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MS pain

I know this topic may stir up the proverbial hornets nest. But I have had multiple sclerosis now for nearly 12 years. Other than some initial optic pain, I have never experienced pain. I know that for a long while many doctors did not think that MS even caused pain. Now it seems that every forum I click on, especially on Facebook, people treat pain as the number one symptom. It’s probably the complaint I ...
Read more : MS pain | Views : 185 | Replies : 6

New award-winning documentary about MS now available.

I wanted to let everyone know that the new award-winning documentary about MS, "Living Proof", is now available at

"Living Proof" sold out theatres in Canada and the USA. The documentary exposes the potential conflict of interest between pharmaceutical companies, neurologists and MS charities.

Here is the trailer:

Please do not hesitate to contact me with any questions or concerns.

Respectfully, ...
Read more : New award-winning documentary about MS now available. | Views : 315 | Replies : 3

Dr. Ebers' disturbing interview about MS drugs and FDA

Below is an important scene from the recent award-winning documentary about MS, "Living Proof". I suggest that anyone with MS watch this. Dr. George Ebers is one of the world's top MS researchers:

The entire documentary can be found at

Read more : Dr. Ebers' disturbing interview about MS drugs and FDA | Views : 302 | Replies : 2


I was diagnosed with MS ten months ago and put on tysabri. No relapses since the original event. But I've got a scaly spot on the 4th finger of both hands. It's on the lateral side of the second knuckles. I know psoriasis is autoimmune like MS. Could these spots be related to MS?
Read more : Psoriasis? | Views : 230 | Replies : 2

A model of de-myelination for multiple sclerosis

A model of de-myelination, as it really is.
By Simon Ewart-Grist

For this demonstration you need -

1. A supply of ordinary round party balloons.
2. A pair of bead magnets, 3mm dia.
3. A digital clock plugged into the mains

In theory, you only need one balloon but the first is bound to burst, so several are recommended. If you don't have, or can't borrow from a friend, the 3mm diameter bead magnets, I'm ...
Read more : A model of de-myelination for multiple sclerosis | Views : 284 | Replies : 0

who's on twitter

interesting new campaign #thisisms
Read more : who's on twitter | Views : 262 | Replies : 0

Purple Foot!

How many people have a purple foot? I had one and after a ccsvi procedure it went away. I waas just reading the biotin thread here and someione said there purple foot went away..
Do others have this? Never heard it mentioned before as an ms symptom.
Read more : Purple Foot! | Views : 422 | Replies : 9

Do lesions grow bigger or do they stay the same size?

I had my second MRI done last week and compared to the one done the beginning of November there are several new multiple lesions. There is a larger one that hasn't grown or shrunk down since my first MRI. My neurologist has me set up next week to do a lumbar puncture and they are sedating me. I don't know what stage or even what kind it is yet. How do I know its not ...
Read more : Do lesions grow bigger or do they stay the same size? | Views : 321 | Replies : 5


Since it's more common in women than men, I wondered whether testosterone might be the reason. I found this abstract:

Arch Neurol. 2007;64(5):683-688. doi:10.1001/archneur.64.5.683

Objective To study the effect of testosterone supplementation on men with multiple sclerosis (MS).

Design, Setting, and Participants Men are less susceptible to many autoimmune diseases, including MS. Possible causes for this include sex hormones and/or sex chromosome effects. Testosterone treatment ameliorates experimental allergic encephalomyelitis, an animal model of MS, but ...
Read more : testosterone? | Views : 303 | Replies : 1


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