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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Anyone know of a procedure involving a cutting balloon?

Want to find some cases involving use of a cutting balloon in the internal jugular vein. Found several for dialysis patients but none so far for the IJV.

Want to prepare information before meeting neurosurgeon for next office visit.

Read more : Anyone know of a procedure involving a cutting balloon? | Views : 380 | Replies : 10

Is this the beginning of the end for Big Pharma?

I just read an article about Indian Pharmaceutical companies producing cheap generics and successfully repudiating the patents of some of the largest pharmaceutical companies in the world. It did not mention MS drugs but the principle is the same and if India can do it why can't we all?

"At the time, Bayer was selling the drugs at 280,000 rupees (£2,743) a month versus Natco's 8,800 rupees (£86.20), and reaching just two percent of the ...
Read more : Is this the beginning of the end for Big Pharma? | Views : 602 | Replies : 7

KIR4.1 and CCSVI response

In 2012 a german team identified an immunoglobin, anti-KIR4.1, in a subset of MS patients (47%, see ... t=Abstract). Recently another team has confirmed this situation (

The situation looks very similar to what happened with Neuromyelitis optica and AntiAQP4. Maybe there are two different multiple sclerosis. And this is crucial to know the impact of CCSVI procedures and to analyse its ...
Read more : KIR4.1 and CCSVI response | Views : 441 | Replies : 2


Cross-posted to here because I would have missed it, being as I don't read a lot elsewhere.

They appear to be proving a method of helping primary and secondary progressives. Very safe, does not alter immune system. Targets a human endogenous retro-virus implicated in our favorite problem. Does anyone here know the difference between "MS" and CIDP?

Seems they are running phase 2 now.

Anyway, here is their newsletter:

Read more : HERVs | Views : 305 | Replies : 0

Never-Ending Traumatic Stress Disorder ... crazy.html

Worth the read in a crushingly painful sort of way.
Read more : Never-Ending Traumatic Stress Disorder | Views : 297 | Replies : 1

Patient & Doctor Meet & Greet at ISNVD

Who: Michael Dake, M.D., ISNVD President, Annual Meeting Chair, Stanford University
Mark E. Haacke, Ph.D., ISNVD Vice-President, Wayne State University
Paolo Zamboni, M.D., ISNVD Annual Meeting Chairperson, University of Ferarra, Italy
Clive Beggs, Ph.D., ISNVD Chairperson, Publication Committee, University of Bradford, U.K. and others

When: Saturday, February 8, 2014, 7-10:00pm.

Where: Marines' Memorial Club & Hotel, 609 Sutter St., San Francisco, CA 94102

Dr. Zamboni, Dr. Dake, Dr. ...
Read more : Patient & Doctor Meet & Greet at ISNVD | Views : 507 | Replies : 4

ISET conference 2014

Happening right now!
Dr. Siskin presents on CCSVI tomorrow:
Trials and Tribulations in CCSVI Therapy
1:20 PM - 1:30 PM
Room: Splash 11-12
Speaker: Gary Siskin, MD ... sp?BCFO=-1
Read more : ISET conference 2014 | Views : 322 | Replies : 2

new research about ccsvi online forums
J Med Internet Res. 2014 Jan 14;16(1):e10. doi: 10.2196/jmir.2875.

Sources of information and behavioral patterns in online health forums: qualitative study.

Sudau F, Friede T, Grabowski J, Koschack J, Makedonski P, Himmel W.

Author information



Increasing numbers of patients are raising their voice in online forums. This shift is welcome as an act of patient autonomy, reflected in the term "expert patient". At the same time, ...
Read more : new research about ccsvi online forums | Views : 379 | Replies : 3

neurologists want to be primary care docs ... id=5517461
As nonprocedural specialists, with a lot of their reimbursements coming from management and evaluation codes, neurologists are now paid less than primary care docs for that management of a patient, since the primary care docs get a bonus for such care under the Affordable Care Act. The AAN is lobbying to get neurologists included as primary care docs and get those bonuses.

"A major concern is ...
Read more : neurologists want to be primary care docs | Views : 407 | Replies : 5


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