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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Dr. Frohman and Normal Pressure Hydrocephalus

Dr. Eliot Frohman, professor of neurology at Southwestern University- was a moderator and participant in the CCSVI convocation. He consistently had cogent and insightful questions and comments during the day. One of his points has stayed with me, and prompted me to do some more research on cerebrospinal fluid. Dr. Frohman commented that CCSVI was reminding him of his shunting treatment of normal pressure hydrocephalus ...mainly in the fact that the third ventricle was being ...
Read more : Dr. Frohman and Normal Pressure Hydrocephalus | Views : 13955 | Replies : 108

How best to tackle CCSVI with neuro?

Ok, I'm in Ireland, so doubt many CCSVI specialists here, but I am due to see my Neuro in December.

I want to ask about investigatioin for CCSVI. What should I take with me to the appointment? There's so little time I don't want to walk in with a stack of papers. My neuro is very well up on new developments but just not sure how to broach it in the time available......
Read more : How best to tackle CCSVI with neuro? | Views : 3057 | Replies : 14


Hi, Found this online and I was wondering if Niacin could help to reverse mild stenosis and help with blood flow.

2) Niacin (nicotinic acid): We recommend 100mg to 3 grams, thirty minutes before meals and at bed hour, and also during the night if awake – whichever dose will produce a strong body flush. Niacin dilates the blood vessels, even those that have been compressed by scar tissue, allowing a greater amount of nutrient ...
Read more : Niacin | Views : 2930 | Replies : 15

Places that offer CCSVI??

I have been researching for awhile now and couldn't find another place that offers the procedure except for stanford. If anybody has any other information about other places that offer it please share it with us.

P.S.: Can anybody provide me with the contact info of the people in charge of the procedure in Stanford.
Read more : Places that offer CCSVI?? | Views : 1321 | Replies : 1

18 months

It was mentioned in Bologna, that progressive MS is continuing to progress for 18 months after the balloon procedure, and then some recovery is beginning. Any theories on what might be going on with that?

Here's mine: the progressive MS brain and spinal chord are continuing to decline until the buildup of iron (from before treatment) is somehow mitigated by the body. Apparently, it takes the body 18 months to deal with the iron.

Read more : 18 months | Views : 1463 | Replies : 3

Round 2 post

I say round 2 because I think my visit might be more than just a check up on the stents on my right side (my only ones). I will be greatly dissapointed if he says "everything looks great! We're not going back in". I don't imagine that will be the case, but here is the thread where I am going to post what he does decide to do with me next week. I hope more ...
Read more : Round 2 post | Views : 7747 | Replies : 66

CCSVI - Aussie Action!

Hi All,

Just to let any Aussies out there know that Cure and I are on the hunt for vascular surgeons in Australia who might be prepared to become involved with CCSVI. We've got a few names who seem interested - 2 saw Dr Simka's presentation in Monaco and another knows Dr Dake.

Personally, timing is important - the sooner the better; especially with the long hot Australian summer not too far away.

Prof Zamboni ...
Read more : CCSVI - Aussie Action! | Views : 144636 | Replies : 851

NEW PAPER- venous blood flow and iron deposition in MS

Anomalous venous blood flow and iron deposition in multiple sclerosis

link to abstract

Ajay Vikram Singh1 and Paolo Zamboni2

1Department of Physics, European School of Molecular Medicine (SEMM), IFOM-IEO Campus, Centro Interdisciplinare Materiali e Interfacce Nanostrutturati (CIMAINA), University of Milan, Milan, Italy
2Vascular Diseases Center, University of Ferrara, Ferrara, Italy
Correspondence: Professor P Zamboni, Director Vascular Diseases Center, University of Ferrara, Milan, Italy. E-mail:

Received 27 ...
Read more : NEW PAPER- venous blood flow and iron deposition in MS | Views : 5881 | Replies : 24

only in MSer's?

Is CCSVI only found in people with MS? If so, could the detection of CCSVI be used to help diagnose MS?

Anyone in Canada been tested or treated for CCSVI? Just wonderring how our medical plan deals with this, particularly in B.C..

Read more : only in MSer's? | Views : 1292 | Replies : 2

CCSVI Doppler Demonstration on YouTube

Here ya go guys. It pays to be married to a geek :D
Jeff helped me convert the PAL DVD from the Bologna conference into a youtube video-

Hope it helps-
Read more : CCSVI Doppler Demonstration on YouTube | Views : 2861 | Replies : 4


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