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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

A/B have swelling & water retintion in legs & feet p

My feet and legs are huge, did I mention HUGE!!!

I think I will have to go back on the BP pill to help with all this fluid.

Just wondered it anyone else experienced this.????

I had had a 10 lb weight gain since stented, No doubt where it is, I just look at my feet and legs. Wooow!!

Read more : A/B have swelling & water retintion in legs & feet p | Views : 3164 | Replies : 27

Sept 8, 2009 Bologna CCSVI conference- finalized notes

Home...haven't slept in a couple days, and will do so tonight!
All good. Truly an incredible experience. Below are my notes, transcribed as written. My comments are in parenthesis. To be in a room full of doctors from all different specialties, looking at CCSVI and putting the pieces together was miraculous. Most folks on the board will recognize many of these names and research. The complete picture is coming together-I was honored to be the ...
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Hello from Helsinki

Hello everyone
My name is Peter and both me and my wife Anu have been following developments on this forum with keen interest for about a month now. Im a Brit who moved to Finland in 1995 ad my wife is Finnish.

We found out late last year that my wife has RRMS and that she had probably been having symptoms for around 9 years. She suffers from Severe heat intolerance, bladder issues as well ...
Read more : Hello from Helsinki | Views : 6203 | Replies : 32

Alex on Vacation and Dr. Dake in Italy?

I understand that Alex is on Vacation this week and Dr. Dake is in Italy i believe. I've compiled my medical history. One pager somewhat like a resume.
Also, have a copy of my 2006 one and only MRI on CD.. When I last talked with Alex she said I could just bring it with me. Have been reading here where others are e-mailing their medical historiesto Dr. Dake. Since I was not advised to ...
Read more : Alex on Vacation and Dr. Dake in Italy? | Views : 1154 | Replies : 1

A hole in the skull (not CCSVI, just interesting)

Again, not strictly CCSVI but somewhat related.

The brain's buffer

As well as delivering oxygen to the brain, cerebral blood flow has another vital role: the circulation and production of cerebrospinal fluid. This clear liquid surrounds the brain, carrying the nutrients that feed it and removing the waste it produces, including the tau and beta-amyloid proteins that have been implicated in the formation of plaques found in the brains of people with Alzheimer's (Cerebrospinal Fluid ...
Read more : A hole in the skull (not CCSVI, just interesting) | Views : 1567 | Replies : 2

Thoughts on the spreading of lesions and symptoms in CCSVI

CCSVI is not the only problem in MS, but the immune systems response to exposed CNS matter plays a crucial role in beginning a cascade of inflammation that leads to loss of neurological function.

I have a thought about this. Once the blood brain barrier has been perforated (via reflux, edema, leakage caused by hypoxia) and there's an immune system response against the exposed CNS-matter, this might also affect other areas, and cause new lesions ...
Read more : Thoughts on the spreading of lesions and symptoms in CCSVI | Views : 4340 | Replies : 37

Tysabri "rebound"

Thanks to my brains (Marie Rhodes :lol: ), I have been looking into a rebound effect that is reported in Tysabri. I plan to bring this up to Dr. Dake and right now this is the donkey I'm pinning my non improving tail on. It makes sense and there is a bunch of informatin out there regarding this. This is a quickie article to explain it, but ...
Read more : Tysabri "rebound" | Views : 3396 | Replies : 24

hypoxia | memory & executive function

Correct me if I'm wrong, please, but it sounds like one of the takeaways from the Bologna conference is that the damages of MS may be due to mild-but-sustained Ischemic hypoxia (or "hypoxic ischemic encephalopathy"), caused by screwed up flow dynamics in the brain.

Brain hypoxia is the condition in which there is a decrease in the oxygen supply to the brain even though there is adequate blood flow. If hypoxia lasts for long periods ...
Read more : hypoxia | memory & executive function | Views : 1496 | Replies : 4

Press Release- A good summary of event in Bologna

This was released to press on the 8th, I received it from the press office and it's up at Fondazione Hilarescere site. Again, I WISH (like all of you) we had copies of the Liberation results that will be published in the Vascular Journal next month...I do not have firm numbers to share, and that is frustrating. It's one thing to make statements, and another to have concrete numbers to back them up. I also ...
Read more : Press Release- A good summary of event in Bologna | Views : 4446 | Replies : 11


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