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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

How to really perform USG Doppler?

Last week we managed to get the examination and USG in one of the best institutes for vascular and heart diseases in Slovakia. When I started explaining to one young doctor (angiologist) about CCSVI and showed him the report from Dr. Simka he was very surprised and decided to call all his colleagues to come down to him. (Well that was really funny, because I felt like an expert making a lecture for them, which ...
Read more : How to really perform USG Doppler? | Views : 1654 | Replies : 3

mri after procedure

I just wondered if anyone had his mri after stenting/balooning procedure to see what is happening with lesions,or to look for new ones if any... or maybe there is some special schedule for mri checkup after procedure and we still have to wait for wonderfull news like "no new lesions" ? I know that we need more time ...
Read more : mri after procedure | Views : 5456 | Replies : 33

risks of stenting procedure

I'm going to Poland for doppler/MRV/the procedure the 2nd week of December. At least I WAS going. Now I have some doubts because my ex-partner (a pathologist) thinks it's dangerous.

He asked me if there are surgeons stand-by if something goes wrong during the operation and the patient needs an emergency operation.

Does anyone here know this? How safe is this procedure?
Read more : risks of stenting procedure | Views : 2092 | Replies : 7

TEDMED and Boston Scientific


I just stumbled upon a very interesting article in a german science online magazine called "technology review": ... 48684.html

It's about the TEDMED, an independent meeting of innovative medical professionals.

In this article, Boston Scientific is mentioned, a company that produces stents. On their website, I found this:

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and this:

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Especially their procedures for vascular deseases ...
Read more : TEDMED and Boston Scientific | Views : 1304 | Replies : 1

FTY720 (Fingolimod) &

Hey all,

I was doing some research on Fingolimod when I stumbled onto something I thought may be related to the discussions we are having here. Fingolimod is a sphingosine 1-phosphate (S1-P) receptor modulator and has been shown to reduce relapses and disability progression. When I googled "sphingosine 1-phosphate (S1-P) receptor modulators," the research article below popped up. In it, the research shows that S1-P significantly attenuates "vascular barrier dysfunction." I have a limited understanding ...
Read more : FTY720 (Fingolimod) & | Views : 1508 | Replies : 1

Post CCSVI stenting - getting off meds safely and exercise

Hi Everyone,
I am post procedure and have been lucky enough to feel real improvement. I want to eliminate all unnecessary meds, ASAP! I have no patience, LOL. :lol: I do know how distressing this can be to my body, so I'm trying to go slow. :roll:
I was on pain, anxiety, and musclerelaxant medications, which I do ...
Read more : Post CCSVI stenting - getting off meds safely and exercise | Views : 2040 | Replies : 9

Erika`s procedure in Poland

I am very happy and I am very lucky! :D :D :D :D :D :D
I had me procedure in ...
Read more : Erika`s procedure in Poland | Views : 86765 | Replies : 493

CCSVI and change of seasons

Would change of seasons affect someone with CCSVI?

Everytime the seasons change, I feel horrible. I have been so dizzy and nausious the past 4 days, it's very miserable. I thought I had a flu or cold at first, but no fever or or other symptoms. Besides this is how my relapses often start.

There is so much information here and I have probably absorbed about 50% of it. it's overwhelming for me. ...
Read more : CCSVI and change of seasons | Views : 1729 | Replies : 5

Good supplement for all stenters - abstract only

Phosphatidylserine-containing liposomes promote maximal survival of retinal neurons after ischemic injury

This study was supported by the AHA Scientist Development Award 0735014B (DI); NIH grant EY017991 and Research to Prevent Blindness (RPB) Career Development Award (VS); NIH grant P30 EY014801 and unrestricted RPB grant to the University of Miami Department of Ophthalmology.

Galina Dvoriantchikova1, Christian Agudelo2, Eleut Hernandez1, Valery I Shestopalov1,3 and Dmitry Ivanov1,4

1Department of Ophthalmology, Bascom Palmer Eye Institute, University of Miami Miller ...
Read more : Good supplement for all stenters - abstract only | Views : 2189 | Replies : 5

SammyJo goes to Stanford

10/29/09 My husband said Dr. Dake came out to the waiting room after my 2.5 hour procedure and gave an enthusiastic run down, on what I gathered from the corner of my eye was a flawless installation of 3 stents & 1 angioplasty. Both jugulars a mess, but azygos OK. Flew back to Seattle Sun. and I'm recovering well, but muscles still weak. Neck pain initially severe, a few headaches, but now manageable, just using ...
Read more : SammyJo goes to Stanford | Views : 10813 | Replies : 47


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