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If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Who has the most accurate numbers?

I keep hearing the numbers 300,000 to 500,000 people in the U.S. have MS, and about 2.5 million worldwide, is the estimate. Seems terribly low, and I know others on this board have mentioned under-reporting in those figures.

I also understand that Montel Williams, the host of a national talk show who was diagnosed with MS and went public in 1999, has said something about under-reporing. Indeed, his personal statement on his site says "The ...
Read more : Who has the most accurate numbers? | Views : 909 | Replies : 2


MS YAHOO GROUP! Free to Join

If you have not already, check out multiplesclerosispolls yahoo group. I've been a member for almost a year. The more members that join the better the group!

Here is the link:

http://health.groups.yahoo.com/group/mu ... osispolls/
Read more : MS YAHOO GROUP! Free to Join | Views : 1029 | Replies : 0


Shot-Night Numero Uno

(By the way, I'm going to post this kind of stuff in my journal from now on but leave it public, in case any of you wish to read it.)

A nurse came to my house, we filled out a bunch of paperwork, then she showed me how to stick a needle into a mango (usually it’s oranges or apples, she said, but a mango was all I had—we agreed it seemed more like human ...
Read more : Shot-Night Numero Uno | Views : 872 | Replies : 1


Who do you tell?

I recently worked with a woman on a short-term basis. Intelligent, an elder stateswoman in my field, and the sort of person who has the tendency to talk as if you're having a conversation and then not listen as you respond.

At the beginning of our assignment, she was catching a cold and inevitably, by the end, I had picked it up. She gave me her remaining cough drops and condolences, saying something to the ...
Read more : Who do you tell? | Views : 2917 | Replies : 15


Tryptophan trial

The following article claims that a human trial of Tryptophan is being planned (given how MS researchers work we're probably looking at 2-3 years before any results).

http://c.moreover.com/click/here.pl?j420779767&w=464753

The quote I love is: "There are many drugs tested in this mouse model that never pan out. But it's certainly worth testing."

Now it might just be me, but even though my brain is gradually shrinking (the technical term is ...
Read more : Tryptophan trial | Views : 1108 | Replies : 2


New health-focused search engine

Came across this the other day. It's a completely health-focused search engine that doctors help build and is run by medical information specialists.

healthline.com

P.S. I already told them in their feedback area that they need an MS channel, since they don't currently have one. You might do the same so that they know we're out there.
Read more : New health-focused search engine | Views : 778 | Replies : 0


Beware the power of placebo

My favorite part of the article about Sativex below, "Three patients (11 percent) withdrew from the placebo group after experiencing adverse events they associated with treatment."

I think this is promising because they also noticed a reduction in relapses in one of the the MS trials they did for Sativex, although the trial wasn't designed to look at relapses and the numbers were too small to draw firm conclusions. This is actually a case where ...
Read more : Beware the power of placebo | Views : 2310 | Replies : 7


unusual

good afternoon everyone...just a question is it unusual for things to take so long in getting diagnosed...i have had problems for almost three months and seem to get slowly worse but nothing is showing up on anything...last thing i am doing is a neuropysch battery test..as he calls....so does it normally take this long or is it just me and my situation....kinda of frustrating for me..... :( ...
Read more : unusual | Views : 1184 | Replies : 6


Vitamin D

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Vitamin D Intake Vital for Bone Health
By Ed Edelson
HealthDay Reporter


TUESDAY, Nov. 8 (HealthDay News) -- A new Icelandic study bolsters recommendations that vitamin D supplementation should be increased to help promote bone health and ward off diseases like osteoporosis, American experts say.

"Our data suggest that vitamin D sufficiency ...
Read more : Vitamin D | Views : 1115 | Replies : 2


Finish the job

Attached is yet another research article about this disease which like many others is a statement of the bloody obvious - I could have written it.

I might submit a research article to see if I could get way with it. Here goes 'MS is a disease of the CNS which destroys myelin, axons and neurones. Current treatments are only moderately effective and future treatments need to protect the CNS from the on-going neuro-degeneration etc ...
Read more : Finish the job | Views : 901 | Replies : 1


 

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