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A $26,000 wheelchair

But it is COOL! If I ever get to that point, I hope I can get one.

ibotnow dot com
Read more : A $26,000 wheelchair | Views : 1726 | Replies : 1


Saw new neurologist today

Since my awesome neurologist is out till the 20th, I saw another neuro today, who does not feel that I am in a relapse, as I am not exhibiting new symptoms. He called it a 'flare'.

So that means, 3 days of steroid by IV no taper period, instead of the original 5 and taper. So that's good news.

I talked with him about my burning mouth situation, and he was very familiar with this ...
Read more : Saw new neurologist today | Views : 1590 | Replies : 1


MS Symptom???

I don't want to start thinking every little thing that happens to me is MS-related but this has happened once before.

My skin is painfully touch sensitive, from about the waist down but especially on my thighs. It's really hard to describe but touching my skin hurts - I am sitting in a chair at the moment and the pressure of my thigh on the chair is uncomfortable. It's got to the point that I ...
Read more : MS Symptom??? | Views : 2889 | Replies : 7


Flickering Eye....

Hi,

Just finished with ON but the eye I had it in now flickers a lot. Must be a nerve under eye-lid but I'm not sure.

Anyone else got this ( esp after ON?)

Thanks
Read more : Flickering Eye.... | Views : 6431 | Replies : 18


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You've probably heard it but.....

I finally am making some progress and just had a great telephone call with a neuro-physiotherapist who has told me that doing stuff like Pilates and working with a gym ball will improve my core stability and will make life easier if/when I have another relapse.

Thought I'd share it in case it hadn't been heard before. It's news to me!
Read more : You've probably heard it but..... | Views : 2003 | Replies : 5


Pregnacy, hormone therapy and MS

Our gynecologict wants to give my wife clomiphane citrate and chorionic gonadotropin hormone (Pregnyl) in order to increase her fertility as she tries to get pregnant.
I have read two trials about clomiphane that suggest against it in MS due to increased relapse rate after therapy but can't find something for HCG, one big trial says it stops type II diavetes progression while other small study says it may increase relapses, what to believe?
Her ...
Read more : Pregnacy, hormone therapy and MS | Views : 1530 | Replies : 0


Future of MS Research talk

On Monday evening, Professor Robin Franklin (one of the top MS researchers in the UK) gave a presentation on the future of MS research. I didn't attend, but an attendee posted this summary on the UK MS Society website. Thought it may be of interest.

Ian

The Future of MS (MSS talk 12 May 2008)

This was an excellent talk last night by Professor Robin Franklin from the Cambridge Myelin Repair Project whose team works ...
Read more : Future of MS Research talk | Views : 1719 | Replies : 0


Experience Project

Interesting...so Arron = Armen Berjikly?


Experience Project reaches a million user posts in a year, raises $3 million

May 13th, 2008 - Experience Project has quietly drawn a big community of people who share life experiences with each other anonymously. Since it started a little more than a year ago, users have created a million distinct experiences on intimate subjects such as “I live in a sexless marriage.” The company has raised $3 million in ...
Read more : Experience Project | Views : 2399 | Replies : 5


Headaches

Haven't had one like this in a long time. In fact, I can't recall if I have had one quite like this.

I started my Copaxone 3 days ago (3rd injection today). I'm also taking tetracycline for an acne issue.

Woke up with a bit of a headache, that never went away after taking 2 extra strength Tylenol. Due to various reasons, I couldn't just roll over and go back to sleep. I also got ...
Read more : Headaches | Views : 5087 | Replies : 41


 

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