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If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

participating in drugs trials - thoughts?

I have just discovered a local company that are doing trials of new MS drugs and are looking for participants (paying nice money too). What are your thoughts. Has anyone been involved in trials? What are the risks?

Failing that they will still pay money for my blood! I finally found an upside to MS!
Read more : participating in drugs trials - thoughts? | Views : 1522 | Replies : 2


cheering you up

so, cheer's away for a bit. she has asked me to take on cheering you guys up if needed, in her absence. so if any of you need electronic hugs or something, i'm on it. never mind the scary avatar, it doesn't bite
<HUGZ>thisisms</HUGZ>
Read more : cheering you up | Views : 1391 | Replies : 4


Hands

This disease is so cruel. Spent the last four years worrying about walking. Now having an attack that's left nerve damage affecting my hands. They're weak, uncoordinated, and hyper-sensitive simultaneously. F***! 3 days of IV prednisone improved the symptoms from unbearable to awful. Whoopidy f***in doo! Showering is an adventure. Wiping my ass is harder than astro-physics. (Sorry). It's been three weeks. I'm a desk jockey; never thought an I'd have an injury resulting in ...
Read more : Hands | Views : 1707 | Replies : 5


shortness of breath

I was diagnosed with RRMS about 9 years ago, and have had a pretty easy go of it. My concern relates to chronic persistent shortness of breath I've experienced for about a year now; it seems to be worsened while doing exercises involving changing my head elevation. For example, when I do squats in the gym with a moderate amount of weight, I feel very lightheaded, dizzy, and of course short of breath. I even ...
Read more : shortness of breath | Views : 14985 | Replies : 21


Getting to Grips with MS

The local branch of the MS Society is runnign a course called 'getting to grips' - It starts next week and will run for 6 weeks, one evening a week. There will be neuros, MS sufferers, the local MS therapy centre etc coming to talk.

In the first week there is an opportunity to write down questions for the neuro to answer the following week. Any suggestions on what to ask - the truth is ...
Read more : Getting to Grips with MS | Views : 1554 | Replies : 8


Primary Vs Secondary Blepharospasm

Primary Vs Secondary Blepharospasm / Brain-damage-induced Vs Non-brain-damage-induced Eyelid-twitching / Eye-blinking



Please refer to the following medical explanations entitled 'Primary Vs Secondary Blepharospasm' which is actually an excerpt of my reply to the other party and I hope that the information given will be useful to the intended readers. Thank you.


Quotation :


" 'However, from this posting I have much more clearly understood that your blepharospasm symptoms are a form of secondary blepharospasm, not ...
Read more : Primary Vs Secondary Blepharospasm | Views : 4795 | Replies : 10


Fall is coming!

I've always been a fan of fall with the weather, holidays, and scenery it brings but this year is more significant to me. Even though we had a relatively mild summer the heat was really starting to get to me. I'm thankful that all I had was decreased energy and increased grogginess but the onset of the lower temperatures has me happy. I will have the ambition to get out and do the things I ...
Read more : Fall is coming! | Views : 1754 | Replies : 1


MS and taking Cipro

My FNP thought I had a UTI and placed me on Cipro. When my MS Nurse found out she said stop the Cipro because it's not a drug for people with MS to take. Now Im a Nurse and I never heard that, course I'm not an expert by any means on MS infact Im rather clueless about it and am learning painfully slow about this monster called MS.

Well I think the UTI is ...
Read more : MS and taking Cipro | Views : 4450 | Replies : 7


prednisone

if spms has constant mild inflammation then would prednisone help if you were on it full time ?
Read more : prednisone | Views : 18550 | Replies : 126


Stressed Out!

Good grief, I am stressed and it is making me want to scream.

I work in the mortgage industry and things are coming apart at the seams. All this just make my MS go crazy.

Will I have a job tomorrow or not? Will I have insurance tomorrow or not? Can I find another job? If I do will the insurance cover my MS meds? What next??

Any suggestions?? Thanks for letting me vent....

CF
Read more : Stressed Out! | Views : 1517 | Replies : 11


 

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