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For questions on how to support loved ones with MS.

UK consultants

My wife suffers from MS and has not seen a consultant for more than 5 years as we have been living in countries with limited to zero experience of MS. She wants to see a consultant privately in the UK during April. Can anyone recommend one please?
Read more : UK consultants | Views : 3301 | Replies : 0


Family?

I can't understand how family members can turn away from someone when MS strikes. I was upset when members of my wife's family seemed to turn away from her once MS really started to disable her. I was taking care of her, raising the kids and working so I could have used any help but I didn't get much. My sisters were so outraged that they jumped in and started bringing home cooked meals to ...
Read more : Family? | Views : 4127 | Replies : 2


Need advice on telling others

I would really appreciate comments on what others have found both successful and unsuccessful in terms of telling others. I have specific "fears" about any info on this getting to my current employer before I'm ready to address that.
But I also find that my family members (older brothers and sisters) are wanting to "broadcast" the "news" to distant family and family friends, when I would rather keep this quiet.

Am I being stupid about ...
Read more : Need advice on telling others | Views : 6323 | Replies : 15


What is the most helpful thing friends/ family do for you?

Those of us who love you want to know: (Hmmm.... "inquiring minds...") - anyway, we want to know what we can do that is helpful. We may live far from you, you are a relative or friend in another city. We've been told, "there's nothing you can do" or "just go on with your life, no sense both of us being miserable", but hey, you'd do what ever you could for us. So - give ...
Read more : What is the most helpful thing friends/ family do for you? | Views : 7098 | Replies : 8


Category Charter

This board was suggested by our member Suzie with the following note:

How about a forum for friends and family? There must be others who have questions about how best to support those we love. And there must be things you want to tell us, too.

I found this list on a newspaper advice column and have just listed the high points;

Don't assume that because I look well, I feel well.
Don't say, "I ...
Read more : Category Charter | Views : 3995 | Replies : 1


 

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