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A forum to talk about the general challenges of daily life with MS.

Hi, I'm form Ukraine.

Hello, I from Ukraine. It is very interesting to read your forum, you come and to us ... b36f2a924d
We write in Russian and you can translate much. I am ill ms the 13th year and I go in for sports. I have some other concept of views of treatment of this illness.
Read more : Hi, I'm form Ukraine. | Views : 1431 | Replies : 0

Any advice for someone havin botox injections in the bladder

I am due to have my first BOTOX injections into my bladder to treat my overactive bladder

I was hoping to hear soMe advice/tips from those that have already had the bladder botox injections

Anything i should or shouldn't do after i've had the injections?
I normally press my 'pubic mound' to empty my bladder, is this still advised post injections?

I will ask the Dr when i have them but its always good from ...
Read more : Any advice for someone havin botox injections in the bladder | Views : 1356 | Replies : 1

Raw/Burned Feeling Skin?

Hi everyone,
Lately I have been having "episodes" of pain in my skin (right now on my hip, have had in in my wrist and leg as well) that feels like I've been severely burned. It is super sensitive with just clothes on it and it hurts so much to have anything touching or moving it. Then... it goes away about a half hour later. Has anyone had something like this? I have chronic neuropathic ...
Read more : Raw/Burned Feeling Skin? | Views : 4914 | Replies : 4


I need some advice on dealing with MS fatigue. I've been diagnosed for almost 2 years now and had a few relapses during this time. I use Rebif 3 times a week and don't have any problems with that. Here lately though I am absolutely EXHAUSTED all of the time. I could sleep for 10 hours straight and still be tired. I'm having a hard time with driving because I'm fighting the urge to fall ...
Read more : Fatigue | Views : 1617 | Replies : 2

Cooling devices

Hi, just wondering if anyone has tried a cooling 'glove' by core control to lower core body temperature. It is used by sportsmen and looks good but is costly:!:
Read more : Cooling devices | Views : 1329 | Replies : 1

Ankels giving out??Shoe suggestions?

Hey, I'm not diagnosed yet, but my ankles have started to give out ALOT lately, and with my balance being off, it's starting to send me to the ground more often.. I know falling is common with ms, but does anyone know if it is it common to have you ankles give way in ms?

Anyway, is there anyone who has any idea on what type of shoes would be the best to try to ...
Read more : Ankels giving out??Shoe suggestions? | Views : 1509 | Replies : 4

Happy Binary Day!

Read more : Happy Binary Day! | Views : 1307 | Replies : 2

a fun winter... continued

finally using my decades-old race coaching certification to get a team of little mini-athletes ski racing :D don't know why i didn't leave my old hill w/ all its barriers sooner, this winter is AMAZING :D wheee!!! sat and sun coaching the race team, monday&tuesday days teaching little guys in groups, tuesday&wednesday nights teaching private lessons, plus ...
Read more : a fun winter... continued | Views : 3761 | Replies : 22

Has anyone here had a pressure sore on/near the coccyx....

and seen there MS symptoms become worse?

i have had a pressure sore on my natal cleft/coccyx for about 18 months, and when it first appeared and since then my MS symptoms (walkin/legs strength and bladder frequency/control) have worsened - (photo of lesion:
- in these 18 months my E.D.S.S has gone from 5.5 to 6.5 so am seated most of the day.
bare in mind i have ...
Read more : Has anyone here had a pressure sore on/near the coccyx.... | Views : 2603 | Replies : 4

Happy New Year!

Read more : Happy New Year! | Views : 1304 | Replies : 2


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