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For questions on how to support loved ones with MS.

How do I get my family to understand?

Hi all . . . I was diagnosed a year ago with MS . . . its something I've felt coming for a long time so it was no surprise to me . . .

I am "fortunate" that I am still walking unaided most of the time and my peripheral tests are still in the normal range . . . my problem? I suffer from all of the "invisible" symptoms - extreme fatigue, easily ...
Read more : How do I get my family to understand? | Views : 3783 | Replies : 2

Mum's becoming very demanding - I'm exhausted!

My mother has had MS for as long as I can remember, but her condition only got bad over the last 3 years. She now needs a mental frame to get around the house and basically has a hard time doing anything. My husband and I and our 1 year old son live with her so I can look after the household chores and cooking, but it's really taking it's toll on me. Since my ...
Read more : Mum's becoming very demanding - I'm exhausted! | Views : 5461 | Replies : 5

Free website for families

I set-up a free site on The Family Post and it's so
easy to use even my son is uploading his own photos.
Check this out:

Read more : Free website for families | Views : 3814 | Replies : 0

Mothers with MS Call for participants in TX


A research study on mothers with chronic illness is seeking participants for interviews lasting approximately 90 minutes.

This study, being conducted by Courtney O’Dell, a graduate student at Texas Woman’s University, aims to gain insight into the daily realities of chronically ill women who mother by focusing on the narratives of mothers with MS.
You Must Be:
• Over the age of 18.
• Caring ...
Read more : Mothers with MS Call for participants in TX | Views : 3641 | Replies : 0

Living with an MSer

Does MS impact on someone's personality? Im going crazy trying to guess how Im meant to behave with my sister (who has MS). One moment she's happy and social and then, no kidding, 5 seconds later she's possessed by the devil :evil: and we're all tiptoeing around the house. Someone please help! I think Im going mad! I really want to be supportive but ...
Read more : Living with an MSer | Views : 5433 | Replies : 3

UK consultants

My wife suffers from MS and has not seen a consultant for more than 5 years as we have been living in countries with limited to zero experience of MS. She wants to see a consultant privately in the UK during April. Can anyone recommend one please?
Read more : UK consultants | Views : 3959 | Replies : 0


I can't understand how family members can turn away from someone when MS strikes. I was upset when members of my wife's family seemed to turn away from her once MS really started to disable her. I was taking care of her, raising the kids and working so I could have used any help but I didn't get much. My sisters were so outraged that they jumped in and started bringing home cooked meals to ...
Read more : Family? | Views : 4893 | Replies : 2

Need advice on telling others

I would really appreciate comments on what others have found both successful and unsuccessful in terms of telling others. I have specific "fears" about any info on this getting to my current employer before I'm ready to address that.
But I also find that my family members (older brothers and sisters) are wanting to "broadcast" the "news" to distant family and family friends, when I would rather keep this quiet.

Am I being stupid about ...
Read more : Need advice on telling others | Views : 7950 | Replies : 15

What is the most helpful thing friends/ family do for you?

Those of us who love you want to know: (Hmmm.... "inquiring minds...") - anyway, we want to know what we can do that is helpful. We may live far from you, you are a relative or friend in another city. We've been told, "there's nothing you can do" or "just go on with your life, no sense both of us being miserable", but hey, you'd do what ever you could for us. So - give ...
Read more : What is the most helpful thing friends/ family do for you? | Views : 7933 | Replies : 8

Category Charter

This board was suggested by our member Suzie with the following note:

How about a forum for friends and family? There must be others who have questions about how best to support those we love. And there must be things you want to tell us, too.

I found this list on a newspaper advice column and have just listed the high points;

Don't assume that because I look well, I feel well.
Don't say, "I ...
Read more : Category Charter | Views : 4847 | Replies : 1


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