I'd like to get everyone's input regarding what can be done to help with CCSVI for those of us who can't get the stent placements at the moment.

I've been reading that breathing exercises could be good for vasolidation, as well as b3/niacin, and possibly even LDN. Anyone more knowledgeable please correct me if I'm wrong with any of these and add any more information you have if possible (diet/exercise/etc)

Thanks,

Dan

Hi all.

I feel a little down these days. I have gained some weight, 30 lbs, due to an antidepressant. I am a little confused, too. Not MS confusion, but rhetorical. Here are the facts:

Neurologists disgust me. I can think of no symptom they can really treat. Spasticity? Oscillopsia? Paralysis? Blurred vision?

How about diseases? What can they really cure, or at least help, without ruining the life of the patient?
MS? ALS? Alzheimer's? ...

Ok so I decided to email my Neuro information about CCSVI and MS and attach links to the research papers. Of course I let him know that I have already showed several doctors here at Yale who find the research to be interesting.

His response to me was "It all sounds interesting. We will discuss it at your next visit."

At least he didn't shoot it down and seems interested. My next appt. is in ...

......

Here is lots of info about CCSVI and I tried to search more about stenosis? Especially what causes them? In ms I have always thinked that there is enviromental elemant + genes with MS. With environmental I'd think nutrition, viruses, poison, etc. Maybe things that effects / protects veins really has effect to ms course.

My wife has been on best-bet-diet since dx and in my opinion it has big influence - no symptoms, except ...