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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

LoobieDoobie's CCSVI stuff


I'm off to eat a late lunch and then go to Columbus to fly out in the morning. So here is where I'll post stuff after the surgery. I'll put all the techy stuff in the appropriate thread, but off I go into the wild blue yonder.....
Read more : LoobieDoobie's CCSVI stuff | Views : 9589 | Replies : 102

Zamboni's newest abstract - Epublished ahead of print, 8/09

EDIT: Cheerleader beat me to it:
I don't know how I missed it. So sorry for the duplicate post. I'll try harder next time, promise. ~HappyPoet

2nd EDIT: Should I delete the post? I just saw this is an option. ~HappyPoet

Hello Everyone,

I hope you all find Zamboni's newest abstract interesting; I apologize if this has already been posted.


Venous Collateral Circulation Of The ...
Read more : Zamboni's newest abstract - Epublished ahead of print, 8/09 | Views : 1280 | Replies : 1

Must read: JNNP eLetters for Zamboni's CCSVI article

Hello Everyone,

I'd like for my first thread to be a valuable contribution to your wonderful forum.

I have learned much, and my doctors and I (Albany, NY) are scheduling the necessary tests to see if I'm a potential candidate for CCSVI corrective measures.

I hope the JNNP-published eLetters (below) to the editors of JNNP regarding Prof. Zamboni's CCSVI article will make for interesting reading and discussion. I apologize if these have already been posted. ...
Read more : Must read: JNNP eLetters for Zamboni's CCSVI article | Views : 3380 | Replies : 6

Paying for Testing and Intervention at Stanford

I talked with Alex at Dr. Dake's office last week and asked her if I needed to call my insurance (PPO) or what. She said she would check with them and get back with me. Haven't heard yet. Don't know if others insurance is covering the testing and intervention. Can't set up something definite with Stanford until I know about the insurance because if it is not going to cover the 80% looks like we ...
Read more : Paying for Testing and Intervention at Stanford | Views : 1119 | Replies : 1


My symptoms started 2.5 years ago, a couple of months after some lymph nodes swelled up in my neck. When the lymph nodes didn't go down, they were removed and biopsied, dx: Mono.

I know a lot of people say their MS was triggered by an infection like mono. (I've not been diagnosed with MS and have not yet seen an MS specialist, but my neuro suspects MS because of my symptoms and positive spinal ...
Read more : CCSVI/EBV | Views : 2696 | Replies : 12

CT Scan instead of MRV

In another thread it is mentioned Dr Dake may be moving to CT Scan instead of MRV to diagnose CCSVI. About 10 months ago, I had a CT Scan of my skull area so a neurosurgeon could see all the arteries and such in the base of my skull in case he needed to operate on my skull (he did not end up needing to operate).

I don't know if there is a specific way ...
Read more : CT Scan instead of MRV | Views : 1519 | Replies : 5

Not 100%

I talked to Island Girl last night she did not have any answers yet and more testing today.

She did NOT have an operable stenosis.

She literally took one for the team guys. She had her MRI MRV and then dopplers. All appeared normal, but Dr D wanted to look with venogram and make sure so she agreed to do that just to make sure nothing was in there beyond the MRV.

There was an ...
Read more : Not 100% | Views : 4951 | Replies : 38

For those who got MRV CDs from Stanford

I was wondering if you'd be willing to share the MRV CD contents with the community? It might be helpful while we're trying to 'recruit' new doctors if we can share some of the scans with them along with the studies? What does everyone think?

If so, I'd be more than willing to help get the CDs converted to ISOs and show you how to upload them online.

Edit: New windows instructions
For Windows Computers: ...
Read more : For those who got MRV CDs from Stanford | Views : 8242 | Replies : 48

Skydog (Mark) home from Stanford

Hey Sharron can we change the topic heading to Home from Stanford or whatever you see fit.

As you requested Mark :lol:

How are you doing?
Do you have anything to add to the thread "Getting Ready for Stanford"? I am sure you noticed something that is not posted.
You wrote
I have started a story on the procedure that i will finalize and post soon.
Read more : Skydog (Mark) home from Stanford | Views : 3066 | Replies : 16

Is CCSVI old? you decide...

These were sent to me translated by Dr Simka. Note the dates....and you tell me is this new? 8O

Zh Vopr Neirokhir Im N N Burdenko. 1999 Apr-Jun;(2):8-13; discussion 14.

Tsuladze II.
As any other organ, the spinal cord also ...
Read more : Is CCSVI old? you decide... | Views : 3767 | Replies : 17


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