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If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

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 Post subject: Boston Cure
PostPosted: Fri Jan 28, 2005 11:20 am 
http://www.bostoncure.org/msresources/l ... interviews

Interesting article on LDN clinical trials

Hope everyone is well!!


Cathy

Read more : Boston Cure | Views : 1252 | Replies : 0

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 Post subject: MS and siblings
PostPosted: Wed Jan 26, 2005 12:44 pm 
Dear all,

Another piece of research attached. This time they conclude that the risk of ms is reduced if you have lots of younger siblings.

Again, one has to wonder what use this is to those who have ms. Given other research findings you really don't want to be a female, born in May and a single child! (although I am male, born in March and have a twin sister)

Bromley



HAVING lots of younger ...

Read more : MS and siblings | Views : 1301 | Replies : 2

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 Post subject: Trial funding
PostPosted: Tue Jan 25, 2005 8:26 am 
Shall we put our heads together and brainstorm ways that funding can be found for trials that are meaningful to the MS community but not necessarily for the big pharma companies? We currently have these big pharmas funding a trail of rebif vs. copaxone (<sarcasm>so that we can find out that one is 30.13% effective and the other is 30.12% effective</sarcasm>). Who cares!!!??? What about trials for antibiotics, LDN, and so many others? Yes, I ...

Read more : Trial funding | Views : 1469 | Replies : 3

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 Post subject: Something to think about
PostPosted: Tue Jan 25, 2005 7:40 am 
Professor Janet Polivy at Department of Psychology, University of Toronto has developed a theory about False Hope Syndrome which she has applied to those faddy diets one sees in magazines and cheap TV programmes.
Quote:
People appear to behave paradoxically, by persisting in repeated self-change attempts despite previous failures. It is argued, though, that self-change attempts provide some initial rewards even when unsuccessful. Feelings of control and optimism often accompany the early stages of self-modification efforts. ...

Read more : Something to think about | Views : 1735 | Replies : 10

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 Post subject: LDN Survey Form
PostPosted: Mon Jan 24, 2005 6:45 am 
Well, we made it to the 200 mark, many thanks to you all, it is very much appreciated by all in The Trust. The results should appear on the Trust site later today. www.ldnresearchtrust.org :D

Lorna

Read more : LDN Survey Form | Views : 1170 | Replies : 0

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 Post subject: Experiences with pioglitazone ?
PostPosted: Mon Jan 24, 2005 5:54 am 
http://www.jneuroinflammation.com/content/1/1/3

Effect of pioglitazone treatment in a patient with secondary multiple sclerosis

This article tells the story of a person with very progressive MS who became stable (and even better) after taking Pioglitazone.

Questions :
- Are there diabetic MS patients who for the diabetic had to take pioglitazone and felt improvements on the MS as well ?
- Other MS patients already on PIO ? What is the ...

Read more : Experiences with pioglitazone ? | Views : 1227 | Replies : 3

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 Post subject: Iron compunds and ms
PostPosted: Sun Jan 23, 2005 10:16 am 
Dear all,

The role of iron in cns degenerative diseases has been discussed before on this site. The attached BBC article should be of interest.

Bromley


http://news.bbc.co.uk/1/hi/health/4184417.stm

Read more : Iron compunds and ms | Views : 1189 | Replies : 2

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 Post subject: Moving from Italy to Canada to work...
PostPosted: Sat Jan 22, 2005 9:48 am 
Hi everybody!
I´m new here and I hope some of you can help me.
I have a question: I would like to move to canada for working reasons (I´m from Italy). And, of course, the problem is how to get Rebif over there without spending all my money. So the question is if anybody knows somebody that moved from Europe to America and how they could deal with burocratical stuff and money. I´ve already asked ...

Read more : Moving from Italy to Canada to work... | Views : 1252 | Replies : 2

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 Post subject: LDN Survey Form
PostPosted: Sat Jan 22, 2005 6:24 am 
Many thanks to all you folk who have taken the time to fill out the form.....The LDN Trust appreciates all your input. They only need 10 more to reach 200, so if you haven`t already completed the form, please, please do it now. www.ldnresearchtrust.org

Lorna

Read more : LDN Survey Form | Views : 1124 | Replies : 0

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 Post subject: Lesion Load
PostPosted: Fri Jan 21, 2005 12:13 pm 
What have your MRI's shown?

...could you please cut and past the poll and fill in the blanks?

Thanks,
Rev. Leonidas

Read more : Lesion Load | Views : 2995 | Replies : 14

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