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A forum to talk about the general challenges of daily life with MS.

Who to tell? What to tell? How much to tell?

Just diagnosed 6 weeks ago & I pretty much blurted to everyone I know. Well, that's exaggerating, but I told 4 people at work, 4 at church, a support group I'm in, and my whole family. And my hairdresser--but that was imperative, as I was losing function in my left hand & needed a carefree style.

Now I'm regretting being so open; although it hasn't come back to bite me yet, I feel like people ...
Read more : Who to tell? What to tell? How much to tell? | Views : 3065 | Replies : 6


I suffer from MS and was diagnosed at 14. I am currently 20 and I found that every video related to MS is patronising. I have created a short documentary on the condition and how having a positive attitude helps. The documentary can be found here

Please share and give feedback.
Read more : POSITIVE ATTITUDE AND MS | Views : 1687 | Replies : 2

Erectile Dysfunction?

Hi Everyone.

I don't know if I am posting in the right place, so if I'm not, then please accept my apologies.

I recently met a man I really like who has MS. He is a wonderful man and I feel really lucky that we got the chance to get together. Been about two months now.

We just started getting intimate a couple of weeks ago. The issue we are having is that he can ...
Read more : Erectile Dysfunction? | Views : 4189 | Replies : 13

Life and death in assisted living

Frontline on PBS recently aired a documentary called "Life and Death in Assisted Living" that discussed problems with assisted living facilities. The documentary focused on a company called Emeritus, but the problems with Emeritus are not unique within the assisted living industry. I recommend watching it. 8O ... ed-living/
Read more : Life and death in assisted living | Views : 1531 | Replies : 0

Inventor - Question for the Forum


My name is Vadim. I'm a biomedical engineer and inventor. I've designed and 3d printed a set of ergonomic utensils for my arthritic grandmother. Unlike other "ergonomic" utensils available, my design requires almost no hand strength or dexterity to eat comfortably.

I'm considering making these into a product and am very interested in getting feedback on my design from people living with MS. If you're in the New York metro area (preferably on Long ...
Read more : Inventor - Question for the Forum | Views : 1553 | Replies : 0

Frustration....depressed and MAD!

I don't usually get down on life...but dang! What a day. Went to my regular doctor. New at this and wondered if I was having a flare up. Yep...36 hr migraine..(been forever since I had one) my neck from the spinal lesions is a tight collar to colar bones. Right arm numb and dropping things cuz I can't feel it. My doctor tells me to call my neurologist. I call the prestigious hospital...let my ms ...
Read more : Frustration....depressed and MAD! | Views : 2126 | Replies : 12

Assistance/Tax Deductions for Air Conditioning?

Hi All!

Just wondering if there are any tax breaks or organizations that offer financial assistance towards the purchase/installation of central air? Like many with MS the heat just torments my hubby so we have multiple window units running all the time and would like to simplify by getting central air installed, but its pricey .

We live in Massachusetts.

If anyone has any suggestions we'd appreciate it!

Read more : Assistance/Tax Deductions for Air Conditioning? | Views : 1647 | Replies : 0

Hi, I'm form Ukraine.

Hello, I from Ukraine. It is very interesting to read your forum, you come and to us ... b36f2a924d
We write in Russian and you can translate much. I am ill ms the 13th year and I go in for sports. I have some other concept of views of treatment of this illness.
Read more : Hi, I'm form Ukraine. | Views : 1554 | Replies : 0

Any advice for someone havin botox injections in the bladder

I am due to have my first BOTOX injections into my bladder to treat my overactive bladder

I was hoping to hear soMe advice/tips from those that have already had the bladder botox injections

Anything i should or shouldn't do after i've had the injections?
I normally press my 'pubic mound' to empty my bladder, is this still advised post injections?

I will ask the Dr when i have them but its always good from ...
Read more : Any advice for someone havin botox injections in the bladder | Views : 1471 | Replies : 1

Raw/Burned Feeling Skin?

Hi everyone,
Lately I have been having "episodes" of pain in my skin (right now on my hip, have had in in my wrist and leg as well) that feels like I've been severely burned. It is super sensitive with just clothes on it and it hurts so much to have anything touching or moving it. Then... it goes away about a half hour later. Has anyone had something like this? I have chronic neuropathic ...
Read more : Raw/Burned Feeling Skin? | Views : 5474 | Replies : 4


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