My husband is still on Imuran and is weaning off of Prednisone. He just quit Rebif as it was making him feel terrible - though his MS specialist said it was all in his head. I'm hoping the new neuro will consider Copaxone and LDN, but I'm worried about the Imuran and how long it will take him to finish weaning from Prednisone.

Any ideas or comments will be greatly appreciated!!

Thanks

Debbie

Anyone experience chest pains their first night on LDN? My husband started last night at 3.0mg and said he felt jittery, had a dry mouth and chest pains. He said it almost felt like indigestion, but it concerns me none the less. Will these other symptoms pass and should we be concerned? Thanks.

Tara

Hello everyone! My husband and I have an appointment this week with an MD who is willing to prescribe LDN. I am just so excited that I found someone locally who was willing to look at the information and support our choice to try it. For all of those that have been on it, is there anything specific that we should know. We just don't know what to expect or how hopeful we should be. ...

I started taking LDN 3mg at bedtime 3 days ago. I've noticed that it causes sleeplessness for me, which is counterproductive when it comes to my symptoms. When I sleep well, I feel much better throughout the day. Everything I've read about LDN says that everyone takes it at bedtime.

My questions are:

1)Does anyone take their dose at anytime other than bedtime (such as in the morning)?

2)Why should I HAVE to take it ...

I don't know if this is a stupid question, or not.

I live close to a local compounding pharmacy who has not compounded LDN but claims they have access to a US national pharmacological resource that provides directions on how they would take the standard dose of Naltrexone to the low-dose weight. I'm not sure who's database they're referring to.

Has anyone dealt with a local pharmacy (US) that has compounded LDN for them as ...

Passing this along ....


Dear Friends,

I have set up an LDN petition: "Sign & Support the campaign for Research & Trials in
'Low Dose Naltrexone for Multiple Sclerosis'"

I am campaigning for LDN with Lorna from Scotland and Linda from England who's working closely with Dr. Bob Lawrence. And I am from the Republic Ireland. We are trying to reach 100,000 signatures, and we need
YOUR HELP!

Please help by signing this petition to ...

Passing this along ....


Dear Friends,

I have set up an LDN petition: "Sign & Support the campaign for Research & Trials in
'Low Dose Naltrexone for Multiple Sclerosis'"

I am campaigning for LDN with Lorna from Scotland and Linda from England who's working closely with Dr. Bob Lawrence. And I am from the Republic Ireland. We are trying to reach 100,000 signatures, and we need
YOUR HELP!

Please help by signing this petition to ...

Hello All

This is my second post and it may seem a bit strange but what I'm looking for is information for our local MS Newsletter. I'm the new editor for it and I also write a column concerning any new research going on in regards to MS. For The May 1 edition I'm planning on writing about LDN. I have 2 motives for choosing this topic.
1. Many of our members are already using ...

could someone briefly explain LDN to me? There is so much out there and my internet connect SUCKS and I get disconnected....I would love it if someone could answer these questions for me...please and thanks!

where did it come from?
does the MS Society recognize it?
when should someone consider taking it?
what makes it different than the other options?

Please take a moment to answer this short survey on LDN:

http://home.earthlink.net/~dflomer/LDN/

You can also view the ongoing results to help you with your LDN research. This may also help sway medical opinion so that a clinical trial on LDN & MS gets underway. Researchers like stats!