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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

My doppler scan

Hi all.

My radiologist and I have attempted to perform a doppler scan following the Zamboni protocol. However, we have found that we did not have enough information to perform it properly. In addition, we did not have a 2.5 MHz transmitter head to perform the transcranial.

But we have come across 2 very strange findings:

1. We couldn't detect the flow of the left jugular when standing upright. The flow of the right jugular ...
Read more : My doppler scan | Views : 1623 | Replies : 11

First liberation procedure in UK

I am back home following venogram and bilateral balloon dilatation of the jugular veins at 2 pm.
I feel well, my back is less stiff, my movements are quicker and my right leg feels already more powerful.
I am not on any blood thinners.
The procedure was carried out at the Royal Victoria Hospital in Belfast by the radiologist Dr Anton Collins while I was under the care of the vascular surgeon Mr Robin Baker. ...
Read more : First liberation procedure in UK | Views : 35505 | Replies : 174

Coumadin and LDN ?

I'm a little frustrated at the time it is taking me to recover my strength and stamina to at least their pre-stent procedure levels.

It will be 4 weeks tomorrow that I returned home. I'd guess my stamina and walking strength are still only 50% of what they were before the procedure. Yes, everyday is still a little better, but I still start to crash at about 7pm, in bed soon after, and spend about ...
Read more : Coumadin and LDN ? | Views : 1740 | Replies : 11

Need suggestions for blood panel


I'm going to visit my neuro next monday for arranging my LP and I would like to ask him for some blood tests.

My list:

alpha-tocopherol (vitamin e).
all the b vitamins ,
vit d (don't remember what kind),
vit a,
uric acid,
iron (ferritin)

(Taken from a post by Jimmylegs)

Please, feel free to suggest anything to add or change.

Thank you very much


PS: cross posted ...
Read more : Need suggestions for blood panel | Views : 1090 | Replies : 4

Pain ratings during and after stent placement

Would those of you who had the stent procedure please rate any pain felt on the scale of 0 - 10
(with 0 denoting no pain) for the following:

1) Pain felt during placement of the stents,

2) Pain felt after placement of the stents. Please state how long the pain lasted.

Thank you very, very much.

Read more : Pain ratings during and after stent placement | Views : 2669 | Replies : 15

Attack After CCSVI?

Hi Guys.. I just have a question regarding those of you who have done the operation did anybody unfortunately get an attack afterwards or did it stop? I know its still early but i was just curious.
Read more : Attack After CCSVI? | Views : 1308 | Replies : 5

My Turn!

I leave first thing Thursday morning. Testing scheduled for Friday 10/16. Consult and procedure scheduled for Monday 10/19. I do have to admit a case of nerves has hit me. I think it has more to do with leaving my family and traveling alone, than with the treatment. I wanted to post now because I'll be tying up a million loose ends tomorrow. I'll post my journey. Wish me luck!
Read more : My Turn! | Views : 4035 | Replies : 35

CCSVI treatment coming to the east coast...soon......

This was posted on forum and the poster gave me permission to crosspost here:

"Went to an MS Conference this morning...

I'm a nurse and this morning, I was told by our wonderful neuro fellow that Patricia Coyle MD was giving a lecture on MS today. So went and she promised at the beginning of the lecture that she was going to "drop a bomb" about MS later on. She went over the usual ...
Read more : CCSVI treatment coming to the east coast...soon...... | Views : 2492 | Replies : 14

CCSVI Wikipedia typos in English version

Sorry if this has been mentioned already, but . . .

There are many glaring typos on the Wikipedia page for CCSVI in the English version which makes me think there is a problem with translation.

The info presented should also be checked for accuracy by someone more knowledgeable than I.

The page mentions MS briefly, but nonetheless, if this procedure is to be taken seriously, then the page should be corrected.

Some people here ...
Read more : CCSVI Wikipedia typos in English version | Views : 1266 | Replies : 2

Neck problems, tension shoulders, etc and CCSVI

I don't know if this has been disgussed here, but in Finnish forum there was some talking about neck problems, feeling of pressure in head, tension in neck/shoulder area -- and CCSVI? Is there any connection between these?
Looks like these pressure feelings in head and tension neck are quite common in MS?

- Ernst, who just massaged wife's neck :wink:
Read more : Neck problems, tension shoulders, etc and CCSVI | Views : 3322 | Replies : 12


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