This Is MS Multiple Sclerosis Community: Knowledge & Support

We would like to record people's experiences who have had exacerbations while on LDN.

Please copy and paste the following into your replies to this thread.

"I had an exacerbation(s) while on LDN treatment for Multiple Sclerosis. My details are as follows:"

I am ___ years old

I am ___ (male/female)

I have RR/SP/PP/PR MS for ___ years

My exacerbation(s) while on LDN affected my _____ (body part/function e.g., eyes, legs, cognitive, etc.)

It lasted ...

Someone in Southern Ontario recently told me that there was a transdermal LDN available. I had never heard of this, and thought maybe they had confused it with Prokarin. But, she did say that she spoke with Skip in Boca Raton and he advised her not to use it, so maybe she is right.

Just wondered if anyone else was familiar with it and using it.

My son continues to do really well at 3 ...

I believe that I read somewhere that i.v. steroids should not be used in conjunction with LDN, but I cannot for the life of me remember exactly what I read or where I read it. I could have dreamed the whole thing, I guess.

Does anyone know what I am talking about or know of any reference material on this?

Thanks in advance!

Kim

I'm interested in knowing what other medications some of you are using with LDN. My 16 year old son started LDN and is now moving into his 4th week at 3 mg. This is the only medication he is using at this time, and as well as he is doing, it seems to be the only medication he needs. I've been researching Prokarin a bit and find it very interesting. I'll also be interested to ...

Let's gather all the information from people who tried LDN and experienced negative side effects to see if we can discover some common issues.

Please copy and paste the following into your posts

"I had side effects while on LDN treatment for Multiple Sclerosis.

I am ___ years old

I am ___ (male/female)

I have RR/SP/PP/PR MS for ___ years

I tried LDN for ___(days/months/years) long (if multiple times, provide info on latest attempt)

I ...

My 16 year old son started LDN over 3 weeks ago. He did not have any complaints, symptoms or outward signs of MS before starting it, so it's subtle changes we are seeing in him, but they are good ones, none-the-less.

He is sleeping really well, better than he has since before his probable diagnosis 3 years ago. He has an abundance of energy, and an overwhelming over-all sense of well being. And, his heat ...

Several links and overviews in many areas of LDN, also the mp3s starts with toxins and health being discussed , then Dr. Bihari discussing LDN and his work with LDN:

These mp3s are very very informative, the facts concerning the toxins
in our lives and in the world are excellent, toxins in our lives and the enviroment are my line of work, he states valid facts, everyone should
listen to these mp3s..

http://www.vrhotwires.com/Bill_Meikle/MS/LDNandMS.html

:?:

I see on webmd.com that Naltrexone is a Category C, but I'm assuming that's as the 50 mg dose, not the 3 to 4.5 dose that MSers take. Anyone have experience with LDN and Pregnancy- been on it while prg, know anyone who has, etc?? Just curious... If LDN continues to improve my situation as it has done in (albeit in small strides) within just one ...

I have been taking LDN for almost 4 months without a break.

Can someone advise on the effects of stopping LDN for a short term.

There seems to be mixed opinions on dependancy and effect after continous usage. Has anyone got any thoughts on this?

Thanks
Arfie 33 RRMS Aug03

I'm really confused. The doctor said for my son to take his LDN an hour before bedtime, yet I read a posting from someone who works the midnight shift and takes LDN at 1:00 a.m..

My son is just starting LDN this weekend, and his "bedtime" is pretty eratic during summer months out of school. He's 16, very social, and it's hard to set a specific time every night to take it.

How are you ...