New members should feel free to introduce themselves here
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Post subject: another newbie Posted: Tue Apr 02, 2013 8:04 am |
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Hi, I have ms for 16 yrs. The first 12 sort of iffy with just one lesion, but a big impact on my body. luckily this improved. now for the the last 4 yrs diagnosis with many. Have been given Rebif and inject with the 22mg as I can't take the 44mg too many side effects. I have a problem with injection site very sore, itchy, lumpy, after 4 years very very fed up with ...
Read more : another newbie | Views : 268 | Replies : 5
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Post subject: To Gilenya or not Gilenya Posted: Mon Apr 01, 2013 6:22 pm |
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Hello,
I was diagnosed with MS 3 months ago after 4 episodes over 8ys, I have been told that it is not known if I have a benign form of MS or not and if or when my MS may progress. It has been suggested to me to start on Gilenya to slow or stop it from progressing any further. I am not sure that I want to do this as the episodes I have ...
Read more : To Gilenya or not Gilenya | Views : 298 | Replies : 3
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Post subject: First Time Caller, Long Time Listener Posted: Sat Mar 30, 2013 9:23 am |
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Have been a long time lurker of this board, and decided to get in the mix. I hope that my contributions may offer help to someone as much as many of the current contributors have helped me. My background is........Male, middle aged, Dx'd in 2010 following optic neuritis brought about by sinus surgery for chronic illness. In hindsight the symptoms of the disease had been around for several years. Within a month of diagnosis, I ...
Read more : First Time Caller, Long Time Listener | Views : 276 | Replies : 3
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Post subject: MS or not MS? That is the question. Posted: Fri Mar 29, 2013 3:37 pm |
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Hi everyone, my name is Christie and I have a lot on my mind. I'm not ready to talk about this to anyone except my direct family at this point so I thought I would come here and make some friends.
I have an MRI set up for Monday and of course, am nervous about what may be found. It's Friday now so when you are scared and waiting that seems like forever. At least ...
Read more : MS or not MS? That is the question. | Views : 403 | Replies : 5
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Post subject: Inspirational new book from across the pond! Posted: Thu Mar 28, 2013 9:09 am |
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I was diagnosed with Relapsing Remitting MS on Christmas Eve 2012 In England. At this traumatic time I took comfort and inspiration from a number of positive quotes I had used in my career as a teacher and considered how I might share them with you. I decided to combine my favourite quotes with inspirational photographs taken by my teenage daughter Jasmine in preparation for her ‘A’ Level in Photography in the UK. The subsequent ...
Read more : Inspirational new book from across the pond! | Views : 195 | Replies : 0
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Post subject: New to ThisIsMS BG12 User Posted: Wed Mar 27, 2013 8:20 pm |
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I am a 54 year old female with RRMS. I was dx'd in 2000 but had MS for about 6 years before that. I didn't use any meds until the BG12 trial which I started in January of 2008 for me so I have been on the correct dose since the start. It was measured against a higher dose, placebo and copaxone.
Since it received FDA approval today, I can now gladly answer any questions ...
Read more : New to ThisIsMS BG12 User | Views : 470 | Replies : 7
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Post subject: DXed twelve days ago. Posted: Tue Mar 26, 2013 8:15 pm |
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Hi everyone, I'm 25 years old and was diagnosed on 3/15 after a couple years of symptoms that seemed unrelated and didn't make much sense. An episode of Bell's palsy, numbness, mild ataxia. I woke up on 3/14 with a terrible headache, vertigo, and was staggering like I was drunk. Next thing I know, I have ten active lesions and have RRMS.
Read more : DXed twelve days ago. | Views : 235 | Replies : 2
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Post subject: Another relapse Posted: Tue Mar 26, 2013 1:29 pm |
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Not sure where to post this exactly, but since it is my first post here, I figured introductions is as good a place as any.
I am a male, 39 year old - diagnosed about 8 years ago. I have been on Avonex consistently since diagnosis. My main symptoms have been numbness in hands (persistent, since 10 years ago), bladder issues (seems like forever), optic neuritis (came and went about 5 years ago) and fatigue ...
Read more : Another relapse | Views : 295 | Replies : 2
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Post subject: Interstitial cystitis and ms(do you have both?I do! Posted: Tue Mar 26, 2013 7:25 am |
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I saw on this site somewhere: a person asking if anyone had both interstitial cystitis and ms.This person wanted to know about pain relief.I have had interstital cystitis for 20 years,and possibly ms for just as long(only officially dx 2 years ago)Yes.There are ways to releive the pain.Have you had any medicine instillations?(DMSO,or cystistat?Have you heard of a medication called elmiron?)These have been known to help.Elmiron is one of the newest out there that I ...
Read more : Interstitial cystitis and ms(do you have both?I do! | Views : 328 | Replies : 7
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Post subject: confirmed,need urgent advice Posted: Mon Mar 25, 2013 8:32 am |
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Hi all, i just had an mri which confirmed lesions and thus MS, you can see from my previous post that it started with ONand corticosteroids fixed that problem, and I thought that was that,but a friend tells me that I must urgently report to a neurologist now that MS is confirmed. Is this true? Aren't I done with therapy for the time being, I received tons of medrol for my eye? Is there some ...
Read more : confirmed,need urgent advice | Views : 264 | Replies : 7
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