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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

FDA- tysabri and a thought-

New warning from out this week from the FDA- PML seems to be a growing complication in only MS patients. But is not a concern in Crohns. If we consider PML within the CCSVI paradigm, we can see how slowed venous return and blood deposition into brain tissue could allow for a virus like PML to attack the brain. Shouldn't the docs be asking "Why no PML in other patients using Tysabri? Why is it ...
Read more : FDA- tysabri and a thought- | Views : 1012 | Replies : 5


A CCSVI Patient Log: All About Steve

This is Steve’s treatment and recovery log. The Stanford imaging and surgery are scheduled for 9/28 and 9/29. I thought it appropriate to start with his MS symptoms and history. Please forgive me if some of the future entries are very dry and clinical.

About the man: Steve is 56, ½ Sicilian, ¼ Italian, 1/8 Irish, and 1/8 German. He was born and raised in Schenectady, NY, and he’s lived in the Dallas area for ...
Read more : A CCSVI Patient Log: All About Steve | Views : 24350 | Replies : 145


Insurance denied for MRV

Any hints on what dx local vascular doc can use? He went with the swollen ankle angle.

Medicare is primary and XYZ is secondary. The secondary denied. I am keeping the name of XYZ confidential. :evil:

I can't physically go to Stanford.
Read more : Insurance denied for MRV | Views : 857 | Replies : 2


CCSVI and vaccination

Another connection between vaccination and neurological disorders before CCSVI is recognised and widely accepted:
http://vactruth.com/2009/07/21/dr-andre ... -vaccines/
Unbelievable!
Read more : CCSVI and vaccination | Views : 913 | Replies : 2


Looking for answers to questions re the surgery

Hi All,
I’m Hoodyup’s aka Andrew’s wife. He’s posted another thread. I read the responses and comments. Frankly, I am not here to whine and don’t need any online support. Yes, I’m pretty abrasive these days because of this stupid MS and well…I’m just down right pissed at it AND the medical profession and I’m not even PMSing or on steroids. As of today, I’m now moderately pissed at Andrew for going behind my back ...
Read more : Looking for answers to questions re the surgery | Views : 2296 | Replies : 17


Coach -To Stanford and Back

Thought I hadd posted about my Stanford experience, but I guess it got lost in cyberspace. Left for Stanford last Sunday and arrived in San Jose in a small drizzle of rain. My husband and I did the scouting of Stanford to find out locations of the different tests. Had the tests on Tuesday. Which went fine. I think I even momentarily dozed off during the MRI. Someone had mentioned in a previous post that ...
Read more : Coach -To Stanford and Back | Views : 2956 | Replies : 22




Getting Doppler in Finland

Yeah,

Surprise to me too, but I was in private sector clinic today visiting vascular surgeon.
He was very sceptic first but I show him CCSVI article from Finnish MS-magazine and then we was able to speak the same language(maybe?) :D

I made a cd-disc to him, full of CCSVI documents and pictures,
all that I can found.
He said that this thing is very interesting ...
Read more : Getting Doppler in Finland | Views : 1501 | Replies : 11


Vasolidation

On Wikipedia I found one sentence regarding vasolidation that I find interesting:
"Tetrahydrocannabinol (THC) - the major active chemical in marijuana. Its mild vasodilating effects redden the eyes of cannabis users."

I remember articles where I read about cases where people could walk right after smoking marijuana. Maybe because of that effect.

Another fact is that vasolidation leads to a decrease in blood pressure and I read that low BP was found helpful in MS ...
Read more : Vasolidation | Views : 938 | Replies : 2


you all are amazing -- can I join you?

I just found this info last week, and the first night I could not SLEEP I was so excited. I have now tried to absorb everything you all have written on this forum. :-)

I've even dreamed about it. Last night I dreamed Janet Leigh was playing me in a movie about all this, and Dr. Dake was asking her what her transferrin levels were because that ...
Read more : you all are amazing -- can I join you? | Views : 2206 | Replies : 16


 

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