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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Zamboni at Charcot foundation meeting !!!!

The CCSVI Facebook page has a new entry this morning about the Charcot Foundation Meeting in Europe. Apparently Dr. Zamboni and Dr. Salvi will have their CCSVI posters there. It's being held in Lisbon November 12, 13 and 14. I was disappointed that Dr. Zamboni is not giving a talk !!!! We all know the lack of impact of his posters at ECTRIMS. The Charcot foundation page has a button survey to see if a ...
Read more : Zamboni at Charcot foundation meeting !!!! | Views : 2133 | Replies : 5

Clexane injections (Heparin)

My little story about Clexane:
Some of you know I was scared to inject myself.
I am lucky I do not have any psychological block against it.
Day before the procedure, a nurse injected it. I was watching. She started about 15 cm far from my belly and the needle was inside. After she pushed slowly the syringe to inject the liquid inside of my skin. It was over and little bit painful for about ...
Read more : Clexane injections (Heparin) | Views : 2735 | Replies : 10

Funding for Buffalo CTEVD study !! What can WE do !!??

From Sawdoggie on another thread :

"The good news is, they are very optimistic that they are on to something and the first phase of the study will be released either late this month or early in December. I specifially mentioned to Dr. Weinstock-Guttman that the press release and press conference seemed very confident and she confirmed that it was. The first phase is going to include roughly 500 people and after this they will ...
Read more : Funding for Buffalo CTEVD study !! What can WE do !!?? | Views : 1761 | Replies : 5

New MRI Scanner at UCL Institute of Neurology in London

Roads Closed For Powerful MRI Scanner Delivery

Roads were closed in central London on Saturday as a new high-powered, six tonne MRI scanner was installed at the UCL Institute of Neurology in Queen Square.

The new scanner is more powerful than previous ones and will allow much better images to be taken of the effects of MS throughout its course.

Professor David Miller from the Institute of Neurology, ...
Read more : New MRI Scanner at UCL Institute of Neurology in London | Views : 1684 | Replies : 4

"Crawling T-Cells?

Stumbled over this article and thought I'd share

Real-Time Observation Sheds New Light On Multiple Sclerosis
Scientists at the Max Planck Institute of Neurobiology, the University Medical Center Göttingen, using a two-photon microscope, succeeded in tracing the movements of aggressive T-cells. Outside the nervous system, the T- cells moved just as we would expect them to; most cells were floating along with the flow of the bloodstream. "Things ...
Read more : "Crawling T-Cells? | Views : 1205 | Replies : 1

MS lesions and edema

This is interesting...

Acute Multiple Sclerosis Lesion: Conversion of Restricted Diffusion Due to Vasogenic Edema.

J Neuroimaging. 2009 Nov 3.
Balashov KE, Aung LL, Dhib-Jalbut S, Keller IA.
From the Departments of Neurology (KB, LLA, SD-J); Department of Radiology (IAK), UMDNJ - Robert Wood Johnson Medical School, New Brunswick, New Jersey.

It is widely accepted that acute demyelinating plaques in patients with multiple sclerosis (MS) demonstrate increased apparent diffusion coefficient (ADC) and increased diffusion weighted ...
Read more : MS lesions and edema | Views : 1962 | Replies : 3

[b]New Tool To Accelerate Discovery Of Autoimmune Disease Me

This looked interesting, but it was more than my non-medical gray matter can process, lol.

New Tool To Accelerate Discovery Of Autoimmune Disease Mechanisms And Therapies

Currently, 5 - 8% of the U.S. population is afflicted with an autoimmune disease.
To help researchers investigate these common pathways, The Jackson Laboratory has published Pathways to Discovery: Autoimmune Diseases (, a unique, interactive, and publicly accessible online resource that illustrates the genetic networks involved in five ...
Read more : [b]New Tool To Accelerate Discovery Of Autoimmune Disease Me | Views : 1363 | Replies : 0

Going to Poland!!!!

Hi everyone
First of all a massive THANK YOU!!! I've been reading and learning so much from this forum, and it has given me the impetus to actually take the plunge: I have an appointment with Dr. Simka for a doppler ultrasound on the 1st December!!! I'm going the go over for the 30th November so if anyone else is there, let me know and we can meet up!

Some of my background: I was ...
Read more : Going to Poland!!!! | Views : 22869 | Replies : 145

EPA and blood thinners

Hello, I'm going to have the procedure with Dr Simka in December.
I currently take fish body oil by the bucketful and my blood has become very thin and slow to clot.
I dont know my INR but assume it would not be a good idea to continue with the EPA/EFA as you all seem to go onto blood thinners post procedure.
I'm guessing that my blood would be way too thin if I continued ...
Read more : EPA and blood thinners | Views : 1619 | Replies : 5

PM - Brainteaser

Brainteaser - check your PM box please
Read more : PM - Brainteaser | Views : 1044 | Replies : 1


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