The "human interest" side of this whole Tysabri thing is fascinating (and somewhat troubling).

Tysabri was approved for mild or RRMS, not any type of progressive MS (which progressive types don't usually involve inflammation anyway). We have now gotten "indication", not proof yet, but definite "indication" that Tysabri may be a little risky.

Ok, people with mild or RRMS are showing themselves (at least to me) to be extremely more "desperate" than is rational given ...

Some of you may know that in the week before the London Marathon there is the Flora London Marathon Exhibition at the Excel Centre in Docklands from 13th to the 16th April.

Here all Marathon runners register and pick up their running numbers and "chips" for their shoes.

Also there is a massive exhibition by all the sportswear companies, charities etc.

The MRSC have a stall at this Exhibition, and they have a prime position. ...

www.btinternet.com/~squiffyshouseoffun/marathon.htm

:O)

Oh, and the total has gone up quite dramatcally:O)

http://www.justgiving.com/squiffysmarathon

Thanks to everyone who has donated so far, I have 6 weeks left to raise that total to the aimed for £15,000, so please spread the word!

squiffs :O)

I read something recently this brings on a query regarding nondigestible food compounds: pre- and probiotics. Doctor Steven Pratt, M.D. of the Scripps Clinic in San Diego says that there are many double blind, placebo-controlled human trials that show that the synergy of pre- and probiotic food compounds promote health and fight disease. One such study shows that there is a clear sign that probiotics modulate the immune system (bornet, F.R.J., et. al. Immune-stimulating and ...

Dear all,

What a week - first they sensibly pull Tysabri (which 'looked good' for RR ms sufferers) and then Aimspro (which 'looked good' for those with SP). And there's no treatment for PP ms sufferers. And 2005 was potentially looking promising.

I notice that poor old Aaron has removed the keep the faith front page posting. Did we have any in the first place?

The Tysabri situation is likely to have major implications for ...

Hey all,

I know everybody's really bum'd this week about the Tysabri and now the Amspro news, but I was surfing around this morning and saw this article that a college freshman had written. His name is Ryan Stumpf and he goes to Millersville University in Pennsylvania. His article made me smile because there's this 18 or 19 year old kid somewhere doing everything he can to spread the word and raise money to help ...

As I always do, I get on the NJ Transit bus, give the driver my ticket and show my Disabled ID to not have any trouble.

I sat down.

After several minutes of idling at the Willowbrook Park & Ride, the driver comes to the back of the bus and says loudly I have to show ID making everyone aware of the situation.

As I am retreiving my ID from my pocket, I told him ...

:oops:

I dont know what to do next. With the recall of Tysabri my state of mind has changed from one of optimism, to one of despair. I was diagnosed with relapsing remmiting MS about 1 1/2 year ago. I started on Avonex, took it for a year durring which I would have pretty regular flare ups, and my MRI's showed more and more gadolinium enhancement. I ...

Hi, everyone.

As you may have noticed in other posts, another opportunity to get our voices finally heard in relationship to the MS cause and the plight of MS sufferers has presented itself. The media has come to us!

I have spoken with John Lauerman from the Bloomberg News. He is doing a news piece and therefore is currently focused on MS (as a result of the Tysabri matter) and would like to interview those ...

Just a reminder to everybody that March is Multiple Sclerosis Awareness Month.

I need to complain. :!: Other Diseases (like Breast cancer for example) get sooo much attention. Commercials, Radio air time, Posters etc., while you never hear anything about MS. I mean the whole idea of a National MS awareness month is to spread the word and educate right? How come I never see or hear ...