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If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Rite of passage

I had my first solumedrol drip today. I had a relapse over the weekend - vetibular ataxia. My first definite relapse since diagnosis last year. Yippee :(

I am getting the drip for three more days. The nurse told me about some side effects but they didn't seem to match some other ones I've read about, so I'm curious to know what your experiences on it were. ...
Read more : Rite of passage | Views : 2016 | Replies : 6

Impending dx

Tomorrow afternoon I am seeing the neuro. I have not had a dx yet, only docs murmuring that MS is likely. I had a whole bunch of tests in early january and tomorrow I am getting the results ( the joys of the NHS & 3 month waits for appointments).

I am now absolutely terrified. After fighting for a year to be taken seriously by doctors I am now praying that they will tell me ...
Read more : Impending dx | Views : 3491 | Replies : 22

What is inactive ms exactly?

Hi Everyone,

As my main area of reading is now everything to do with ms, i have many times come across terms like active and non active ms.

Does anyone know what this means? Is inactive ms just ms that is "asleep" and currently silent and not causing any problems?

Is it active when demyelination is occuring?

Is the aim of dmd's to help ms to remain inactive as long as possible as well as ...
Read more : What is inactive ms exactly? | Views : 5254 | Replies : 7

$15 million for MS Research on the line

The U.S. Department of Defense and its ridiculously humongous budget may actually be put to some good :)

"Now is the time to pursue MS research in the CDMRP for fiscal year 2009. This program is funded annually through the Department of Defense (DoD) appropriations bill. Last year, your efforts influenced Congress to include MS and for the first time it became one of the areas ...
Read more : $15 million for MS Research on the line | Views : 1641 | Replies : 2

Onset of ON?

Over the past month or so I have noticed that when I close my eyes especially when I lay down at night I have excessively more spots of flashing lights. Does anyone think this is an indication that it may someday progress to ON? Are the MRTC's attacking my optic nerve? I am in the Tovaxin study and IF I was on the real thing I haven't been dosed for over 6 months if I ...
Read more : Onset of ON? | Views : 1360 | Replies : 0

Your wildest imagination

I'm going to step out on a limb here and ask a silly question. We all think about MS and its possible causes a lot, I presume. My question:

What has entered your mind as a possible cause or factor that seems too crazy to mention?

I can give two. (remember, I'm stepping out on a limb, here)

1. Childhood stress with resulting shrinking of the hippocampus

2. Nasal administration of drugs. (illegal, vaccinations, over-the-counter) ...
Read more : Your wildest imagination | Views : 4574 | Replies : 28

Analogy for first step in research action plan: find cause

For lack of a better place to post this, I put it here under General Discussion.

I still think the FIRST step in solving a problem must be to know the CAUSE of the problem.

In discussion the other day my husband gave this brilliant (in my opinion) analogy: MS research is like a person having his car towed in to a repair shop and saying, "My car is broken; it doesn't work."

And one ...
Read more : Analogy for first step in research action plan: find cause | Views : 1721 | Replies : 9

Up all night

Last night like many many many and did i say many nights before i awoke around two oclock like someone had just slammed a door. this happens every night. i go to bed around 9 or 10 and even take lunesta. i am sick of not getting to sleep late. o how i long for the days when i could sleep till 9 am . this sucks. it has been going on for about a ...
Read more : Up all night | Views : 7208 | Replies : 64

MSers in Los Angeles / So Cal area-- wanna share local info?

Hello. I'd like to know if there are other people on this site who live in the Los Angeles (or broader Southern California) area and who would like to share information with other locals with MS.

I was Dx with PPMS in June 2007 and have seen three neurologists at two hospitals, including one former and one current head of the UCLA Dept. of Neurology. I'm still looking for my primary neurologist and would love ...
Read more : MSers in Los Angeles / So Cal area-- wanna share local info? | Views : 1487 | Replies : 2

S.P.O.C. single point of contact

when i first talked to my dr about taking rituxan he said that my insurance more than likely would not pay for the drugs. he said we would go thru S.P.O.C. single point of contact they negotiate with insurance groups to help get you treatment. for me this too didn' work but worth talking to your dr. My dr was able to talk to genetech to get the drugs for me. i do not know ...
Read more : S.P.O.C. single point of contact | Views : 1746 | Replies : 4


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