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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Pseudo relapses

Radek mentioned having a 'pseudo relapse' and then qualified it as 'imaginary'. Actually, the way my neuro explained pseudo relapses to me was that something (maybe heat, excess exertion, stress, emotional upset, etc) would trigger something (maybe inflammation) that would cause actual symptoms, but that they didn't stick around as long as an exacerbation would. He said he thought I had one after having a bad emotional upset...I was upset that he thought I was ...
Read more : Pseudo relapses | Views : 1525 | Replies : 2


Moved to the random ccsvi notions thread.
Read more : Smoking | Views : 1244 | Replies : 1

EGCG, iron and the brain

Ursula, our German EGCG trial participant posted over in the Drug Pipeline

Wanted to make sure all CCSVI stento-teers and CCSVI curious knew about the iron chelating properties of EGCG (green tea extract)- thanks to Sharon for pointing this out again to Ursula-
Jeff's been on it for a year or so, as part of the endothelial health program. As we learn more about iron deposition in MS, ...
Read more : EGCG, iron and the brain | Views : 11694 | Replies : 43


From the Buffalo Neuroimaging Analysis Center (BNAC).

SWI-MRI image shows high iron levels in MS compared to control.

Read more : SWI-MRI | Views : 2104 | Replies : 5

40-50k out of pocket??!!

Read more : 40-50k out of pocket??!! | Views : 3563 | Replies : 23


Read more : 123 | Views : 1223 | Replies : 1

Dr Simka (Poland)

Good evening,
I was diagnoised with PPMS 17/02/2009 & i've my 2nd MRI+MRV 11/11/2009.I've made an appointment with Dr Simka 30/11/2009.
Best Regard's
Read more : Dr Simka (Poland) | Views : 104029 | Replies : 436

the 'Random CCSVI Notions' thread

It seems like many of us get random ideas about how CCSVI night be connected to some other thing - sometimes they don't seem worth mentioning in their own thread. I thought it might be neat to have a place to put the results of these brainstorms - if they happen to get some traction in here, perhaps at that point break it out into a new thread.

The idea being that nothing is too ...
Read more : the 'Random CCSVI Notions' thread | Views : 9453 | Replies : 56

Need a workable, simple definition of CCSVI & stenting

Hi everyone,

I've mentioned this elsewhere in posts, but now I'm starting a new thread about the huge need for a short, simple definition of CCSVI that explains the concept and stenting for both the jugular and azygous veins.

Perhaps everyone can help develop one???

Otherwise, I'm afraid patients aren't going to be telling their doctors much of anything.

After all, a major symptom in MS is cognitive problems, so a boiled-down definition would help ...
Read more : Need a workable, simple definition of CCSVI & stenting | Views : 2291 | Replies : 7

Anyone been to Stanford who has no CCSVI?

Well, the question sounds silly so I must explain it.

Apart from me another german woman had her veins checked by Dr. Simka in Poland via doppler without finding any problems in the jugulars.

But at least in my case Dr. Schelling said after seeing my MRT's that I have quite definitely a problem with the veins concerning the lesions in my head (I also have lesions in the spine but the azygos vein can't ...
Read more : Anyone been to Stanford who has no CCSVI? | Views : 5226 | Replies : 21


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