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For questions on how to support loved ones with MS.

Advice

Hello all,

I have never been one to really look for support online but i am entering uncharted territory and want to be the best significant other i can be.
very recently my fiancee and i found out she has ms. we have been together for almost 3 years now and she is the love of my life. i want to make sure that i support her to the best of my ability. i have ...
Read more : Advice | Views : 259 | Replies : 0


Daughter of mom with MS

Hi all, my mother was diagnosed about a year ago with MS. Before this she was also diagnosed with Fibromyalgia, and Rhumetoid arthritis. Lately her personality has changed drastically and I have had heard of this being a symptom of MS but not sure. She seems very irritable and mad at the world all of the time. She's also extremely stubborn so trying to get a reason for her being so upset is near impossible. ...
Read more : Daughter of mom with MS | Views : 670 | Replies : 1


Housing and Care for friend in Manhattan

A friend with MS in Manhattan just ended his relationship of a decade with his partner and caregiver. During the last 10 years his condition has worsened quite a bit. He is on a wheelchair and unable to get up on his own. He is able to stay for a while in his partner's apartment but this will not last very long.
I am trying to help him since he is mentally not able to ...
Read more : Housing and Care for friend in Manhattan | Views : 625 | Replies : 1


Newly Dating a man with MS

I have recently started dating a man with MS. He is in a wheel chair most of the time.
It does not bother me in the least that he has MS, but I do have some questions.

1.On our first date, he explained to me that he was unable to cut his toenails, so I cut them for him.
Should I wait for him to ask for help or offer to help before he asks? ...
Read more : Newly Dating a man with MS | Views : 1820 | Replies : 5


Carepartner vs. Caregiver - looking for article sources

Hi There,

I am a freelance writer in Denver working on an article about "carepartnering" for the National MS Society's fall issue of Momentum magazine. http://www.momentummagazineonline.com/

I am looking for people living with MS and their primary caregiver to interview for the article. I need to conduct interviews this week or next (by March 21). Those pairs can be significant others, a child and parent, siblings ... willing to ...
Read more : Carepartner vs. Caregiver - looking for article sources | Views : 1232 | Replies : 0


Help: I'm working on an app to help families

Hi, my name is Wes Garnett. I have 4 family members living with MS, one of which is my Mom. I'm posting this because I'd like to learn from you the frustrations you've experience with supporting people or personally living with MS. The app is for private messages and health/medication/exercise tracking.

MS showed up in my family 9 years ago when my Mom was diagnosed. Since the very beginning communication has been an issue. At ...
Read more : Help: I'm working on an app to help families | Views : 730 | Replies : 0


Did I take too long to tell him??

Hi everyone. I'm struggling with a relationship issue and hoping you can all shed some light on this. My fiance and I started dating Jan 2013. In december he moved in and a month later proposed. On Nov 18, I was finally diagnosed with MS, after many years of ruling things out. It has been three months since my diagnosis and I just told my fiance. Sadly, I told him only when he confronted me ...
Read more : Did I take too long to tell him?? | Views : 873 | Replies : 6


Adivce needed, is this normal for MS or should I take action

Hi all. I provide care for a friend with MS who was diagnosed around a year ago. I want to be clear that I am not a licensed caregiver, at least not yet. This person went from being able to attend work at a nice career normally to needing a cane/walker 95% of the time and have great difficulty doing day-to-day tasks in every area of life. It has been a big culture shock, but ...
Read more : Adivce needed, is this normal for MS or should I take action | Views : 958 | Replies : 4


My mothers condition is drastically worsening. Need advice!

My mom has had MS for 27 years, since I was 1 year old. She is now completely debilitated and lives in a long term care facility. Although her disease has taken everything from her, she always stays positive and keeps strong. Recently, she's been struck with many different health issues at once and for the first time I truly fear for her life. She has a recurring blood clot in her upper thigh and ...
Read more : My mothers condition is drastically worsening. Need advice! | Views : 1238 | Replies : 4


MS Caregivers

If you are a caregiver who has a spouse with Multiple Sclerosis, please consider participating in this research study in understanding the factors that contribute to the quality of life of caregivers who have a family member with Multiple Sclerosis.

Please click on the link below if you are interested in participating:

http://www.surveymonkey.com/s/K5TBHMN
Read more : MS Caregivers | Views : 932 | Replies : 1


 

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