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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

18 months

It was mentioned in Bologna, that progressive MS is continuing to progress for 18 months after the balloon procedure, and then some recovery is beginning. Any theories on what might be going on with that?

Here's mine: the progressive MS brain and spinal chord are continuing to decline until the buildup of iron (from before treatment) is somehow mitigated by the body. Apparently, it takes the body 18 months to deal with the iron.

Read more : 18 months | Views : 1426 | Replies : 3

Round 2 post

I say round 2 because I think my visit might be more than just a check up on the stents on my right side (my only ones). I will be greatly dissapointed if he says "everything looks great! We're not going back in". I don't imagine that will be the case, but here is the thread where I am going to post what he does decide to do with me next week. I hope more ...
Read more : Round 2 post | Views : 7578 | Replies : 66

CCSVI - Aussie Action!

Hi All,

Just to let any Aussies out there know that Cure and I are on the hunt for vascular surgeons in Australia who might be prepared to become involved with CCSVI. We've got a few names who seem interested - 2 saw Dr Simka's presentation in Monaco and another knows Dr Dake.

Personally, timing is important - the sooner the better; especially with the long hot Australian summer not too far away.

Prof Zamboni ...
Read more : CCSVI - Aussie Action! | Views : 142896 | Replies : 851

NEW PAPER- venous blood flow and iron deposition in MS

Anomalous venous blood flow and iron deposition in multiple sclerosis

link to abstract

Ajay Vikram Singh1 and Paolo Zamboni2

1Department of Physics, European School of Molecular Medicine (SEMM), IFOM-IEO Campus, Centro Interdisciplinare Materiali e Interfacce Nanostrutturati (CIMAINA), University of Milan, Milan, Italy
2Vascular Diseases Center, University of Ferrara, Ferrara, Italy
Correspondence: Professor P Zamboni, Director Vascular Diseases Center, University of Ferrara, Milan, Italy. E-mail:

Received 27 ...
Read more : NEW PAPER- venous blood flow and iron deposition in MS | Views : 5806 | Replies : 24

only in MSer's?

Is CCSVI only found in people with MS? If so, could the detection of CCSVI be used to help diagnose MS?

Anyone in Canada been tested or treated for CCSVI? Just wonderring how our medical plan deals with this, particularly in B.C..

Read more : only in MSer's? | Views : 1260 | Replies : 2

CCSVI Doppler Demonstration on YouTube

Here ya go guys. It pays to be married to a geek :D
Jeff helped me convert the PAL DVD from the Bologna conference into a youtube video-

Hope it helps-
Read more : CCSVI Doppler Demonstration on YouTube | Views : 2823 | Replies : 4


At the symposium, Dake at least acknowledged something that has concerned me a lot when he said he didn't know why he wasn't seeing much azygous trouble compared to Zamboni's 86%.

Since Zamboni has seen primarily Italians, and Dake primarily Americans, is it possible there's some genetic pool predisposing Italians to congenital azygous issues? I realize most Americans were Europeans 200 years ago, but still.

It seems that if there were such a difference then ...
Read more : Genetics/Azygous | Views : 1665 | Replies : 8

Radiologist and Zamboni's sample video

Hi all.

I have a wonderful radiologist who is very interested in CCSVI and we want to have a Doppler scan performed on me. He has been researching how it is done (hopefully, he has studied in Italy, speaks the language and knows some of the people appearing on the papers!!!) but he would also like o have the video that Zamboni mentioned at the conference.

Does anybody know if it is or will be ...
Read more : Radiologist and Zamboni's sample video | Views : 1782 | Replies : 5

The Stone Is Rolling - Word is out


I am somewhat of a google super user, and have lots and lots of google new alert, blog search and old usenet searches posted to me via RSS daily.

The majority of the search terms used to be work related (Oil & Gas) but since Mel was diagnosed I've had a lot of MS related searches too.

It's actually quite a trip down memory lane looking at the terms I entered ...
Read more : The Stone Is Rolling - Word is out | Views : 1448 | Replies : 6

Cenaculum Studiorum Bologna 8 September 2009

I am just back from Italy and I wish to share with you my experience in partaking in the first international congress on CCSVI and MS.
First of all I have to aknowledge that the organization of the meeting was impeccable and that the technological support was first class: I felt proud to be Italian and from Ferrara.

Prof. Zamboni opened the proceedings by outlining the key questions the meeting was set to answer and ...
Read more : Cenaculum Studiorum Bologna 8 September 2009 | Views : 4678 | Replies : 16


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