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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Ballooning, shoulder pain, etc

Hi all- It's been so wonderful to read all the stories of folks who've seen Dr Dake and had various stenting procedures done. Since I'm the first, Joan mentioned that several are curious about the shoulder/neck pain issue. Like many, after my 1st procedure, this was very slow to dissipate - I'd say it was completely abated by about 8 weeks. Very gradual, so if you are feeling like it's 'never' going to get better ...
Read more : Ballooning, shoulder pain, etc | Views : 1598 | Replies : 8

MS as a Vascular Disease

Don't know if this article has been cited already. Given the obvious relevance of the title, it's a good bet you guys have, so sorry if this is old info. ... MS.pdf.pdf

I have only had a chance to skim it, so I don't know if it adds much to the discussion. I did find the authors' take on the effects of interferon-beta interesting.
Read more : MS as a Vascular Disease | Views : 1224 | Replies : 1


When someone has a bad relapse and then makes an almost total recovery and this recovery lasts for years and years how is this related to ccsvi,
Read more : relapse | Views : 1228 | Replies : 4

Children and CCSVI

I was asked this question the other day. How can you explain the connection between CCSVI and children with MS? I did not have an answer.
Read more : Children and CCSVI | Views : 1256 | Replies : 3

Wobbly, didn't you have more tests?

Wobbly mentioned in another post that he was having more tests done July 18th. I wonder how he is...will he let us know?
Read more : Wobbly, didn't you have more tests? | Views : 1392 | Replies : 4

CVI and CCSVI similarities?

I have red some texts here about comparing CVI (for example in leg) and CCSVI. Is the veins insufficiency process similar? or what are the similarities? Of course vein dysfunctions can be in different areas of body and this produces different concequences. With my poor english I've notices some common things: (please you can write more about this and "fix" my mistakes..)

- reflux? happens always when vein has obstacles?

- "leaky veins" --> blood ...
Read more : CVI and CCSVI similarities? | Views : 1445 | Replies : 4


do women get stenosis 3x more thean men?
Read more : women | Views : 1284 | Replies : 5

post-surgery hair loss?

Not such a big deal, especially compared to Lew's rash, but anyone else on Coumadin and Plavix noticing that their hair is coming out? I am definitely shedding way more than normal. It's not clumps (at least not yet), and I think it is a not uncommon side effect, but am wondering if anyone else has experienced this or has comments. Thanks.
Read more : post-surgery hair loss? | Views : 1273 | Replies : 6

in simple terms...?

hi everyone,

I just came on over from the HiCy board....I see there's a lot of action here - and I want to know more about it.

Can anyone (duh! I know a lot of you can) please explain this to me in plain English? I have the articles and links - will check them out - but am hoping someone can help me out. I want to tell others about it.

I know I ...
Read more : in simple terms...? | Views : 1360 | Replies : 4


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