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For questions on how to support loved ones with MS.

 [ Total topics 36 Go to page 1, 2, 3, 4

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 Post subject: Living with an MSer
PostPosted: Wed Nov 01, 2006 6:08 pm 
Does MS impact on someone's personality? Im going crazy trying to guess how Im meant to behave with my sister (who has MS). One moment she's happy and social and then, no kidding, 5 seconds later she's possessed by the devil :evil: and we're all tiptoeing around the house. Someone please help! I think Im going mad! I really want to be supportive but ...

Read more : Living with an MSer | Views : 4031 | Replies : 3

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 Post subject: UK consultants
PostPosted: Tue Feb 08, 2005 2:59 pm 
My wife suffers from MS and has not seen a consultant for more than 5 years as we have been living in countries with limited to zero experience of MS. She wants to see a consultant privately in the UK during April. Can anyone recommend one please?

Read more : UK consultants | Views : 2798 | Replies : 0

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 Post subject: Family?
PostPosted: Sat Jul 31, 2004 12:13 am 
I can't understand how family members can turn away from someone when MS strikes. I was upset when members of my wife's family seemed to turn away from her once MS really started to disable her. I was taking care of her, raising the kids and working so I could have used any help but I didn't get much. My sisters were so outraged that they jumped in and started bringing home cooked meals to ...

Read more : Family? | Views : 3580 | Replies : 2

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 Post subject: Need advice on telling others
PostPosted: Thu Jun 17, 2004 8:43 pm 
I would really appreciate comments on what others have found both successful and unsuccessful in terms of telling others. I have specific "fears" about any info on this getting to my current employer before I'm ready to address that.
But I also find that my family members (older brothers and sisters) are wanting to "broadcast" the "news" to distant family and family friends, when I would rather keep this quiet.

Am I being stupid about ...

Read more : Need advice on telling others | Views : 5185 | Replies : 12

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 Post subject: What is the most helpful thing friends/ family do for you?
PostPosted: Sat Jan 24, 2004 8:19 am 
Those of us who love you want to know: (Hmmm.... "inquiring minds...") - anyway, we want to know what we can do that is helpful. We may live far from you, you are a relative or friend in another city. We've been told, "there's nothing you can do" or "just go on with your life, no sense both of us being miserable", but hey, you'd do what ever you could for us. So - give ...

Read more : What is the most helpful thing friends/ family do for you? | Views : 6473 | Replies : 8

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 Post subject: Category Charter
PostPosted: Mon Jan 05, 2004 7:51 pm 
This board was suggested by our member Suzie with the following note:

How about a forum for friends and family? There must be others who have questions about how best to support those we love. And there must be things you want to tell us, too.

I found this list on a newspaper advice column and have just listed the high points;

Don't assume that because I look well, I feel well.
Don't say, "I ...

Read more : Category Charter | Views : 3306 | Replies : 1

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 [ Total topics 36 Go to page 1, 2, 3, 4


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