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A forum to talk about the general challenges of daily life with MS.

 [ Total topics 287 Go to page 1, 2, 3, 4, 5, 6 ... 29

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 Post subject: 25 (had to drop out of college)...what to do now?
PostPosted: Sun Aug 05, 2012 4:34 pm 
I have my productive periods but when an exacerbation hits,I can be down for months.
I can only do a couple things a day, my fatigue is so bad, along with my other symptoms.
In May, I decided not to go back to college because my MS was so bad, last semester,I barely made it to the end.
I am feeling like a failure.
I cannot complete my degree after 5 years of trying, I ...

Read more : 25 (had to drop out of college)...what to do now? | Views : 818 | Replies : 2

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 Post subject: you never know :(
PostPosted: Sun Jul 29, 2012 11:55 am 
another high school friend of mine just died suddenly. no info yet. having a sad day.

Read more : you never know :( | Views : 827 | Replies : 5

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 Post subject: HAS ANYONE TAKEN TYSABRI WITH POSITIVE RESULTS
PostPosted: Wed Jul 25, 2012 5:27 am 
I AM BEING PUT ON TYSABRI BUT I AM SCARED OF THE SIDE EFFECTS CAN YOU PLEASE SHARE YOUR TYSABRI STORY WITH ME.

Read more : HAS ANYONE TAKEN TYSABRI WITH POSITIVE RESULTS | Views : 1050 | Replies : 4

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 Post subject: Help for nursing facility individual with MS
PostPosted: Tue Jul 24, 2012 1:16 pm 
I see a patient in a nursing facility with advanced MS. She currently is only able to move her head to use her call light button. The problem is that her call light will not stay positioned so that she can utilize is when she needs to. I have spoken with the nursing facility about this and they have made attempts to correct the problem but the button still slides down. She has used two ...

Read more : Help for nursing facility individual with MS | Views : 706 | Replies : 3

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 Post subject: Ideas for extending independent living
PostPosted: Mon Jul 23, 2012 8:01 pm 
Good evening,

I'm writing on behalf of my mother who has primary progressive MS. She's been a trooper and gone from walking with a floppy foot (10 years ago) to now primarily using an electric scooter. She can use her walker to go 10 feet, or so, to get to the toilet, but that's about it. She lives alone and has been falling more and more often. She's 60 years old and would really like ...

Read more : Ideas for extending independent living | Views : 521 | Replies : 2

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 Post subject: Fatigue and cleaning the house... Any tips?
PostPosted: Sun Jun 24, 2012 5:40 pm 
I've been taking stock of what my daily tasks are and how I can best prioritize them so that I don't overdo it so badly anymore. This has come about because I'm committed to doing daily 1 1/2 hr power walks with a friend to keep in shape. It's a great thing to do and I love the leg strength it's allowing me. But it sure wipes me right out for the rest of the ...

Read more : Fatigue and cleaning the house... Any tips? | Views : 1313 | Replies : 3

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 Post subject: Sequencing the human microbiome
PostPosted: Sun Jun 17, 2012 1:16 pm 
This article was too interesting to not share it... :peace:

In Good Health? Thank Your 100 Trillion Bacteria
By Gina Kolata
Published: June 13, 2012
http://www.nytimes.com/2012/06/14/healt ... ef=science


For years, bacteria have had a bad name. They are the cause of infections, of diseases. They are something to be scrubbed away, things to be avoided.

But now researchers have taken a ...

Read more : Sequencing the human microbiome | Views : 779 | Replies : 0

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 Post subject: Why doesn't the pain 'remit' completely?
PostPosted: Thu May 31, 2012 5:55 pm 
I have RRMS, and the relapses aren't that common. It's about 1/7-8 months. The problem is that the pain never goes into remission completely. Some of it sticks around, and all they're doing is prescribing me more pain medications to keep it under control. So far they have me on...

600mg of Gabapentin
2 Tylenol 3s (total of 60 mg codeine and 600 mg acetaminophen)
600 mg of ibuprofen.

A cocktail of drugs that I ...

Read more : Why doesn't the pain 'remit' completely? | Views : 771 | Replies : 3

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 Post subject: mental symptoms?
PostPosted: Mon May 28, 2012 1:40 pm 
i wasn't diagnosed until about 8 months now, but in hindsight, does MS effect anyone elses memory or their judgement. because i was told my MS effects my judgement, i.e saying things when they shouldn't be etc., has anyone else had this problem?
Because im quite scared as im going to be taking up a degree in teaching, purely because i can't do nursing anymore and i dont want to fail in my academics because ...

Read more : mental symptoms? | Views : 925 | Replies : 5

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 Post subject: An alcohol and tysabiri cocktail anyone?
PostPosted: Mon May 28, 2012 1:21 am 
well i'm 20 as some of you mmight already know, and enjoy going for a drink with friends, but ever since my diagnosis and beggining of treatment i've tried to stay clear of any or much alcohol consumption, but i would like to regain something of a social night life with friends, my questions today are;
Does alcohol effect the effectiveness of tysabiri ( natilizumab) and does anyone else share the same question?

Read more : An alcohol and tysabiri cocktail anyone? | Views : 869 | Replies : 0

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