A board to discuss the Multiple Sclerosis modifying drug Copaxone
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Post subject: Going to try Copaxone Posted: Wed Feb 08, 2012 4:32 pm |
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I have been on really high dose Vitamin D and just had a bad bout of double vision and prior to that Lhermites sign.
I was on taking 40,000IU/day because in recent phase I trials this is the maximum dose that subjects were given. Ive been on this dosage for a little over a year and it is not working for me.
It appears that vitamin D can induce adaptive regulatory T cells which seem ...
Read more : Going to try Copaxone | Views : 1334 | Replies : 6
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Post subject: Horrible pain as soon as medication started going in Posted: Sun Jan 29, 2012 6:11 pm |
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I have been on copaxone now almost 4 months and had the usual stinging afterwards bruises and welts but the other night I got the auto injector ready for my stomach and went to put it in, needle goes in and medication starts.... I could NOT finish it, it hurt SO BAD i ended up pulling the needle out and medication went everywhere!!!!! it felt like the usual stinging but 1000x's worse!!! I seriously thought ...
Read more : Horrible pain as soon as medication started going in | Views : 1714 | Replies : 6
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Post subject: Traveling with coaxone? Posted: Sat Jan 28, 2012 8:56 pm |
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I am flying to chicago to meet with dr burt about his trial on Monday, and since I take coaxone! I am wondering about taking it in a carry on bag on the plane. Anyone have experience with this? I don't fly often and would like any advice anyone has.
Read more : Traveling with coaxone? | Views : 1935 | Replies : 12
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Post subject: Copaxone and the Common Cold Posted: Thu Jan 12, 2012 4:01 pm |
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Has anyone had their ISRs worsen when a cold was coming on?
I had foot surgery on 12.9.11, followed by a cold that lasted 3 weeks. In all 6 weeks of "recovery." My ISRs worsened during that time. To the point last week, the IS were hard, red, inflamed, and up to 3" in diameter for 2-3 days post injection with a large hard bump lasting for up to 8 days.
Read more : Copaxone and the Common Cold | Views : 1550 | Replies : 4
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Post subject: copaxone and medicare Posted: Thu Jan 12, 2012 11:20 am |
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Does anyone know why shared solutions will not give assistance to people on medicare or medicaid? Is it a law? My copay part d medicare is 1300.00 a month. Shared solutions won't even return my calls. If you check their ad, they are clear that anyone on a govt health plan will not get help. WHy? Why? Why?
Read more : copaxone and medicare | Views : 1731 | Replies : 0
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Post subject: Thinking About Going Off Copaxone Posted: Sat Jan 07, 2012 3:37 pm |
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:?: I'm wondering if anyone has experience going off Copaxone. If it can be stopped immediately or if I will need to taper off? I could call Shared Solutions (SS), but don't think I'll get a positive answer since I'm wanting to end this treatment. I will be calling my neurologist on Monday, I'm just not sure I can do another injection.
I am having terrible ISRs ...
Read more : Thinking About Going Off Copaxone | Views : 3321 | Replies : 12
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Post subject: Copaxone appears to repair nerve tissue in MS patients Posted: Wed Jan 04, 2012 12:27 am |
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 Copaxone repairs nerve tissue in multiple sclerosis patients, said Teva Pharmaceutical Industries Ltd. in reporting the results of a 12-month MRI study on the evolution of multiple sclerosis lesions. The study was published in the January issue of "Frontiers in Bioscience". “These data indicate that treatment with Copaxone resulted in a measureable amount of tissue repair in study patients,” said the lead research Dr. Robert Zivadinov, Director of the Buffalo Neuroimaging Analysis Center at ...
Read more : Copaxone appears to repair nerve tissue in MS patients | Views : 2286 | Replies : 0
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Post subject: Copaxone Injection Sites Posted: Mon Jan 02, 2012 10:27 am |
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My doctor has prescribed Copaxone, but I am reluctant to give it a try. I read that the injection sites often are left with pits and/or knots in the skin. Does anyone know if this is due to the auto-inject system or a side effect of the medicine itself?
Thanks!!
Robin
Read more : Copaxone Injection Sites | Views : 3210 | Replies : 3
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Post subject: Copaxone Reaction Posted: Tue Dec 13, 2011 11:17 am |
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Just wanted to quickly document my first bad reaction to copaxone after being on it 5 months.
I injected it as usual (although this time I did bleed quite badly afterwards which makes me think I might have injected into a blood vessel)
After about 3 minutes I had a feeling of very very mild breathing issues and a slight feeling of flushing (this was all so minimal that although I knew it was a ...
Read more : Copaxone Reaction | Views : 1699 | Replies : 0
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Post subject: How long does it take for Copaxone to become effective? Posted: Sun Dec 11, 2011 8:38 pm |
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I was wondering if anyone new knew long it takes for Copaxone to reach a clinical level in your body and begin to slow the progression of MS? I went off of Rebif about 6 months ago due to the side effects. I feel 10x better off of the Rebif; however, when I told my neurologist I ended the Rebif and wanted to take Copaxone he discouraged me and said that Copaxone is not as ...
Read more : How long does it take for Copaxone to become effective? | Views : 3893 | Replies : 6
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