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What to make of this....ideas needed!

Hi all, first visit here, I wonder if anyone has any ideas about this?

I have l'hermittes sign.

Following a bout of flu in Feb 2015 I had a spell of dizziness which started my referral an ENT who said labrynthitis, then vestibular neuritis as I had no hearing damage and passed all the audio/visual tests. Told to do a load of neck exercises, vestibular rehabilitation for the ear/balance issue. I reckon 250,000 vigorous ...
Read more : What to make of this....ideas needed! | Views : 843 | Replies : 3

Recent Dx'ed

Hi all -

I am a 33yo male and was Dx'ed with RRMS in Sept 2015, I was having a right eye issue that my eye Dr. couldn't figure out (it wasn't due to ON, it was the location of a lesion) and he kept telling me to ride it out... I went to my primary and he got me an MRI the next week which showed 3 active lesions and 3-4 inactive ones. About ...
Read more : Recent Dx'ed | Views : 762 | Replies : 1

Newly Diagnosed

Hello! I am a twenty-two year old full time mom and a part time worker who is newly diagnosed with RRMS as of yesterday. My MS journey actually began in July of 2013 where I woke up and was seeing double. After going to the eye doctor, they ordered an MRI where lesions on my brain were found and MS was brought up but my eye doctor at the time told me something along the ...
Read more : Newly Diagnosed | Views : 839 | Replies : 2

Multiple Sclerosis Barbie

Hi! I'm newly diagnosed with RRMS, I'm a twenty-three year old college student & mother to my gloriously sassy two year old daughter. I was recently diagnosed after I finally brought up some concerning symptoms I'd been having periodically to my family doctor. My symptoms started in 2014 when my right hand and arm went numb for about two months. The symptoms faded away as mysteriously as they'd come on, and I didn't think much ...
Read more : Multiple Sclerosis Barbie | Views : 1048 | Replies : 9

Hello. New member, glad to be here

I have struggled with majorly poor health for over 10 years. Last June, I learned that I have MS. I have a lot of lesions, and they look like they were primarily laid down in two separate events. Still trying to learn how to tell my Ehler's-Danlos pain from fibro from MS. My neuro wants me on meds, so I am researching them now. I am also HSV+, which I guess can does not play ...
Read more : Hello. New member, glad to be here | Views : 698 | Replies : 2

Hello all

Hi everyone, I'm new here and want to start by saying this seems like a good forum. I don't visit forums much, but I have no friends or family to speak of, so I thought it'd be worthwhile to start communicating with people, even if it is digital, about this nasty thing called MS. I started feeling weird in 2010 while going to university and checked into the hospital. They did ct's, mri's, labs and ...
Read more : Hello all | Views : 774 | Replies : 5

Please read! I am scared and need advice :(

Hello all!

My name is Amy and I was recently diagnosed (two months ago) with clinically definite multiple sclerosis.

I have several active lesions in my brain ...none on my spine so far...but I have developed new symptoms since. I also have positive oligoclonal bands and IG index in CSF.

Two years ago, I started experiencing severe back spasm episodes. They could last a few minutes to about 15 minutes and were extremely severe. Sometimes, ...
Read more : Please read! I am scared and need advice :( | Views : 1785 | Replies : 15


Hi everyone!

I am a 25 year old girl living in Scandinavia(so i apologise in advance for my spelling;)
I was just diagnosed three weeks ago. I have already started on Tecfidera and have finished my 2nd day with the full dose.

Fysically Im doing ok, some minor flushing 3-4 hours after taking my morning dose, a bit tierd(may have somthing to do with the mental stress of de diagnosis and the lack of dayligth ...
Read more : Hopefull | Views : 951 | Replies : 4

Caregiver Turmoil

I am posting here because I just need to vent these emotions whirling around inside me in a place my girl cannot see.

My daughter has incomplete transverse myelitis - she was diagnosed about a year and a half ago with a lesion between C2/C3. The right side of her body was going completely numb from her shoulders down. We have been through series after series of tests and the news is not positive. They ...
Read more : Caregiver Turmoil | Views : 969 | Replies : 4

Just recently Diagnoised after a year of testing

I am new here and I was just diagnoised recently. My doctor gave me a list of meds to research and decide on so that I could talk with him at my next visit in a couople of weeks. I am so confused reading all of this it is very overwhelming. I do not really have many symptoms yet, that is why he wants to start me on something. I have the brain lesions, fatigue ...
Read more : Just recently Diagnoised after a year of testing | Views : 1030 | Replies : 1


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