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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

I have been accepted by Dr. Haacke !!!!!!!

About 10 minutes ago I received an email from Dr. Haacke himself !!! He has accepted me into his MS-MRI study in Detroit !!!!!!!!!!!!! I can hardly control my excitement !!! Of course I immediately emailed his research coordinator to begin all the scheduling and arrangements. My husband and I will drive to Detroit one day, have the imaging done the next, then drive home the next day !!!!! I'll keep you all posted....

Read more : I have been accepted by Dr. Haacke !!!!!!! | Views : 4624 | Replies : 25

Possible animal model for MS by inducing CCSVI ?

One of the problems with the scientific study of MS is the lack of an animal model of the disease. Now with CCSVI, it seems like scientists can cause stenosis by clamping the jugulars and/or azygous of mice (do mice have them ???) to force reflux. Then see if lesions develop. Seems like a good idea to me !!!! Any thoughts ????

Read more : Possible animal model for MS by inducing CCSVI ? | Views : 1946 | Replies : 6

Dr. Haacke and his study...I need more info please

I volunteered for Dr Haacke's study of narrowed jugular, and after seeing a few of my scans, he wants me to come for detailed imaging.

Honestly, someone e-mailed me out of the blue, because I had posted somewhere on the internet a year ago about pinched jugulars, and told me about this site. In a weeks time not only have I found out Dr.'s are researching this problem, but they want to study me. Kinda ...
Read more : Dr. Haacke and his study...I need more info please | Views : 2637 | Replies : 12

FTY 720 (Fingolimod) Considered for Stroke (Ischemia)

Hi all

I posted some info about the development of FTY 720 (Fingolimod) for stroke in the drug pipeline but thought I'd post it here as well given the apparent reluctance of some neuro's to consider the impact of CCSVI in people with MS. (The link in that post is open access but you need to register) More info:

The immunomodulatory sphingosine 1-phosphate analog FTY720 reduces lesion size and improves neurological outcome in a mouse ...
Read more : FTY 720 (Fingolimod) Considered for Stroke (Ischemia) | Views : 2062 | Replies : 4

Lesion location relating to stenosis location?


I'm new here, and have spent 2 days reading a lot of the material. I'm exhausted, but in a good way. I made it through the 50+ page original thread, and a lot of the other threads. Thanks to all of you who are contributing and being guinea pigs! This is exciting stuff.

I'm very interested in the procedure, and have emailed Dr. Dake's office.

My diagnosis of MS was based on c-spine and ...
Read more : Lesion location relating to stenosis location? | Views : 1413 | Replies : 2

Hope Happens in St. Louis


I have a meeting this coming Wednesday, Nov 4, with THomas A. Woolsey (Google his name) and other researchers at the Hope Center for Neurological Disorders here in St. Louis. Please look at their website :

I have already talked to Dr. Woolsey about CCSVI and he is cautiously favorable to the idea, but says he doesn't know much about MS. I hope I will get to ...
Read more : Hope Happens in St. Louis | Views : 2769 | Replies : 15

CCSVI on TIMS front page?


What about writing a CCSVI news article to the TIMS front page?

It seems that the latest news article was added in 2007. Compare with

I think it's better if a native speaker writes a text. The submit link can be found on the front page.

Thanks to Juan for suggesting this.

Read more : CCSVI on TIMS front page? | Views : 1819 | Replies : 5

Newbie getting ready to go!!!!!!!!!

Hi all I have gotten my turn to go see Dr. D on the 15th of Dec. I am so excited to go. I have no worries but my mother is a different story of coarse. She is freaking out about all of this. I know she is my mother and she has every right to be worried about something like this.
I have went against all of what everybody has wanted me to do ...
Read more : Newbie getting ready to go!!!!!!!!! | Views : 2129 | Replies : 5

Pseudo relapses

Radek mentioned having a 'pseudo relapse' and then qualified it as 'imaginary'. Actually, the way my neuro explained pseudo relapses to me was that something (maybe heat, excess exertion, stress, emotional upset, etc) would trigger something (maybe inflammation) that would cause actual symptoms, but that they didn't stick around as long as an exacerbation would. He said he thought I had one after having a bad emotional upset...I was upset that he thought I was ...
Read more : Pseudo relapses | Views : 1579 | Replies : 2


Moved to the random ccsvi notions thread.
Read more : Smoking | Views : 1285 | Replies : 1


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