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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Question for those who have had a follow-up

What does the follow up visit require as far testing and procedures go. Just trying to plan for our next trip and how long we will have to stay.

Thanks, Cat
Read more : Question for those who have had a follow-up | Views : 798 | Replies : 1

Cheer's excellent adventure

Hey guys...
In Bologna!! Going out to walk around town, but wanted to let you know I survived the 10 hour flight from LAX to Paris...squeezed in the center seat of the center aisle in a group of 25 Norwegian motorcyclists who'd just done route 66, and were celebrating. It was like a norwegian happy hour. For ten hours. At 30,000 feet. The guys wanted to give me drinks, and one of them called me ...
Read more : Cheer's excellent adventure | Views : 6809 | Replies : 62

Lisinopril and CSVI patient

As I have stenosis and also high blood pressure I have decided to ask my doctor to change my pills for high BP for Lisinopril.
Usually only my pulse is high around 120. My BP was about 150/110 so I was taking Vasocardin.
I got the information it is good for MS patients with CSVI to take Lisinopril.

So today was my first day.
I paid for 30 pills 1,17 Euro. My health insurance company ...
Read more : Lisinopril and CSVI patient | Views : 2836 | Replies : 15

Clinical History for Dr. Dake???

Hi, I am writing up my 'clinical history' for Dr. Dake that Alex asked for. I just tried to call, but of course she is gone. I wanted to ask you guys if you could give me some direction. I have started and right now it is 2.5 pages of my MS stuff. Is that what he wants? I know he will call and ask more questions, but I feel sort of off track. TIA! ...
Read more : Clinical History for Dr. Dake??? | Views : 1021 | Replies : 4

Blake's experience at Stanford

We just returned from Stanford earlier this week, where my husband got two stents placed in each jugular. He also did HiCy which so far had stopped his progression, but he had some lingering symptoms. It wasn't a bad experience at all and was up and about the next day no problem. He already feels better- has much more energy, walking better, no more dizziness, and no heat intolerance any more. It's pretty exciting stuff, ...
Read more : Blake's experience at Stanford | Views : 2775 | Replies : 7

posture & CCSVI

In another thread, talk of how poor posture (brought on by computer use, poor fitness, disability, spasticity, etc) could be a factor in the compression of the cerebral drainage veins.

LR1234 wrote:I can also say for sure that when I strengthen my stomach muscles by doing sit-ups my symptoms improve. It straightens my back and corrects my posture.

I had "Is physical therapy suggested to correct postural problems and strengthen weakened muscles? (I am just thinking ...
Read more : posture & CCSVI | Views : 5970 | Replies : 27

Smoking, CCSVI and MS

Hi all.

I have just had some thoughts after reading this article:

Swedish snuff is a form of tobacco that is not inhaled but licked by placing it under the tongue. It contains nicotine. It has been found that, unlike smoking, it does not increase the risk of MS.

Under the lights of Zamboni's research and hypoxia induced damage, I was thinking that smoke damages the lungs, which ...
Read more : Smoking, CCSVI and MS | Views : 1345 | Replies : 3

another hotel possibility

I called the Westin Palo Alto and they gave me a Stanford hospital rate of $169 in December. On the general website it was listed as $349. So consider that an option too in addition to the Sheraton. It is ranked the #1 hotel in Palo Alto on the review site (which you should definitely check out for future travel!!)
Read more : another hotel possibility | Views : 904 | Replies : 1

Passed the paper along

My husband's GP requested that he see a neuro, as he hasn't seen one since last year this time. That was his old neuro, and I'm afraid we had come to the end of our relationship. Today we saw the new one and she seemed quite nice, although she admitted she wasn't an MS specialist. Well, who really is? Perhaps it is better she isn't, or at least doesn't think she is. So we gave ...
Read more : Passed the paper along | Views : 866 | Replies : 2


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