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A board to discuss Low Dose Naltrexone (LDN) as a treatment for Multiple Sclerosis

I've run out of LDN, can anyone help?

Hi,
I've been on LDN for 2 1/2 years. It's been a pretty good experience, all in all.
(I've also been on Rebif since 2000 and it's been very successful).
I ran out of LDN two weeks ago and I can't afford to buy more. I've tried to see if I can buy a packet of Naltrexone (or ReVia) but the prices are unbelievable.
I can't afford a private prescription and believe it or not, ...
Read more : I've run out of LDN, can anyone help? | Views : 1132 | Replies : 2


What would you do first if you could do it all over again?

I am a 27 year-old female. I am in the Air Force and as of last year have totally stopped preforming my duties as an Air Traffic Controller due to my symptoms. I have vertigo, blurred vision and am tired all the time. I was recently told by my neurologist that after two MRI's I have more lesions than before, but he still will not diagnose me with MS. I have read on here and ...
Read more : What would you do first if you could do it all over again? | Views : 1500 | Replies : 8


Recent PubMed Post on LDN Study

I found this recently published article on pubMed very encouraging:

LDN Therapeutic Implications for MS

This is from a Pennsylvania State Univ study published last month.

Admittedly, the study was conducted on the EAE mouse model, but the conclusions are very encouraging and relate to treatment with either OGF or LDN (which produces high endogenous OGF levels):

1. Halted EAE disease progression
2. Reversed neurological deficits, and
3. Prevented onset of dysfunction across considerable span ...
Read more : Recent PubMed Post on LDN Study | Views : 2199 | Replies : 6


Update from flora68

Hi guys!

Well, I'm still doing great, still taking LDN (4.5 mg), and still NOT interested in trying anything else, thank you, as long as this works so well for me.

The main MS symptom I still have is a cr*ppy short-term memory (I forget what I was doing/saying when I get interrupted) and urinary retention. (Too bad I don't have better memory retention instead of urinary retention...)

Otherwise I don't think much about having ...
Read more : Update from flora68 | Views : 1204 | Replies : 0


LDN for 14 year old teenager

Does anyone have any experience with LDN use for a teenager (14) with possible MS? My daughter is experiencing multiple symptoms. She has one lesion on her spine and "time will tell" comments from the doctor. The symptoms come and go, but lately they seem progressing. Please share any experience you may have. I know LDN has been used in autisn and Crohn's in children, but the studies were only 8 weeks long. I am ...
Read more : LDN for 14 year old teenager | Views : 1233 | Replies : 3


seeking recommendation

I do have prescription for LDN and have taken it last 3 months but my compound pharmacy charging me $60 for one month supply (3 mg)
do you know of any Pharmacy who can supply the prescription for less and ship it to me?

Thanks in advance
Read more : seeking recommendation | Views : 1081 | Replies : 1


How long before you feel effects

How long where you on LDN before you started feeling the effects good or bad?

Ive been on it for about 3 months 3 mg with no effects
Read more : How long before you feel effects | Views : 5085 | Replies : 10


Do the dreams subside?

I have been on LDN for about 3 months, but at first was also taking 20 mg/night of amitriptyllne, which is sedating.

I'm working on getting off the amitriptyline, and am now down to 10 mg.

It's been about 2 weeks on the lower dose, and I've found that the vivid dreams that started when I started the LDN have become, well, more vivid and sort of tiring. They aren't nightmares, but hectic, fast-paced and ...
Read more : Do the dreams subside? | Views : 1498 | Replies : 1


LDN & spasms/spasticity

After 7 months on LDN 3mg I had to stop LDN because of increasing severe spasms & intense pain all day & night. I have a baclofen pump that usually controls the pain & spasms but after having numerous tests a dye pumpogram showed that all the baclofen was leaking into the gut through a hole & not going down the spine. (This caused new weakness in left hand/arm which I has taken nearly 4 ...
Read more : LDN & spasms/spasticity | Views : 2057 | Replies : 1


Side effects after 2 years on LDN?

I have been having some sleep disturbance lately, and headaches (sort of mild, background type), and it reminds me of how I felt when I first started taking LDN two years ago. It seems weird that I'd suddenly be having side effects again after taking it for so long, but that is what this feels like! I'm currently taking 4.5mg and have been at that dose for most of the 2 years (I started at ...
Read more : Side effects after 2 years on LDN? | Views : 2282 | Replies : 1


 

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