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Gilenya, or Fingolimod, is the first approved oral disease modifying drug for MS.

Doubt about cannabinoids and fingolimod


I'm a diagnosed MS patient for around 7 years or so. I've been taking Interferon B1a, first 44mu and now 22mu throughout all this time.

Around a week ago I discovered I had another relapse and the doctor recommended me to start with Fingolimod. But the first thing I did after that was checking Wikipedia and got to this quote:

Fingolimod has also been reported to be a cannabinoid receptor antagonist

Does that mean ...
Read more : Doubt about cannabinoids and fingolimod | Views : 2093 | Replies : 1

Gilenya and increased frequency of urination?

Hi -
I just started taking Gilenya a month ago, and thought I had developed a UTI. Cultures are negative, but I have been using the bathroom at least twice an hour over the past several days. Definitely worse shortly after I take my meds, and dissipates before I am ready for my next dosage. Has anyone else experienced this, and if so, how did you manage it? I'm happy with Gilenya otherwise....
Read more : Gilenya and increased frequency of urination? | Views : 1851 | Replies : 2

Gilenya and rash

Hi everyone,
I started Gilenya on January 20th. About two weeks ago I noticed a rash that has now spread all over my body (small itchy bumps that are hard to see, but can be felt). Last week my neuro wanted me to start a once every other day dose and take benadryl at night. One week later and no improvements so they're taking me off it. Has anyone else had this reaction? I had ...
Read more : Gilenya and rash | Views : 1898 | Replies : 0

Gilenya appears to have an effect on B-Cells in MS

Differential effects of fingolimod on B-cell populations in multiple sclerosis.... Read More -
Read more : Gilenya appears to have an effect on B-Cells in MS | Views : 1808 | Replies : 0

Starting Gilenya soon

I have been on Avonex, Rebif, Tysabri, Tecfidera & Copaxone. I am currently on Copaxone. I can't wait to start Gilenya. The lumps and itching drives me crazy.
I am still waiting to have my EKG, eye exam and blood work. I am going to get three ekg's. Is this standard? My neuro wants an EKG, blood work and the eye exam before filling out the paperwork and sending in to Novartis.
This seems like ...
Read more : Starting Gilenya soon | Views : 2523 | Replies : 3

Best decision I ever made!

I've been on Gilenya for 4 years now (reluctantly started in the clinical trial because I ran out of DMD options) and I've never felt better. I've had improvements in some of my MS symptoms and can't say enough about this drug. No more shots is a big plus but I've also had few side effects. I did have two upper respiratory infections I couldn't shake, so my neuro suggested I try the modified dosage ...
Read more : Best decision I ever made! | Views : 2616 | Replies : 3

So far a positive experience

Disclaimer: I have only been on Gilenya for about two weeks. But in the midst of all the scary stories, I want readers to know that I have no side effects; nor did my heart rate decrease very much during my 6-hour observation period. Gilenya also has the Go! program which will pay your copay - up to, I believe, $12,000 a year. I think just about anyone qualifies, since the drug is so new ...
Read more : So far a positive experience | Views : 1848 | Replies : 0

Upset stomach

I'm on day 4 of Gilenya, yesterday I started with an upset stomach. I can't shake it, anyone else have this?
Read more : Upset stomach | Views : 1856 | Replies : 1

FDA continues to investigate possible Gilenya link to PML

FDA continues to investigate possible MS drug Gilenya link to brain infection death

The FDA is continuing to investigate a possible link between the multiple sclerosis drug Gilenya (fingolimod) and a case of a rare brain infection in a European patient.

The patient took the drug for nearly 8 months before being diagnosed with the brain infection. The FDA issued an alert at the end of August to inform the public of its investigation....... Read ...
Read more : FDA continues to investigate possible Gilenya link to PML | Views : 2090 | Replies : 2

Been on Gilenya for 3 weeks

After debating it for what seemed forever, I finally decided to do it! Figured Gilenya is an acceptable option right now. Far from perfect, but still acceptable. Worrying about side effects (increased risk of cancer and liver problems, even PML) will probably never go away, but my mind is made up for now. Will follow closely reports of adverse effects and reevaluate each time. Just have to remind myself that it is not a forever ...
Read more : Been on Gilenya for 3 weeks | Views : 2152 | Replies : 2


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