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If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

To us

Well it’s a new year and we all still have ms, I was thinking how we always are looking for better things to come in the future which I’m sure will happen but tonight one of the toasts you make should be to us the ones that live with this no matter how mild or severe your symptoms. They all put stress on us; they all change our lives in some way. We are surrounded ...
Read more : To us | Views : 1914 | Replies : 9


Anyone have experience with Destination Cure?

I was thinking about getting into contact with this group if I am able to continue my running after I start rebif. I don't run marathons but perhaps I could use the races I do run to raise money/awareness for MS research etc.
Read more : Anyone have experience with Destination Cure? | Views : 1939 | Replies : 6


Non-ON Eye Strain?

I was wondering if my good eye could be straining itself since my ON eye has such bad vision. Sometimes especially late in the day and especially in poor lighting, I don't feel like I'm seeing as well as I should be and I get worried about my eyes. I also really only notice it at a distance but this is a recent development so I'm worried that my good eye will start to go ...
Read more : Non-ON Eye Strain? | Views : 1464 | Replies : 4


ANTIBIOTIC IN ADDITION TO INTERFERON MAY SLOW MS

A new study suggests that taking an antibiotic in combination with interferon beta 1-a, a current disease-modifying medication for MS, could slow progression of the disease. Published in the online issue of the Archives of Neurology, the study was conducted by Dr Alireza Minagar and colleagues from the Louisiana State University Health Sciences Center, Shreveport. Interferon beta 1-a (Avonex) is injected into the muscle and is usually taken once a week. Although it is not ...
Read more : ANTIBIOTIC IN ADDITION TO INTERFERON MAY SLOW MS | Views : 1526 | Replies : 1


Newbie questions....

Hello. I was recently diagnosed this past Friday (still waiting on 1/2 of the spinal fluid results) with MS.

Are nausea, diarrhea and loss of appetite symptoms from MS? It seems since my first attack on Thursday every time I've had a bowel movement I've just had the worst diarrhea. Since returning home the diarrhea has remain and joined by just nausea and intestinal uneasyness.

I've read that bowel control can be an issue but ...
Read more : Newbie questions.... | Views : 8077 | Replies : 55


toes tingling and numbness

Hi there- it's me again! still recovering from the lp- doing fine with no headache, just a little sore back.

For the last few days my toes on my left foot have been feeling like there is a hair or something wrapped around them- mostly the big toe. I get a little in the right toes- then yesterday, my toes got cold and the third and fourth toes went totally numb on each foot for ...
Read more : toes tingling and numbness | Views : 5966 | Replies : 2


BROMLEY AND RAVEN QUESTIONS

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Read more : BROMLEY AND RAVEN QUESTIONS | Views : 1781 | Replies : 6


Alexithymia in multiple sclerosis

Alexithymia in multiple sclerosis: relationship with fatigue and depression.

Bodini B, Mandarelli G, Tomassini V, Tarsitani L, Pestalozza I, Gasperini C, Lenzi GL, Pancheri P, Pozzilli C.

Department of Neurological Sciences, ‘Sapienza’ University of Rome, Italy.

Objective - The aim of this study was to investigate the prevalence of alexithymia in a sample of patients with multiple sclerosis (MS) and to further evaluate the association between alexithymia and the occurrence of common disabling MS-related symptoms ...
Read more : Alexithymia in multiple sclerosis | Views : 1686 | Replies : 0


Show of hands... MS vs. Metabolic

I realize we have the superest autoimmune disease, but how many of you think there may be some connection to a metabolic disorder?

It seems like everyone I meet has an aunt, a friend, a mother or a grandmother with MS.

Now that I stop and think about it.... maybe we really "are what we eat"....

But I also have a theory that, unfortunately our ancestors indulgence may make our enzymes not float so well. ...
Read more : Show of hands... MS vs. Metabolic | Views : 1694 | Replies : 4


Does anyone else ever get an odor emitting from their face?

Since I was about fifteen I've noticed that after eating anything (especially fatty foods, it's much worse) that I get a sort of stinky fatty oil smell emitting from the pores of my face around my nose and chin and cheek bones. All I have to do is rub my face and I can smell it on my hand.

It is definately something internal, because I can wash my face until it is chapped and ...
Read more : Does anyone else ever get an odor emitting from their face? | Views : 13933 | Replies : 7


 

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