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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Follow-Up w/ Local Endovascular Docs?

Hi All,

I've been in contact with Dr. Dake's office over the past month or so. Spoke with him once and Alex twice and faxed off a bundle of reports/letter. Will likely be scheduling soon.

As my medical history indicates cerebral venous flow & IJV issues, I'm probably a good CCSVI intervention candidate. And, clinically fatigue/cognitive fog is one of my most disabling symptoms taking me down daily. Although my walking is getting wonkier every ...
Read more : Follow-Up w/ Local Endovascular Docs? | Views : 1553 | Replies : 11

CCSVI Website:

Dear TIMS-Community!

We are very impressed by the work you have done over the last years and the achievements of TIMS for CCSVI. It’s just brilliant thank you so much guys!

As there is nothing comparable in Europe we decided to start something similar in Switzerland/Germany.

We created a platform, a website and a forum for CCSVI:

Currently, the page and the forum are in German because that’s ...
Read more : CCSVI Website: | Views : 5708 | Replies : 15

did anyone have a MRV before going to Dr. Dake?

I have a bunch of questions!

Just wondering if anyone had the testing done at their home and then sent the results to Dr. Dake at Stanford? And if so what did Dr. Dake have to say? I assume he ran the tests again when you arrived at Stanford? If the tests are run by him a second time did insurance cover both?

I have a skeptical family member who thinks I should be tested ...
Read more : did anyone have a MRV before going to Dr. Dake? | Views : 1191 | Replies : 4

Lady Stewart-Stanford Update

It is 8:45 pm Palo Alto - Sharon has been in her room for about 30 minutes. I spoke with her briefly - she had three stents - 2 left and 1 right (I think that is what she said---it has been a long day, so please excuse). She is groggy -- her throat hurts. Her sister Susann is with her - thanks Susan for coming all the way from Louisiana to stay by your ...
Read more : Lady Stewart-Stanford Update | Views : 4358 | Replies : 30


Hey all, I am curious what the costs are for the tests and then the procedure. Also, are you guys using insurance on this?
Read more : Cost | Views : 4287 | Replies : 30

Stent Material

Does anyone know the type of material that the stents are made of that Dr Dake uses, and if they are x-ray and MRI compatible?
Read more : Stent Material | Views : 1328 | Replies : 2

Pushing into October for surgery

I just talked to Alex. They are already pushing into October for scheduling the testing/surgery. So Dake read my file in just a few hours after receiving it but I guess there are so many people now calling for the surgery there is a backlog!

Just wanted to give everyone a head's up.
Read more : Pushing into October for surgery | Views : 1307 | Replies : 5

Notes from CureIous' at Stanford

Just heard from CureIous' good friend Don who tells me that he left Op Prep at 4:30pm the op will be roughly 2hrs and recovery about 3hrs. He will be getting double jugs way up high and another set by the shoulder.
Read more : Notes from CureIous' at Stanford | Views : 43765 | Replies : 302

Fast turn around for Dake!

I mailed my records yesterday afternoon through Fed-Ex and they arrived at Stanford this morning. Dr. Dake called me at 2 pm HIS TIME to talk. Quite impressive. The guy must be a machine!!! Anyhow, I can come have the procedure if I like -- although the wait time is now pushed up to September, maybe even mid Sept. since there are another 25 people lined up after the 25 he has already done.
Read more : Fast turn around for Dake! | Views : 1530 | Replies : 9

Lew at Stanford 9/15

I'll be out for my follow up on the 15th, and surgery on the left side on the 16th if indicated. Any and all people who will be out there, let me know and we'll meet up!
Read more : Lew at Stanford 9/15 | Views : 1190 | Replies : 4


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