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If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Newbie questions....

Hello. I was recently diagnosed this past Friday (still waiting on 1/2 of the spinal fluid results) with MS.

Are nausea, diarrhea and loss of appetite symptoms from MS? It seems since my first attack on Thursday every time I've had a bowel movement I've just had the worst diarrhea. Since returning home the diarrhea has remain and joined by just nausea and intestinal uneasyness.

I've read that bowel control can be an issue but ...
Read more : Newbie questions.... | Views : 8227 | Replies : 55

toes tingling and numbness

Hi there- it's me again! still recovering from the lp- doing fine with no headache, just a little sore back.

For the last few days my toes on my left foot have been feeling like there is a hair or something wrapped around them- mostly the big toe. I get a little in the right toes- then yesterday, my toes got cold and the third and fourth toes went totally numb on each foot for ...
Read more : toes tingling and numbness | Views : 6468 | Replies : 2


Read more : BROMLEY AND RAVEN QUESTIONS | Views : 1819 | Replies : 6

Alexithymia in multiple sclerosis

Alexithymia in multiple sclerosis: relationship with fatigue and depression.

Bodini B, Mandarelli G, Tomassini V, Tarsitani L, Pestalozza I, Gasperini C, Lenzi GL, Pancheri P, Pozzilli C.

Department of Neurological Sciences, ‘Sapienza’ University of Rome, Italy.

Objective - The aim of this study was to investigate the prevalence of alexithymia in a sample of patients with multiple sclerosis (MS) and to further evaluate the association between alexithymia and the occurrence of common disabling MS-related symptoms ...
Read more : Alexithymia in multiple sclerosis | Views : 1719 | Replies : 0

Show of hands... MS vs. Metabolic

I realize we have the superest autoimmune disease, but how many of you think there may be some connection to a metabolic disorder?

It seems like everyone I meet has an aunt, a friend, a mother or a grandmother with MS.

Now that I stop and think about it.... maybe we really "are what we eat"....

But I also have a theory that, unfortunately our ancestors indulgence may make our enzymes not float so well. ...
Read more : Show of hands... MS vs. Metabolic | Views : 1751 | Replies : 4

Does anyone else ever get an odor emitting from their face?

Since I was about fifteen I've noticed that after eating anything (especially fatty foods, it's much worse) that I get a sort of stinky fatty oil smell emitting from the pores of my face around my nose and chin and cheek bones. All I have to do is rub my face and I can smell it on my hand.

It is definately something internal, because I can wash my face until it is chapped and ...
Read more : Does anyone else ever get an odor emitting from their face? | Views : 18342 | Replies : 7

does flu = relapse?

I'm at home with the flu :(

The last time I had the stomach flu was 3 years ago and right before my dx. I ended up in the hospital for 3 days with dehydration. I think I've read some prior posts that indicated others have experienced relapses while dealing with the flu. Needless to say...I'm worried. I haven't left bed, just trying to get rest and ...
Read more : does flu = relapse? | Views : 3545 | Replies : 6

Doctor Appointment Frequency

I have a question. How often does your doctor want to see you for follow-up appointments to get prescriptions renewed? Ever since I was diagnosed I have gone in yearly. This time I was asked to come back in six months even though I am doing well and am not having any problems right now. I asked him if I could come back in a year instead of six months and he said yes. ...
Read more : Doctor Appointment Frequency | Views : 2102 | Replies : 8

News on the stem cell front

After I "made" this post, I remembered we have a Stem Cell thread, so this probably belongs there. ... _article=1

It was the kind of breakthrough scientists had dreamed of for decades and its promise to help cure disease appears to be fast on the way to being realized.
Researchers in November announced they were able to turn the clock back on skin cells and transform them into ...
Read more : News on the stem cell front | Views : 1429 | Replies : 1

Getting better too quickly... is it a bad thing?

I'm getting better rapidly from my MS. I've been taking n-acetylglucosamine (no clinical trials, just my own) for two weeks and the healing is staggering to me. Note: I am also on Copaxone, but have had no signs of improvement in the past few months. I immeditely starting seeing results from this n-acety stuff.

I am getting everything back extremely quick and it's kind of scaring me. I have heard that tysabri in combination with ...
Read more : Getting better too quickly... is it a bad thing? | Views : 28835 | Replies : 73


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