I was DX with MS in 2000, and have participated in the walk every year since then, even if I could only walk 1/2 block (which was the first 2 years after DX on a good day). I am going to walk again this year. Every year when it gets closer to the walk, I become very angry that not one person in my family (7 sisters and 2 daughters) has ever donated or volunteered ...

Hi,

This is AAron, not to be confused with our fearless leader aRRon. :lol:

Anyway, I've heard people speak of canes that the can fold and carry if they don't need it at the time. Does anyone have any info on how I can purchase one of these. I sometimes 'gimp' after walking a distance, but sometimes I don't, and I don't want to be lugging around ...

Another 'momentus' day in the world of ms.

In the last month the following have gone (or been pulled) - Tysabri, Goats Serum, Antisense, GSK. How long before the Novartis oral treatment or the other oral treatments in trial?

So what's left - the CRABS which at 30% effectiveness aren't particulalry stunning (and don't forget the side effects).

An Alzeimers drug was being recommended for ms sufferers experiencing memory loss - but the UK has ...

This question was actually sparked by the previous question on what happened to Cari Loder. The Cari Loder regime used the tricyclic antidepressant lofepramine. As lofepramine metabolises to desipramine, would not the trials done some years ago on lofepramine be directly equivalent to desipramine?

There is a trial results full text here:

http://jnnp.bmjjournals.com/cgi/content/full/73/3/246

Robin

:) Hi,

I once read a book,written by Cari Loder in 1997,title:"Standing in the light",about ms.

Cari Loder found a medicine she developed herself,thinking it was the solution for ms.

Unfortunately,it wasnt.

Is there anyone who ever heard of Cari Loder,I wonder very much how she is doing.

At the time she wrote her book she lived in England.

I wrote already to the BBC,because she was ...

I'm reading Multiple Sclerosis: Current Status and Strategies for the Future (2001) from the US Institute of Medicine (IOM)
Available freely online at
http://books.nap.edu/books/0309072859/html/index.html

Check it out if you haven't already and have otherwise run out of web based info to occupy your mind with :D


Jeremy

FYI: Apparently there's been some progress in development of a simple blood test to check for "markers for" MS.

This could be a source of real hope for those of you who've been frustrated by MRI and/or LP results that were inconclusive, negative or somehow equivocal.

The link to coverage of this by BBC-News is below:

http://news.bbc.co.uk/1/hi/health/4346747.stm

Dear all,

PML is apparently a rare disease - 'The disorder, which is caused by a common human polyomavirus, JC virus, is characterized by demyelination or destruction of the myelin sheath that covers nerve cells. The myelin sheath is the fatty covering — which acts as an insulator — on nerve fibers in the brain. Symptoms of PML include mental deterioration, vision loss, speech disturbances, ataxia (inability to coordinate movements), paralysis, and, ultimately, coma reflecting ...

i'm loking for caselaw abiout persons with ms who have sued employers under ADA. (especially public safety people fire,police and EMS)

thanks

jim

Is anyone aware of a successful medical malpractice action against a neurologist for failure to timely diagnose and treat multiple sclerosis?