This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Fri May 24, 2013 3:59 pm


All times are UTC - 8 hours [ DST ]


News News of Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Site map of Chronic Cerebrospinal Venous Insufficiency (CCSVI) » Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

 [ Total topics 6424 Go to page 1 ... 632, 633, 634, 635, 636, 637, 638 ... 643

Message
 Post subject: Okay... MRV here we come!
PostPosted: Tue Jun 09, 2009 11:45 am 
After much discussion over the past couple of weeks we've decided to look into all of this.

I've emailed Dr. Dake, Mel is going to talk to her PCP.

I've asked him if there's anyone locally he'd trust to do the MRV. Then we've got the intervention to worry about if a problem is found.

Right at the very beginning of the process but it feels good to do something.

Read more : Okay... MRV here we come! | Views : 1262 | Replies : 3

Top
 Post subject: A Tribute to my AMAZING wife (aka Cheerleader)
PostPosted: Tue Jun 09, 2009 10:54 am 
25 Years ago Joan (aka cheerleader) and I stood at the alter of my hometown church and said these words to each other:

'to have and to hold from this day forward, for better or for worse, for richer, for poorer, in sickness and in health, to love and to cherish; from this day forward until death do us part.

(yes, we chose the traditional vows)

All of us with MS know you find out ...

Read more : A Tribute to my AMAZING wife (aka Cheerleader) | Views : 2801 | Replies : 16

Top
 Post subject: graphic links thorax and cervical
PostPosted: Tue Jun 09, 2009 9:03 am 
thorax spinal assignments and locations

http://www.instantanatomy.net/thorax/le ... evels.html

cervical plexis

link

thorax nerves

http://www.instantanatomy.net/thorax/nerves/vagus.html
http://www.instantanatomy.net/thorax/ne ... renic.html

I hope this intriqued you guys...this site has lots to roam around...

Read more : graphic links thorax and cervical | Views : 1181 | Replies : 0

Top
 Post subject: Copaxone's mechanism of action?
PostPosted: Mon Jun 08, 2009 10:05 am 
Most copaxone users know about the dreaded heart racing, flushing, blood rushing side effect. Even if you've never had this reaction, you're told to look out for it. Jeff had it once after taking his injection after exercising. Guess what causes it? vasodilation.

Vasodilation is listed as one of the major side effects of Copaxone. Could it be that this side effect is the mechanism of action for this drug? Researchers have told us they ...

Read more : Copaxone's mechanism of action? | Views : 1981 | Replies : 4

Top
 Post subject: Other options
PostPosted: Sun Jun 07, 2009 10:13 pm 
I'm curious what other options there are to stent insertion. In effect, we know that Dr. Michael Dake at Stanford is inserting stents to correct the CCSVI stenoses. We also know that Dr. Zamboni is using a different surgical procedure that does not require stents. However, do we know exactly what Dr. Zamboni is doing surgically? Is it a one time fix? Does it require continual use of blood thinners, e.g., Plavix, comparable to the ...

Read more : Other options | Views : 4809 | Replies : 38

Top
 Post subject: 123
PostPosted: Sun Jun 07, 2009 9:06 am 
123

Read more : 123 | Views : 1884 | Replies : 4

Top
 Post subject: Getting Ready for Stanford
PostPosted: Sat Jun 06, 2009 12:35 pm 
I noticed that Mark and I sort of hijacked Holly's thread by discussing the medical records he should take. So, I decided to start a new thread to help those who are on their way to Stanford. I think having the tips and suggestions in one place will help those who are on their way. This is also a good place to ask the general questions......

Here are some topics that could be (and have ...

Read more : Getting Ready for Stanford | Views : 5729 | Replies : 44

Top
 Post subject: Sharon's post op CCSVI
PostPosted: Fri Jun 05, 2009 10:37 am 
What an adventure!! My "bucket list" (you know the movie with Jack Nicholson and Morgan Freeman), did not have this adventure listed on it, but it does have "fight the MS with everything positive". Even though I feel pretty crappy right now, I think I can put a check mark alongside that entry.

THE TESTS The tests are basically the same thing we have all been through before except for the breathing exercise in the ...

Read more : Sharon's post op CCSVI | Views : 7243 | Replies : 52

Top
 Post subject: CCSVI patients' log
PostPosted: Thu Jun 04, 2009 5:08 pm 
Hoping each patient can post the following information in this format, so we can keep track here. Please go ahead and add any other pertinent info Marie, Sharon, Holly and the gang....

patient: Jeff
diagnosis: RRMS 3/07 (at age 43)
lesions: multiple brain lesions, 20 or so, small, round and scattered ("Steiners' splashes")
one lesion on cervical spine
symptoms: fatigue, bladder issues, depression, occasional numbness and tingling in feet, leg pain, heat intolerance
EDSS: 1.5 ...

Read more : CCSVI patients' log | Views : 30396 | Replies : 168

Top
 Post subject: CCSVI- just the facts, ma'am
PostPosted: Wed Jun 03, 2009 5:24 pm 
CCSVI, Just the facts, ma’am

1. What is CCSVI?

Chronic cerebrospinal venous insufficiency... it’s a chronic (ongoing) problem where blood from the brain and spine has trouble getting back to the heart. It’s caused by stenosis (a narrowing) in the veins that drain the spine and brain. Blood takes longer to get back to the heart, and it can reflux back into the brain and spine or cause edema and leakage of red blood ...

Read more : CCSVI- just the facts, ma'am | Views : 63723 | Replies : 114

Top
 [ Total topics 6424 Go to page 1 ... 632, 633, 634, 635, 636, 637, 638 ... 643


Last 10 active topics


Chronic Cerebrospinal Venous Insufficiency (CCSVI)

No new posts Conflicting CCSVI Data
View the latest post
No new posts Tysabri PML Cases (95 infected 20 dead)
View the latest post
No new posts Second Procedure Question
View the latest post
No new posts You're getting thirrrrrrsty.. water water water
View the latest post
No new posts does anyone know the correct Billable codes for a venaplasty
View the latest post
No new posts Date in Malta with Zamboni's team ...yet I may refuse.....
View the latest post

Mental & Spiritual Health

No new posts I loved this book!-Anna York on her spiritual journey/recove
View the latest post

Copaxone

No new posts Cop axone ??????????
View the latest post

General Discussion

No new posts Could monocytes play a part in the development of MS?
View the latest post
No new posts Help/advice please
View the latest post

Login

Username:   Password:   Log me on automatically each visit  

Statistics

Statistics

Total posts 203150 | Total topics 20419 | Total members 12688





News News Site map Site map SitemapIndex SitemapIndex RSS Feed RSS Feed Channel list Channel list
Read hundreds of Multiple Sclerosis stories on Experience Project. Experience Project is community where people connect through their life experiences. It's made by the same people who built This is MS, on the premise that no single life experience-- like having MS-- defines a person. EP covers over 10 million true stories about every possible life experience. Find yours!


Interesting: Secret Confessions | Dream Meanings | Ask Questions, Get Answers | Song Meanings | Stand for your Favorite Causes