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Seeking differential diagnosis and opinions

I received an MS diagnosis 20 years ago. Whenever I consult a medical professional and tell them the initial diagnosis their eyes "glaze over" and they never look any further.

My history is given below. Your thoughts would be much appreciated.


46 year old male, 184 cm tall, 71 kg.

Family history – Parent with Fibromyalgia.

1988: Epstein-Barr virus at age 20.

1994: I was holidaying in a warm and humid climate. During ...
Read more : Seeking differential diagnosis and opinions | Views : 908 | Replies : 30

Misdiagnosis possibility???

Hi, I'm new here and I have no idea what I have. I had an EMG and nerve conductive(?) test and was told I have PN. That was six months ago and since then I am experiencing slight numbness in my forehead and on my scalp. I told my neurologist and she told me that wasn't caused by PN. She had me go and get labs done on about 12 different things such as cryoglobulins, ...
Read more : Misdiagnosis possibility??? | Views : 391 | Replies : 3

Rayminder vitamin d lamp?

I just came across this web site - Rayminder - that manufactures UVB lamps. The web site does mention MS along with other conditions related to a lack of vitamin d and uvb. It seems like a legit product. Anyone have any experience with this?
Read more : Rayminder vitamin d lamp? | Views : 498 | Replies : 14

3 new studies: MS BBB break prior to immune cells

1. In vitro study of the direct effect of extracellular hemoglobin on myelin components.

The cellular biologists from the University of Guelph are looking at how blood particles damage myelin. They are seeing microscopic deposits of hemoglobin in the MS brain, around the veins. This blood contains iron, which when deposited into delicate brain tissue, begins a process of oxidative stress.

"This study provides new insight into the ...
Read more : 3 new studies: MS BBB break prior to immune cells | Views : 488 | Replies : 4

MS weakness

I have searched all over webb but I do not really understand what ms-weakness is. Is ms-weakness like you muscle just dies out, with that i mean like you cant even lift 1 kg becuase of the weakness. Or is ms-weakness like it feels heavier, for example before somone could lift 40 kg 4x10 times now he can only lift in that arm 40 kg 2x10 times (is this perceived weakness or ms-weakness?)

The thing ...
Read more : MS weakness | Views : 339 | Replies : 1

New study suggests Hepatitis B vaccine sparked rise in MS

"Whatever the mechanism, because of this unique event in vaccination history, of such a large number of people getting vaccinated against hepatitis B in such a short time, and the resultant dramatic wave of new cases, it appears highly likely that hepatitis B vaccination can trigger MS. The author of this paper actually goes so far as calling this 'an involuntary very large scale experiment carried out on a third of the French population'."

Link ...
Read more : New study suggests Hepatitis B vaccine sparked rise in MS | Views : 370 | Replies : 2

Using no-evidence-of-disease-activity standard for patients

Using no-evidence-of-disease-activity standard for patients with multiple sclerosis

Maintaining "no-evidence-of-disease-activity" (NEDA) was difficult over time for many patients with multiple sclerosis (MS) but the measure may help gauge a patient's long-term prognosis, according to a study published online by JAMA Neurology.

NEDA has become a new goal for the treatment of MS and an outcome measure because of multiple and increasingly effective therapies for relapsing forms of the neurodegenerative disabling disease. But it's unknown what ...
Read more : Using no-evidence-of-disease-activity standard for patients | Views : 307 | Replies : 0

Christmas Dinner

This is making the rounds...

Read more : Christmas Dinner | Views : 284 | Replies : 1

Gilenya users be on alert for shingles!

The issue of zoster risk has come to the fore with fingolimod because of two fatal cases. One involved a clinical trial participant who died of a disseminated primary VZV infection in 2008 after taking the drug for 10 months. The second was reported in April 2013 and involved a case of reactivated zoster infection in a patient who had taken fingolimod in a postmarketing observational study for 6 months following treatment with natalizumab ...
Read more : Gilenya users be on alert for shingles! | Views : 261 | Replies : 0


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