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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.


Catfreak's Recovery Notes

Patient: Cindi

Diagnosis: Probable MS 2/03 and RRMS 4/08 - at age 48

Lesions: multiple brain lesions, 8 or so, small, round and scattered

Symptoms: constant headache, ringing and buzzing in left ear, severe fatigue, bowel issues, depression, constant twitches in legs and occasionally in arms and hands, daily numbness and tingling in feet, legs, arms and hands, left hip pain, slight left foot drop when fatigued, severe heat intolerance, severe brain fog, problems with ...
Read more : Catfreak's Recovery Notes | Views : 14557 | Replies : 109


Not CCSVI but somewhat related

If you had heart surgery you will probably develop memory and cognitive problems.

Brain scientists and cardiac surgeons at Johns Hopkins have evidence from 227 heart bypass surgery patients that long-term memory losses and cognitive problems they experience are due to the underlying coronary artery disease itself and not ill after-effects from having used a heart-lung machine.


Neurologists on the study team say the results highlight the need for further research into the long-term consequences ...
Read more : Not CCSVI but somewhat related | Views : 896 | Replies : 1


Treatment in Italy - When?

Besides being Argentinian, I have Italian citizenship (Grazie tante Nonno) so it would be natural for me to go to Italy to get the treatment.

So, does anyone know or imagine or estimate when a treatment will be available there? As far as I know the procedure would be free for Italian citizens (?)

Thanks

EDIT: Changed the subject to reflect the contents better.
Read more : Treatment in Italy - When? | Views : 1629 | Replies : 6


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Dr Simka's PP presentation from Monaco

CLICK HERE FOR POWER POINT

Dr Simka has a brand new paper about to be published, here is a powerpoint presentation he gave in Monaco just last week on this new work. How about that--this is going all over the place all at once with these wonderful researchers really putting themselves into it.

He explains well the CCSVI paradigm and includes some nice graphics that demonstrate things such as the tight junctions of the BBB ...
Read more : Dr Simka's PP presentation from Monaco | Views : 2297 | Replies : 10


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CCSVI PreCongress Meeting- September 7, 2009

Monday September 7, 2009
Bologna Italy
CCSVI PreCongress Meeting
6pm

Dr. Paolo Zamboni welcomes the gathered doctors and guests to the CCSVI Cenaculum Studiorum.
His topic is CCSVI, How to Move Forward-
He states that there are professionals gathered here from the studies of the blood’s path on the blood brain barrier side to the nervous system and that we all must share opinions and have exchanges. We need to dialogue and to learn from ...
Read more : CCSVI PreCongress Meeting- September 7, 2009 | Views : 7397 | Replies : 35


Question for those who have had a follow-up

What does the follow up visit require as far testing and procedures go. Just trying to plan for our next trip and how long we will have to stay.

Thanks, Cat
Read more : Question for those who have had a follow-up | Views : 841 | Replies : 1


Cheer's excellent adventure

Hey guys...
In Bologna!! Going out to walk around town, but wanted to let you know I survived the 10 hour flight from LAX to Paris...squeezed in the center seat of the center aisle in a group of 25 Norwegian motorcyclists who'd just done route 66, and were celebrating. It was like a norwegian happy hour. For ten hours. At 30,000 feet. The guys wanted to give me drinks, and one of them called me ...
Read more : Cheer's excellent adventure | Views : 7019 | Replies : 62


 

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