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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Smoking, CCSVI and MS

Hi all.

I have just had some thoughts after reading this article:

http://msrc.co.uk/index.cfm/fuseaction/show/pageid/1850

Swedish snuff is a form of tobacco that is not inhaled but licked by placing it under the tongue. It contains nicotine. It has been found that, unlike smoking, it does not increase the risk of MS.

Under the lights of Zamboni's research and hypoxia induced damage, I was thinking that smoke damages the lungs, which ...
Read more : Smoking, CCSVI and MS | Views : 1363 | Replies : 3


another hotel possibility

I called the Westin Palo Alto and they gave me a Stanford hospital rate of $169 in December. On the general website it was listed as $349. So consider that an option too in addition to the Sheraton. It is ranked the #1 hotel in Palo Alto on the review site www.tripadvisor.com (which you should definitely check out for future travel!!)
Read more : another hotel possibility | Views : 915 | Replies : 1




Passed the paper along

My husband's GP requested that he see a neuro, as he hasn't seen one since last year this time. That was his old neuro, and I'm afraid we had come to the end of our relationship. Today we saw the new one and she seemed quite nice, although she admitted she wasn't an MS specialist. Well, who really is? Perhaps it is better she isn't, or at least doesn't think she is. So we gave ...
Read more : Passed the paper along | Views : 892 | Replies : 2


Zap Goes to Stanford (Dec)

Well, it's finally on ... from the time I was first diagnosed in 2006, I have thought the answer lies this way (Schelling's "Venous Pressure Theory" explaining Dawson's Fingers lesion pattern made so much sense), and now it's time to put my neck out, literally.

After playing phone tag with Dake's office since June, I'm finally scheduled to go get scanned on December 7th.

I could have signed up for as soon as early Oct, ...
Read more : Zap Goes to Stanford (Dec) | Views : 1154 | Replies : 12


Catfreak's Trip to Stanford!!

Leaving for the Airport!

Will update soon.

Cat
Read more : Catfreak's Trip to Stanford!! | Views : 8448 | Replies : 78


Sept 2nd and 3rd

Wow, it's almost that time. I've really appreciated reading about all of your experiences. Of course, like MS, no two cases are the same but just knowing that there are others on the same journey gives me comfort.

I go in for testing on Wednesday and based on the results I may (probably will) have the procedure done on Thursday. I have SPMS and my symptoms have more to do with mobility than cognition so ...
Read more : Sept 2nd and 3rd | Views : 2656 | Replies : 19


A note from Holly's sister

I received an email from Trudy, Holly's sister. She asked if I would post this note on the forum.
Dear friends of Holly,
I am Holly's oldest sister, Trudy, in California. Holly stayed with me when she went to Stanford hospital. I want you all to know that she had a great time during the last week of her life, spending it here with her best friend, Kathy. We got "out and about" during the ...
Read more : A note from Holly's sister | Views : 2031 | Replies : 11


MRI reports?????????

Has anyone who received this procedure had any follow up MRI's since their operation????? It sounds like Zamboni has been studying CCSVI for quite awhile and I am sure there has to be SOME info. on whether any of the people have had changes on their MRI.
Read more : MRI reports????????? | Views : 1530 | Replies : 12


CCSVI in PPMS

Hello everyone,
I am a PPMS-sufferer from Germany and have lately been reading very much on this very informative website. What I do not quite understand until now - and maybe you can help me - is: What are the results on CCSVI in PPMS so far? Has anybody with PPMS got stents put in? And how did it work? Or are results about this subject expected not before September 8th?
Thank you so much ...
Read more : CCSVI in PPMS | Views : 1382 | Replies : 2


 

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