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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Waiting to hear from Alex!

Hello Everyone!
I am new here. My name is Rhonda. I have had RRMS since 11/03. I just found out Alex will be contacting me this week about getting an appointment with Dr. Dake. I am thrilled.
I also just heard back from my Neuro's nurse........he won't be supporting or referring me. Well, luckily you all have left this invaluable info here for me to draw from, so I knew that would be coming. I ...
Read more : Waiting to hear from Alex! | Views : 2558 | Replies : 27


Where to start? CCSVI

Hi All! New here
I was told by my neuro last week it's more than likely that I have MS.
Ok next step is the LP in a few weeks..But...

After reading through all the information on CCSVI I am sure there is something going on with my veins. I have pressure in my head that I cannot explain and I know something is just not right!

I want to get the needed tests but ...
Read more : Where to start? CCSVI | Views : 1207 | Replies : 5


Diosmin

What do you think about Diosmin and CCSVI? Can it have any positive effects? In US it is sold as a supplement and in Europe on prescription (Detralex).
http://en.wikipedia.org/wiki/Diosmin
Read more : Diosmin | Views : 1136 | Replies : 1


Steroid Injections helps patients with blocked eye veins

Just stubled over this one today. Might this be an additional/alternative explanation for the mechanism of action of steroids in MS relapse?

http://www.sciencedaily.com/releases/20 ... 172636.htm

--Frank
Read more : Steroid Injections helps patients with blocked eye veins | Views : 1190 | Replies : 3


How much ??

I have been wondering how much does the procedure cost?
Read more : How much ?? | Views : 1115 | Replies : 1


Not MSer, but wondering...

Hi, there,

My brother has RR MS. I have many symptoms (the usual: tingling, numbness, loss of strength and balance, cognitive issues) but I don't show any lesions. He has been diagnosed with celiac disease (as has 1/2 of our family) and I surely have it but stopped eating gluten so long ago and am so sensitive to it I can't get the blood test to confirm if I have the antibodies.

Since the neuro ...
Read more : Not MSer, but wondering... | Views : 1117 | Replies : 3


Spreading the news

I belong to the group of people who believed that prof. Zamboni's original idea of the correlation between CCSVI and MS was right, and my belief has grown even stronger reading his subsequent publications and after the congress in Bologna.
We need to accept the fact that even an 100% correlation does not prove cause and effect. In other words, the finding that all MS patients have anomalous drainage of venous blood from the brain ...
Read more : Spreading the news | Views : 7261 | Replies : 77


CCSVI MS or MS CCSVI?

I know that there has been conversation here about what comes first, CCSVI or MS? But I'd like to begin own discussion about this - cause this might be very hot topic.. or already is. Maybe neurology likes to see that CCSVI is just ms consequence and vascular experts say vise versa.

How many reasons can you say, that CCSVI leads to MS? I have some idea about the CCSVI to MS process, but some ...
Read more : CCSVI MS or MS CCSVI? | Views : 1786 | Replies : 8


Dr. Frohman and Normal Pressure Hydrocephalus

Dr. Eliot Frohman, professor of neurology at Southwestern University- was a moderator and participant in the CCSVI convocation. He consistently had cogent and insightful questions and comments during the day. One of his points has stayed with me, and prompted me to do some more research on cerebrospinal fluid. Dr. Frohman commented that CCSVI was reminding him of his shunting treatment of normal pressure hydrocephalus ...mainly in the fact that the third ventricle was being ...
Read more : Dr. Frohman and Normal Pressure Hydrocephalus | Views : 10999 | Replies : 108


How best to tackle CCSVI with neuro?

Ok, I'm in Ireland, so doubt many CCSVI specialists here, but I am due to see my Neuro in December.

I want to ask about investigatioin for CCSVI. What should I take with me to the appointment? There's so little time I don't want to walk in with a stack of papers. My neuro is very well up on new developments but just not sure how to broach it in the time available......
Read more : How best to tackle CCSVI with neuro? | Views : 2605 | Replies : 14


 

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