This Is MS Multiple Sclerosis Community: Knowledge & Support

Interesting that interferon-gamma plays a role in two of their findings...



Scientists Identify Molecular ''Switches'' Affecting Myelin Repair in Multiple Sclerosis

Business Wire -- June 14, 2005 -- The Myelin Repair Foundation today announced that its collaboration of five of the world's leading neuroscientists has identified three new "switches," or signals, operating in the brain and spinal column that appear to turn on and off the nerve cell's ability to repair myelin. Myelin is the ...

It looks very involved. I'm wondering if anyone's tried it, and/or if there has been any research here.

http://thecompounder.com/diseaseklennerpaper.html

Thanks,
-- Paul

Dear all,

It's early days but given that our brains shrink with MS we may be grateful in the future for a top up of brain cells.

Bromley


http://news.bbc.co.uk/1/hi/health/4087202.stm

Hello All!

I'm trying to compile a list of all the devices that people w/MS are finding useful for mobility, daily living, exercise, etc.

This started as an attempt to figure out if an electrical stimulation device might be good for exercising legs and/or mobility, but then I started seeing pulsed magnetic therapy devices marketed at people w/MS.

Is anyone having success with FES/electrical stimulation devices? If so, which ones, and what kind of results. ...

I've got a question, which is, has anyone seen any kind of ranking of MS Clinics in the US, in terms of their diagnostic services, research programs, integration of client care etc.

I know that US News and World Report does a much quoted ranking of hospitals in US...but of course it doesn't deal at clinic level.

Any information will be welcome.

Wondering how many folks out there are taking antidepressants, whether depression seemed to be the result of MS diagnosis or otherwise.

I have struggled with dysthemia, characterized as chronic mild depression, for years. Attempted to fight it without medication with mixed results. When I got optic neuritis last December and did steroid treatment, I went through a period of elation followed by crushing, debilitating depression. Could have been the steroids, but I don't think so. ...

The Guardian is reporting today:

Cannabis spray for MS patients refused licence

... there had been great expectations of the medicine, produced as a nasal spray called Sativex, which had been undergoing trials for several years.

But the Medicines and Healthcare Products Regulatory Authority announced that the licence application to treat spasticity filed by GW Pharmaceuticals, which designed and manufactured the drug, had been turned down on appeal. The MHRA said there was not enough ...

N ENGL J MED 10.1056/NEJMe058123
The
new england journal
of
medicine
1
editorial
Patients at Risk
Jeffrey M. Drazen, M.D.
In clinical trials, the term “patients at risk” refers
to the altruistic people who volunteer to participate
in studies of novel treatments. In this issue of
the
Journal,
three reports
1-3
provide details about
patients who were participating in trials involving
experimental treatment with natalizumab for either
multiple sclerosis or Crohn’s disease and who
were ...

Since this is talking about all CRABs, I put it under "General Discussion"...



Copaxone(R) produced significantly greater reduction in relapse rate compared to beta interferon therapies

Robust treatment effects similar to pivotal trials demonstrate value of retrospective database comparison studies in mirroring clinical practice

June 9 -- CNW Telbec -- Results from a still on-going independent study published in the European Journal of Neurology demonstrate COPAXONE(R) (glatiramer acetate injection) is associated with lower relapse rates ...

Hello,

My husband has recently been dx with PPMS. He started with a limp about 2 yrs ago. I only really noticed it becoming more frequent last July. I kept asking him about it and he said it was nothing. He is 46 y/o and I figured a big boy so I didn't do anything about it. Well, 2 months ago I asked him about again and why he wasn't exercising. He said when he ...