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If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Need Help

My wife is in the hospital in a small city with meningitis apparently contracted through her MS baclofen pump. The pump was surgically removed and she is being treated for bacterial meningitis, although they can't grow a culture. Their baclofen withdrawal plan seems very funny to me. She has had a small brain infarct and her kidneys are failing from the antibiotic. She is cycling through different awareness presentations every day.

Question: does anyone know ...
Read more : Need Help | Views : 1379 | Replies : 2

Infection from needle

Has anyone ever gotten an infection from one of the subq needle injections, like Copaxone or Rebif?
Read more : Infection from needle | Views : 1535 | Replies : 2

Happy Holidays

Since I won't get on tomorrow I just wanted to wish you all a Merry Christmas / Happy Chanukah!

Read more : Happy Holidays | Views : 1679 | Replies : 8

Antibody research

Interesting antibody research ... px?nid=566

I'd like to wish my old friend Lyon a Merry Christmas. We can still use the C work in the UK and haven't been pushed into the Happy Holidays cop out.

Merry Christmas to all the users of the site (even grumpy old Harry Z) and fingers crossed that 2009 will see some more research advances.

Read more : Antibody research | Views : 1658 | Replies : 6

MS Measle drug goes to trial

The antiviral agent will be tested on patients with MS.
Here is a link to the study concerning the higher incidence of measle antibodies in ms patients.

Go to new drug category:

At the moment I cannot locate any specifics about the human trial, but perhaps it is too early. If anyone locates the data, please give me a holler.

I suppose there are a million different thoughts ...
Read more : MS Measle drug goes to trial | Views : 1656 | Replies : 3

Balo's Concentric Sclerosis

Hello everyone-
I realise that this is an MS website but I was hoping that someone might still be able to give me some help or advice.
Last week I was diagnosed with Balo's Concentric Sclerosis. As it's pretty rare (my Neurologist has never seen it before) I am trying to do as much research as possible. I am also trying to find other people that have also been diagnosed with Balo's- if anyone is ...
Read more : Balo's Concentric Sclerosis | Views : 5764 | Replies : 28


I have a new theracycle 100 (the one that does all the work for you). It is a wonderful passive exercise machine. I am no longer physically able to strap my feet in to the foot plates and I was wondering if anyone knows where I could post this for sale.
Read more : Theracycle | Views : 1562 | Replies : 0

Something positive

I just wanted to post something positive because I have had a pretty rough year and am usually moaning more often than not.

For the first time in months (maybe more than a year) I had a great surge of energy last night. I did so much when I got in from work - cooked evening meal and an extra casserole for tonight as we will be going out, did a whole bunch of housework ...
Read more : Something positive | Views : 1990 | Replies : 6

White Nails and MS


I've been having white nails for around 8 years now. When I say it's white, the entire nail is as white as a ghost. I'm not talking about occasional white clouds that appear in normal persons from time to time. I want to know if it was normal for people with MS or people with low B12 level? I had low B12 in the order of 130 pg/ml when I last tested it.

Thanks, ...
Read more : White Nails and MS | Views : 1996 | Replies : 3

Need Advice

My daughter has been in a coma for a month now and her doctor just got back results from a second biopsy. His Official Diagnosis: Inflammatory Disease of Brain-Inflammatory driven by B & T cells. He said no antibodies where found so he was not going to start her back on plasmapheresis which she was on for about 6 days with steroids. She is currently on 1000 mg of steroids per day. The doctor has ...
Read more : Need Advice | Views : 1863 | Replies : 8


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