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my blog

Hello, everybody :-)

I have not been on this forum for a long time. It is not because I prefer facebook. In fact I do not consider myself one of the faceliterati. I am functionally face-illiterate. I have always preferred this forum.

I just haven't got much faith anymore that I will find, here or anywhere, any MS magic bullets.

My MS is pretty much under control. ...
Read more : my blog | Views : 393 | Replies : 1


Inspiration

Sometimes we need a little inspiration.

I admit there have been times when I thought of putting a bullet through my head, not because of how I am now but out of fear of what I might become. This man's condition is my worst fear. But He's found a reason for living and a zest for life.

Mitch Albom: How a man who can't move manages to move us all
https://www.freep.com/story/sports/columnists/mitch-albom/2018/03/25/mitch-albom-how-man-who-cant-move-manages-move-us-all/455670002/
Read more : Inspiration | Views : 407 | Replies : 1


Breathing to treat ms

I wonder if anyone has tried wearing surgical masks. I wear surgical masks regularly and they tremendously boost my esteem and let me function a lot better in society. I was told ms is a nervous system disorder. Air regulation plays a huge role in the information the nervous system receives. I believe that with the right things in the surgical mask like an additive that releases when the person is feeling discomfort could make ...
Read more : Breathing to treat ms | Views : 481 | Replies : 5


Twilight fatigue and aspirin

What experiences do people have with MS and aspirin? Here is my story.

In the middle of some afternoons, I get a little MS fatigued. This happens especially when the morning hours are active. The fatigue is pretty easy to identify as MS related because the legs will experience some tremors and simple cognitive activity like conversations become disconnected. I refer to this situation as twilight fatigue. Since the event happens in the afternoon, the ...
Read more : Twilight fatigue and aspirin | Views : 507 | Replies : 6


Gut microbes and the brain

Gut microbes and the brain: paradigm shift in neuroscience.
J Neurosci. 2014 Nov 12;34(46):15490-6.

    The discovery of the size and complexity of the human microbiome has resulted in an ongoing reevaluation of many concepts of health and disease, including diseases affecting the CNS. A growing body of preclinical literature has demonstrated bidirectional signaling between the brain and the gut microbiome, involving multiple neurocrine and endocrine signaling mechanisms. While psychological and physical stressors can affect the ...
Read more : Gut microbes and the brain | Views : 522 | Replies : 4


hand tremor

DSC03104

Because of MS and APS I have resting tremor in my left, the dominant hand, I'm trying to turn my right into the dominant hand by practicing my handwriting. Anyone wanna guess which is which in the photo? I practice by brushing my teeth with the non-dominant hand. My dad was in the army for 20+ years. He was a leftie and the army switched him by forcing him to do everything with is ...
Read more : hand tremor | Views : 484 | Replies : 2


IMPORTANT: Demyelinating disorders. Cousins of MS updated.

An interesting diagram speaking about Anti-MOG associated encephalomyelitis. Some MS cases could be anti-MOG in reality. Get informed.


      Image

      Clinical spectrum of myelin oligodendrocyte glycoprotein (MOG) immunoglobulin-G (IgG)-associated disease. MOG-IgG is detected in some cases of idiopathic optic neuritis (ON), acute disseminated encephalomyelitis (ADEM), encephalitides (brainstem and cerebral cortical), idiopathic myelitis, atypical multiple sclerosis (MS), aquaporin-4 (AQP4)-IgG-negative neuromyelitis optica spectrum disorders (NMOSD) and others.


Source: http://onlinelibrary.wiley.com/doi/10.1 ... 12434/full
Read more : IMPORTANT: Demyelinating disorders. Cousins of MS updated. | Views : 725 | Replies : 2


gnawing, boring, itching sensation

I'm coming up to 14yrs since diagnosis - no meds - gluten free vegan and eat fish. I can still walk 5kms without having to sit down, but can't run very well. About 1yr ago I developed this horrible annoying itching, boring, gnawing sensation on the right side of my head - just by ear - it comes and goes. I guess it's the MS. Some days it's worse than others, sometimes if I lie ...
Read more : gnawing, boring, itching sensation | Views : 565 | Replies : 5


MS news today

This morning's edition talks about diet. The talking heads are recommending a heart-healthy balanced diet. The only supplement needed is Vitamin D. I was seen by a specialist a few days ago. He said essentially the same thing. The only new item for me was the need for water. I drink a gallon of coffee and probably a quart of diet ginger ale daily. I can't remember the last time I got a glass of ...
Read more : MS news today | Views : 631 | Replies : 1


Mavenclad

Hi, I'm new to this forum... wondering if anyone has experience with mavenclad?
I wasn't sure where to post this so forgive me if I'm in the wron section.
Any advise would be appreciated
Thanks
Read more : Mavenclad | Views : 634 | Replies : 2


 

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