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Oceans of Hope

I don't know if anyone has heard of this organization, but it is worth a search.

It's a group formed in the Netherlands by a Neuropsych. He got some backing from Biogen and bought a 67 foot sailboat. His dream, which has strted is to circumnavigate the earth on the boat manned mostly by folks with MS. He's got 4 regular folks on board as well.
If anyone has dreams to sail, send an application. ...
Read more : Oceans of Hope | Views : 247 | Replies : 0


2014 ACTRIMS/ECTRIMS

For all the breaking #MS news from 2014 ACTRIMS/ECTRIMS please see http://www.ms-uk.org/MSnews
Read more : 2014 ACTRIMS/ECTRIMS | Views : 259 | Replies : 0


Myelin measure in MS tracks patient disability

Whole-brain measures of myelin water fraction (MWF) -- reflecting the amount of myelin present in brain tissue -- correlated significantly with disease duration and disability levels in multiple sclerosis, supporting a role for MWF in patient management and as an outcome in clinical trials, a researcher said here.

In a cross-sectional study of 141 MS patients and 10 neurologically healthy controls, the "skew" of one of two peaks seen in the distribution of MWF across ...
Read more : Myelin measure in MS tracks patient disability | Views : 212 | Replies : 0


Severe optic nerve damage in MS not a hurdle.....

Severe optic nerve damage in MS not a hurdle to some children

There is a clear subset of pediatric patients with demyelinating disease who have substantial damage to the nerve layer in the retina but nevertheless have no vision loss, a new study shows.

"Understanding how this subset of patients recover functionally after optic nerve damage could lead to great insight into best acute treatment options and a better understanding of brain plasticity and neural ...
Read more : Severe optic nerve damage in MS not a hurdle..... | Views : 187 | Replies : 0


Plegridy two year data confirms safety and efficacy in MS

Plegridy two year data confirms safety and efficacy in MS patients

Biogen Idec today announced new data from the second year of its Phase 3 ADVANCE clinical trial that show the positive treatment effects of Plegridy™ (peginterferon beta-1a) were maintained in people with relapsing forms of multiple sclerosis (RMS) beyond the first year of the study. These results were presented at the sixth Triennial Joint Meeting of the Americas Committee for Treatment and Research in ...
Read more : Plegridy two year data confirms safety and efficacy in MS | Views : 269 | Replies : 0


Sanofi aims to grow Genzyme unit with new drugs.....

Sanofi aims to grow Genzyme unit with new drugs and acquisitions

Sanofi rare disease unit Genzyme hopes to become a leader in the multiple sclerosis (MS) field with the help of new products developed in-house but also through acquisitions, senior Genzyme executives told Reuters.

The Cambridge, Massachusetts company is confident in the commercial success of its two MS drugs Lemtrada and Aubagio and is "very active" in its hunt for external growth, Bill Sibold, the ...
Read more : Sanofi aims to grow Genzyme unit with new drugs..... | Views : 194 | Replies : 0


To boost or supress autoimmunity, that is the question

Breaking peripheral immune tolerance to CNS antigens in neurodegenerative diseases: Boosting autoimmunity to fight-off chronic neuroinflammation.

Schwartz M, Baruch K.

Abstract

Immune cell infiltration to the brain's territory was considered for decades to reflect a pathological process in which immune cells attack the central nervous system (CNS); such a process is observed in the inflammatory autoimmune disease, multiple sclerosis (MS).

As neuroinflammatory processes within the CNS parenchyma are also common to other CNS pathologies, regardless ...
Read more : To boost or supress autoimmunity, that is the question | Views : 259 | Replies : 1


People with multiple sclerosis lose myelin in grey matter

People with multiple sclerosis (MS) lose myelin in the grey matter of their brains and the loss is closely correlated with the severity of the disease, according to a new magnetic resonance imaging (MRI) study. Researchers said the findings could have important applications in clinical trials and treatment monitoring. The study appears online in the journal Radiology.

Loss of myelin, the fatty protective sheath around nerve fibres, is a characteristic of MS, an inflammatory disease ...
Read more : People with multiple sclerosis lose myelin in grey matter | Views : 275 | Replies : 2


New international MS survey results published

New International Survey Finds MS Patients and Neurologists View Communication Positively, Yet Struggle to Discuss Key MS Symptoms.

– Neurologists Underestimate Patient Discomfort with Discussing More Typical Symptoms
– Patients Most Uncomfortable Engaging in Candid Dialogue about More Private Symptoms
– Patients and Physicians Not Always Aligned........ Read More - http://www.ms-uk.org/qol
Read more : New international MS survey results published | Views : 174 | Replies : 0


Visual system as a predictor of change from CIS to MS

Evaluation of visual structural and functional factors that predict the development of multiple sclerosis in clinically isolated syndrome patients.

Perez-Rico C, Ayuso-Peralta L, Rubio-Pérez L, Roldán-Díaz I, Arévalo-Serrano J, Jiménez Jurado D, Blanco R.

Abstract

PURPOSE. To evaluate visual pathway structure and function in patients with clinical isolated syndrome (CIS) using spectral domain optical coherence tomography (OCT) and multifocal visual evoked potentials (mfVEP), predicting CIS conversion to clinically definite multiple sclerosis (MS).

METHODS. This observational, ...
Read more : Visual system as a predictor of change from CIS to MS | Views : 178 | Replies : 0


 

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