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I feel very very sad :cry: Yesterday night me and my boyfriend wanted to go out and have fun,as every Saturday happens here in Greece.So,i wore nice clothes to be prety and also wore 'high 'shoes(i do not know the english word...).That was mistake,bad choice because i could not walk on them!i felt AWFUL!... :cry: ...
Read more : FOR WOMEN | Views : 2171 | Replies : 8

Therapies for progressive MS

No much in this article, but three point interested me:

- reference to LINGO (work by Biogen)
- reference to damage in MS being similar to stroke damage
- reference to the gene work on MS and forecasting that the relevant genes might be identified in 2009. ... px?nid=556
Read more : Therapies for progressive MS | Views : 1419 | Replies : 1

The List of Questions

How long did it take a doctor to diagnosis you? I was doing some research and it stated that it takes 6 month to diagnosis MS to be sure, is this a myth or no, cause I was dianose within a month ( had MRI met doctor he told me I had ms, did a spinal tab to confirm) with only one attack and no repeat attack at all since my diagnosis nearly 6 months ...
Read more : The List of Questions | Views : 1461 | Replies : 2

Radiologically Isolated Syndrome in MS

A new study published online in this week's Neurology, the medical journal of the American Academy of Neurology, reports that a third of people who underwent an MRI (magnetic resonance imaging) for other brain-related problems, but whose scans also showed abnormalities suggestive of MS, went on to develop the chronic disease within an average of about five years.

The research raises medical and ethical questions that genetic researchers and patients have bandied about for ...
Read more : Radiologically Isolated Syndrome in MS | Views : 1800 | Replies : 2

Not disabled enough

Gotta love the English benefits system. I applied for Disability living allowance - a small benefit to help disabled people be able to live more normally and afford a little help with the costs of disability. I still work so it's not full-time sickness benefit. After 6 months they ahve come back and told me that I am not disabled enough. I have been on crutches or a walking stick permenantly since May. But it ...
Read more : Not disabled enough | Views : 2019 | Replies : 5

Update on DR Visit yesterday

I posted this on the rebif thread but wanted everyone to know about it.

I had my biannual MRI and Neuro check up this afternoon. I have been taking .22 Rebif shots for 6 months. Dr was thrilled that there were no new leisons/ no change at all in the T3 MRI. What a relief!! No progression since starting the Rebif.

I will up my dose of rebif to .32 for a month the go ...
Read more : Update on DR Visit yesterday | Views : 1448 | Replies : 1

MS - the gift that keeps on giving

Well 2008 has been an unusually crappy year for me. A severe fall and head injury, wicked vertigo for over 6 months now, optic neuritis in both eyes, balance and gait problems, and now a new gift from the MS grinch of the holidays... right arm numb from the elbow down and some loss of function in right hand. Wow.. what next? I can hardly wait to see. The wheel of misfortune keeps on spinning ...
Read more : MS - the gift that keeps on giving | Views : 2449 | Replies : 14

The Guy's Neurological Disability Scale (GNDS)

This was the first I remember of hearing about this; searched here and found a reference to it for a study. And it appears you can even do it yourself. The link below actually leads to access to the full text which has the test and how to administer/score it as an appendix.

The Guy's Neurological Disability Scale (GNDS): a new disability measure for multiple sclerosis
Basil Sharrack
Department of Clinical Neuroscience, Hodgkin Building, Guy's, ...
Read more : The Guy's Neurological Disability Scale (GNDS) | Views : 2090 | Replies : 0

Hello from Greece

My name is Ioannamelina,i am 22years old and i am from Greece.I suffer from MS and i was informed about it before a month. I live with it 5 years,so there is no difference now. i am happy because i now what makes me walk like a fool!...hope rebif help me. I want to tell everybody to have courage and faith! when you stay optimistic you can win everything!!!
PS Sorry for my bad english!
Read more : Hello from Greece | Views : 1763 | Replies : 9


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