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A forum to talk about the general challenges of daily life with MS.

Accommodations at work

Hi, I'm new here, but found this forum years ago and remembered it now.

My DH has MS. He was diagnosed in 2009. He'd worked in the same industry since 2005, this month is actually 10 years.

He moved to a university doing his job as an animal technician 4 years ago. His work was unaware of his condition until recently. Last March he had a major relapse and was out of work for 10 ...
Read more : Accommodations at work | Views : 389 | Replies : 4

Disabled welfare in your country

Hi Fellow MS'ers

I am not new here nor with MS (Dx 1998 MSSP actually EDSS ~8~)
I reside since almost 30 years in a country (Taiwan) where the welfare for foreigners (I am Belgian) is unavailable. Therefore and in order for me to discuss with the social service locally; I'd need a list or a link of what would your country do if you were in my situation (financial help, transport, reductions etc...).

Any ...
Read more : Disabled welfare in your country | Views : 349 | Replies : 2

Stiffness in right leg

I am a new one here as a user, so please accept my apologize if i am doing something wrong.
I have MS since 2006, so almost ten years. A couple months ago I felt that my right leg is so stiff.
I am on gilenya but copaxone, rebif, betaferon I had too.
This feeling is horrible. I can not walk for so long. I feel like my quad is so weak and can ...
Read more : Stiffness in right leg | Views : 510 | Replies : 14

MS has changed me

I realised this today. Ok so I knew it all along - all life events do this. But I am a shadow of my former self.

I have no shine, no bubbles left. I feel so isolated and I have been on my own for a long time now. I can't see how I will ever get into a relationship when I feel like a wreck. I want the old me back but I fear ...
Read more : MS has changed me | Views : 582 | Replies : 7


so, i just had a few days of increasing urinary frequency and issues w urgency. it was interfering with my day to day activities and i didn't take quick enough action.
night before last was bad - a painful night peeing every hour or so, and never feeling like i *didn't* have to go. and there was plenty of visible blood.

i started double dosing daily zinc and selenium, i spent 24 hrs eating a ...
Read more : UTI TMI | Views : 904 | Replies : 7

Quote of the day

"Now, here you see, it takes all the running you can do, to keep in the same place. If you want to get somewhere else, you must run at least twice as fast as that!"

Lewis Carroll
Read more : Quote of the day | Views : 439 | Replies : 1

Out of control drug costs

MS drugs are expensive and getting more so every year. However, the problem of out of control drug costs is not limited to just MS drugs. It's a problem that's systemic in US health care. For example, Vertex Pharmaceuticals has developed a new drug for cystic fibrosis which has completed successful clinical trials and is pending FDA approval. Once approved, they expect to sell it for $250,000 to $300,000 / year. Note that this doesn't ...
Read more : Out of control drug costs | Views : 559 | Replies : 0

The thrill is gone

Chairman of the board B.B. King has died at the age of 89. ... king-dead/
Read more : The thrill is gone | Views : 597 | Replies : 0

abstract accepted!

headed to an international conference to present later this year :)
Read more : abstract accepted! | Views : 812 | Replies : 8

Insurance being a poop

Hi, how do you guys deal with your insurance being a giant poop monster? :crazy:
I'm "undiagnosed" by my neurologist who says "it's probably MS we just need to wait for another flare up." (I'm three years into it, but only started pursuing answers last year). Since then I have been tested for, well you know the drill, EVERYTHING. My insurance has just decided I'm pathalogical and ...
Read more : Insurance being a poop | Views : 466 | Replies : 0


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