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Double blind trials / placebo arm

Just something that has been bothering me from when i was on rebif.

The CRABS generally have noticeable side effects, and have all been tested in double blind, placebo controlled trials.

How do they ensure that the recipients dont KNOW they are getting the actual CRAB? for example, when I took rebif, i suffered from flu like reactions. Therefore, i think if i was in the placebo arm of a rebif trial, i would pretty ...
Read more : Double blind trials / placebo arm | Views : 1502 | Replies : 10


Hi everyone,
Not really sure what this means but Opexa is the company that is researching Tovaxin. I am hoping that this means more money for them which I hope will go towards research and marketing of the drug? Anyone with some stock market background that could clarify?

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Read more : Opexa | Views : 1299 | Replies : 5

Stem cell failure

I have attached an article that appeared on the MSRC website. It is of particular importance to me as it was after reading this article that I came to the decsion that should things get worse, I would undertake stem cell treatment:

'Miracle' MS cure dismissed
A young multiple-sclerosis patient who walked for the first time in five years following expensive stem-cell replacement therapy has warned fellow MSers not to waste their money on ...
Read more : Stem cell failure | Views : 2179 | Replies : 13

Regenerating neurons

Damping down inflammation can be of benefit but atrophy is the cause of disability and the real breakthrough will be replacing the brain cells we have lost. Here is some positive news in this area.


Harvard scientists identify compounds that stimulate stem cell growth in the brain

Scientists at Harvard University have identified key compounds that stimulate stem cell growth in the brain, which may one day lead to restored function for people ...
Read more : Regenerating neurons | Views : 875 | Replies : 1

Seizures MS?

Is this common to have seizures? Does anyone have this happening to them... My husband has had 7 since March...begins with a very bad headache. He was diagnosed with MS 7 months ago. MS came out of no where... Seizures come out of no where... we are so frustrated hearing from the Doctors they dont know what is happening. I also posted this under the tysabri forum in error. We have been approved for this ...
Read more : Seizures MS? | Views : 1086 | Replies : 1

ABX -- not really working for me

I’ve been on ABX regimen for sixteen months. And I’ve got to say, with a lot of regret, that its benefits for me appear to have been limited.

I had a single neurological episode (with no prior symptoms) in January 05 which left me pretty weak and screwed up. Within a few weeks I started taking ABX according to a regimen provided through correspondence with by Dr. C Stratton (minocycline, azithromycine, metronidazole).

In the first ...
Read more : ABX -- not really working for me | Views : 3498 | Replies : 22

MS, depression and sad stories...

I haven't been on here for a very long time due to lots of upheavel, but I was reading this news story and was frustrated by the lack of understanding between MS and depression...
When my own husband became depressed, I'm sure it was a physical reaction to something on the brain rather than being sad because he is ill. We have been offered prozac, and it ...
Read more : MS, depression and sad stories... | Views : 1165 | Replies : 0

Warning about stem cell treatment

Scientists warn of 'unproven stem cell treatments'
Last updated at 12:04pm on 29th August 2006

Scientists have warned that some stem cell treatments could kill

A group of leading British scientists warned patients today to be wary of "extravagant" claims made for "unorthodox" stem cell treatments offered abroad.

In a letter to The Times newspaper, the experts praised the UK for establishing itself as a world leader in such research, but said foreign therapies - ...
Read more : Warning about stem cell treatment | Views : 985 | Replies : 0

Exercise and MS

New Hope For Multiple Sclerosis Patients

POSTED: 5:55 pm EDT August 29, 2006
UPDATED: 8:37 pm EDT August 29, 2006

RALEIGH, N.C. -- New research is breaking through old assumptions and helping people with Multiple Sclerosis.

More doctors are rethinking their approach to exercise for patients with Multiple Sclerosis, as a result of recent medical studies. It's a chronic nerve disease that damages parts of the brain and spinal cord and affects about 400,000 people, ...
Read more : Exercise and MS | Views : 1258 | Replies : 5

Fatigue and You

I am very interested to hear from everyone what their experience with fatigue and general tiredness is. I seem to be struggling with being tired more and more as time goes on with MS. I want to know if what I am experiencing is normal for most of us or not.

To be more specific, here is my experience:

For the past 6 mos - 1 year (I have been diagnosed for 3 years) I ...
Read more : Fatigue and You | Views : 2038 | Replies : 7


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