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hello all,

had a few questions, was wondering if all of you who have rrms, could let me know how often you have experienced exaserbations? do you find it difficult to do daily chores?

i am asking because i was dx'ed with rr and am wondering if misdx'ed, i am going to see a new neuro next week, as insurance forced me to change but i believe is for best, as my other neuro has ...
Read more : RRMS | Views : 1944 | Replies : 6

Professor George Ebers

Dear all,

The UK MS Society website has an interview with Professor George Ebers of Oxford University. In terms of what the future might hold he said that:

'At present we can prevent relapses, in the future we will be able to prevent disability and I think it very likely that there will be a plausible prevention strategy in the next 1-2 years'.

No detail on what this prevention strategy might include - I'm not ...
Read more : Professor George Ebers | Views : 5898 | Replies : 52

Totally emotional

I am speechless!

My employer, and the intenational employees have just donated £1500 towards my Marathon attempt.

I have had to raise my total expected now to £5000!


To say that the "emotional lability" had kicked in would be an understatement! Stupid MS symptom in a man I think,,,,,,,,

squiffs :P
Read more : Totally emotional | Views : 1461 | Replies : 3


Beware of the "Marshall Protocol" of which you can find out more in the Antibiotics forum, so I won't repeat it here.

Read more : Warning | Views : 1273 | Replies : 0

can someone help translate this into English?

I can recognize when I am over my head! Please help me understand this:

Antibodies against OspA epitopes of Borrelia burgdorferi cross-react with neural tissue ... 9ebac2011e

Neurological sequela of chronic Lyme disease include
encephalopathy, myelopathy and peripheral neuropathy.
These have generally been attributed to either persistent infection
or pathogen-induced autoimmunity. In this study, we investigated
the presence of cross-reactive human neural epitopes that share
amino acid sequences ...
Read more : can someone help translate this into English? | Views : 1225 | Replies : 1

Larry King Show on MS

Did anyone record the Larry King show on Monday, January 17th, which was all about M.S.? I didn't and would like to geet a copy of it.

Also, I just got the first treatment of Tysabri this week, so will keep you all posted. So far, so good!
Read more : Larry King Show on MS | Views : 1419 | Replies : 2

London Marathon Blog

Just to let you guys now, I have set up a Marathon Blog for my Marathon training.:O) ... rathon.htm

So if you want to keep up to date with my tribulations on the way to the Mall on April 17th, here is where you'll read it first, oh and if you feel like giving some monetary encouragement, there is a link to my JustGiving page in aid of ...
Read more : London Marathon Blog | Views : 1013 | Replies : 3

Boston Cure ... interviews

Interesting article on LDN clinical trials

Hope everyone is well!!

Read more : Boston Cure | Views : 1331 | Replies : 0

MS and siblings

Dear all,

Another piece of research attached. This time they conclude that the risk of ms is reduced if you have lots of younger siblings.

Again, one has to wonder what use this is to those who have ms. Given other research findings you really don't want to be a female, born in May and a single child! (although I am male, born in March and have a twin sister)


HAVING lots of younger ...
Read more : MS and siblings | Views : 1381 | Replies : 2

Trial funding

Shall we put our heads together and brainstorm ways that funding can be found for trials that are meaningful to the MS community but not necessarily for the big pharma companies? We currently have these big pharmas funding a trail of rebif vs. copaxone (<sarcasm>so that we can find out that one is 30.13% effective and the other is 30.12% effective</sarcasm>). Who cares!!!??? What about trials for antibiotics, LDN, and so many others? Yes, I ...
Read more : Trial funding | Views : 1539 | Replies : 3


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