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gnawing, boring, itching sensation

I'm coming up to 14yrs since diagnosis - no meds - gluten free vegan and eat fish. I can still walk 5kms without having to sit down, but can't run very well. About 1yr ago I developed this horrible annoying itching, boring, gnawing sensation on the right side of my head - just by ear - it comes and goes. I guess it's the MS. Some days it's worse than others, sometimes if I lie ...
Read more : gnawing, boring, itching sensation | Views : 592 | Replies : 5

MS news today

This morning's edition talks about diet. The talking heads are recommending a heart-healthy balanced diet. The only supplement needed is Vitamin D. I was seen by a specialist a few days ago. He said essentially the same thing. The only new item for me was the need for water. I drink a gallon of coffee and probably a quart of diet ginger ale daily. I can't remember the last time I got a glass of ...
Read more : MS news today | Views : 654 | Replies : 1


Hi, I'm new to this forum... wondering if anyone has experience with mavenclad?
I wasn't sure where to post this so forgive me if I'm in the wron section.
Any advise would be appreciated
Read more : Mavenclad | Views : 655 | Replies : 2

The saga continues...

Last July I was diagnosed with MS and APS: Antiphospholipid antibody syndrome. Since then I've been on two drugs, monthly Tysabri infusions for the MS and daily Pradaxa for the APS. The MS doctor was never sure about the APS so she referred me to a specialist. I'd had a tremor for months before the MS dx. Also atrocious, small hand-writing.

My doctor tried sinemet. I don't remember the dose. But I never felt it ...
Read more : The saga continues... | Views : 549 | Replies : 2

Is saturated fat bad for people diagnosed with PPMS ??

I'm going back on the Paleo Autoimmune Protocol eating plan.

I really need to know if (natural, not man-made) saturated fat is bad for people with primary progressive ms :?: That is what I've been diagnosed with, but to me, it's obviously a blood flow/volume issue.
Read more : Is saturated fat bad for people diagnosed with PPMS ?? | Views : 1048 | Replies : 22

Daclizumab (Zinbryta) is withdrawn from the European market

Germany recently informed the European Medicines Agency (EMA) that seven patients with multiple sclerosis (MS) had developed immune-mediated inflammation of the brain (encephalitis) during treatment with daclizumab beta (Zinbryta). Three of these patients also had a severe allergic reaction (drug reaction with eosinophilia and systemic symptoms syndrome)…Read more -

Read more : Daclizumab (Zinbryta) is withdrawn from the European market | Views : 482 | Replies : 1

Eating fish may be tied to a reduced risk of MS

Eating fish at least once a week or eating fish one to three times per month in addition to taking daily fish oil supplements may be associated with a reduced risk of multiple sclerosis (MS), according to a preliminary study released that will be presented at the American Academy of Neurology's 70th Annual Meeting in Los Angeles, 21-27 April 2018. These findings suggest that the omega-3 fatty acids found in fish may be associated with ...
Read more : Eating fish may be tied to a reduced risk of MS | Views : 543 | Replies : 2

Re: Change from Gilenya to Ocrevus

Hello all,

My doctor called me recently to inform me that my MRI results were piss poor (not her words - mine); clinically speaking, I'm doing fairly well (I pass the "no one can tell I have MS test"). I've been on Gilenya for about five years, and notwithstanding certain sensory issues, pain, and fatigue -which could all be residual symptoms from previous relapses- I haven't had a relapse. My MRIs have not shown any ...
Read more : Re: Change from Gilenya to Ocrevus | Views : 509 | Replies : 0

closer to a urine test

The soluble form of Toll-like receptor 2 is elevated in serum of multiple sclerosis patients: a novel potential disease biomarker. ... 7/abstract

Multiple sclerosis (MS) is an immune-mediated inflammatory demyelinating disease of the central nervous system. It was previously shown that Toll-like receptor (TLR)-2 signalling plays a key role in the murine experimental autoimmune encephalomyelitis (EAE) model of MS, and that TLR2-stimulation of regulatory T cells (Tregs) promotes ...
Read more : closer to a urine test | Views : 524 | Replies : 0

Progress on the legalisation of medical cannabis...

Progress on the legalisation of medical cannabis takes a side step

On Friday 23 February, the United Patients Alliance gathered for another peaceful protest outside the House of Parliament while the second reading of the Emily Brice bill took place…Read more -

Read more : Progress on the legalisation of medical cannabis... | Views : 522 | Replies : 2


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