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A forum to talk about the general challenges of daily life with MS.

Raw/Burned Feeling Skin?

Hi everyone,
Lately I have been having "episodes" of pain in my skin (right now on my hip, have had in in my wrist and leg as well) that feels like I've been severely burned. It is super sensitive with just clothes on it and it hurts so much to have anything touching or moving it. Then... it goes away about a half hour later. Has anyone had something like this? I have chronic neuropathic ...
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I need some advice on dealing with MS fatigue. I've been diagnosed for almost 2 years now and had a few relapses during this time. I use Rebif 3 times a week and don't have any problems with that. Here lately though I am absolutely EXHAUSTED all of the time. I could sleep for 10 hours straight and still be tired. I'm having a hard time with driving because I'm fighting the urge to fall ...
Read more : Fatigue | Views : 1565 | Replies : 2

Cooling devices

Hi, just wondering if anyone has tried a cooling 'glove' by core control to lower core body temperature. It is used by sportsmen and looks good but is costly:!:
Read more : Cooling devices | Views : 1284 | Replies : 1

Ankels giving out??Shoe suggestions?

Hey, I'm not diagnosed yet, but my ankles have started to give out ALOT lately, and with my balance being off, it's starting to send me to the ground more often.. I know falling is common with ms, but does anyone know if it is it common to have you ankles give way in ms?

Anyway, is there anyone who has any idea on what type of shoes would be the best to try to ...
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Happy Binary Day!

Read more : Happy Binary Day! | Views : 1259 | Replies : 2

a fun winter... continued

finally using my decades-old race coaching certification to get a team of little mini-athletes ski racing :D don't know why i didn't leave my old hill w/ all its barriers sooner, this winter is AMAZING :D wheee!!! sat and sun coaching the race team, monday&tuesday days teaching little guys in groups, tuesday&wednesday nights teaching private lessons, plus ...
Read more : a fun winter... continued | Views : 3664 | Replies : 22

Has anyone here had a pressure sore on/near the coccyx....

and seen there MS symptoms become worse?

i have had a pressure sore on my natal cleft/coccyx for about 18 months, and when it first appeared and since then my MS symptoms (walkin/legs strength and bladder frequency/control) have worsened - (photo of lesion:
- in these 18 months my E.D.S.S has gone from 5.5 to 6.5 so am seated most of the day.
bare in mind i have ...
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Happy New Year!

Read more : Happy New Year! | Views : 1258 | Replies : 2

Chest tightness

I have been having a lot of chest tightness and chest jumping. I have been to the doctor to rule out that it is anything to do with the heart. I get so scared though every time the chest jumps. I cannot get to sleep and it feels so heavy in the middle like I cannot breathe. My doctor put me on an acid reflux type of pill since that's what she thinks is causing ...
Read more : Chest tightness | Views : 1378 | Replies : 2

What to tell work?

I'm still at the point where my official diagnosis is clinically isolated syndrome, but I'm seeing my new neurologist this week and I'll be pushing hard for him to figure out what's wrong with me. In the meantime, I've quickly deteriorated in the last three weeks since I started a new job. I went from having issues with my left leg that were somewhat manageable to now where I can just barely climb into the ...
Read more : What to tell work? | Views : 1602 | Replies : 2


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