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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

relapsing/relapsing & collateral vein formation

I know we think that the cyclical nature of early MS is due to the plasticity of the brain alone - recovering and finding new pathways to work around the lesions -

- but is it possible that an occlusion of the veins causes relapse, and the subsequent formation of collateral veins around the blockage permits a return to a more normal state?


Just a thought I woke up with today, no worries if ...
Read more : relapsing/relapsing & collateral vein formation | Views : 1295 | Replies : 3

Is an MRV or CT really enough?

It really is a question. The wonderful Dr Dake has been performing MRV's (as well as dopplers and doing some poking about during the operation), however, reading Zamboni's papers, I read things that in my simple mind, may or may not show up on an MRV or a non-specific CT scan (by that I mean with no catheter injecting dye). I do not know.

From the paper presented at the Charing Cross conference:
Zamboni wrote:Histological examination ...
Read more : Is an MRV or CT really enough? | Views : 1333 | Replies : 5

Press release Bologna September 8th

I am an italian patient originally treated from Professor Z more than 2 years ago in Italy. I improved significantly and my MRI scan are without active lesion with no more relapse at 2 years F-Up. Dr Salvi, my neurologist, is really satisfied. Last week I underwent colorDoppler control of my jugulars and azygous by Professor Z and Erica his wonderful sonographer, who works back to back with him from the beginning. All is going ...
Read more : Press release Bologna September 8th | Views : 3527 | Replies : 15

Suggestion for the "Stent-o-teers"

With the :D growing number :D of people having the stents placed, its getting hard to remember who has what :? . It would be really good if those that have yet to do so, placed a quick summary of what they had done in their "Signatures" (

Some ...
Read more : Suggestion for the "Stent-o-teers" | Views : 944 | Replies : 0

My friend James at Stanford

Just got off the phone with my friend James and his awesome companion Kate. He has completed the full complement of tests and met with Dr. D. Sounds like his stenosis has topped the charts. Left side not working and right side, well lets say missing in action. Dr. Dake says the worst he has seen so far. Great news for James as his disability is high and reflects the diagnosis well. He goes in ...
Read more : My friend James at Stanford | Views : 6860 | Replies : 35

Peeks follow up

got my follow up MRI/MRV's and consult w/Dr D. My stents are looking great but....I am going in surgery for 2 new stents Jugular at ea. collar bone. Dake said I will be able to go home afterward if I felt OK to do so.

He was totally enthusiastic and excited about it all. Took a short survey re: fatigue and tasks also an EDSS self assessment. tell more tomorrow. H.
Read more : Peeks follow up | Views : 3657 | Replies : 21

review of the facts-

Think it's time to review what we know (fact), and what we don't know (conjecture)-

*CCSVI has been found in 100% of the CDMS patients Dr. Zamboni has tested. He has reported this in a peer reviewed paper. It is only related to MS patients. No other neurological diseases had it. Repeat: CCSVI is only found in MS patients. It is related to MS. SUNY Buffalo was interested in his research, and are doing an ...
Read more : review of the facts- | Views : 2742 | Replies : 18


This sounds too good to be true! What is Dr. Dake's success rate? How do I contact Dr. Dake?
Read more : Advice | Views : 1218 | Replies : 2

suggestions for American journalists?

Need some assistance. I'm going over to the conference in Bologna (Jeff can't go- Monk and Ugly Betty are on the air now), and Dr. Z asked if we had any medical/health journalist connections to invite. All our friends are entertainment writers...not much med cred.

I've tried the head health desk writer at AP. Wow...she's quite the gal. I e-mailed her, had a follow up phone call where she told me, laughing, she would "never ...
Read more : suggestions for American journalists? | Views : 5343 | Replies : 45

PT/PTT INR tests, the basics

Read more : PT/PTT INR tests, the basics | Views : 1843 | Replies : 4


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