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A board to discuss the Multiple Sclerosis modifying drug Rebif

Research paper on REBIF

Read more : Research paper on REBIF | Views : 2146 | Replies : 0

Combination of Rebif and Novantrone


I just started on Rebif yesterday. I am in my two years of getting Novantrone (IV) every three months.

When I was dxed in 2/2002, I started on Betaseron. Did that for about year. It did not seem to have any effect. Then I started Copaxone last year. Had terrible site reactions and generally did not tolerate it well.

My question is has anyone in this group is doing/have done a combo therapy with ...
Read more : Combination of Rebif and Novantrone | Views : 2070 | Replies : 0

Combination of Rebif® and mycophenolate mofetil (Cellcept®)

Hi!I have got MS 12 years ago.I am on Rebif since 1996.I have took it year and half.I have stoped because Rebif was experimental drug that time and it doesn't approved in my country.Rebif was so much expensive.I am on Rebif again.I am taking it already 4 years.I feel great and noone could possible that I am MS-er.I have had atack this june first time since I am on Rebif,because of that my neuro prescribed ...

worse straight after

Within a few minutes of injecting rebif, my symptoms (ie balance and weakness) are MUCH worse. does everyone get this same reaction?

I have been using rebif for the past 3.5 months.
Read more : worse straight after | Views : 3003 | Replies : 4

not working?

I've been on rebif since april 30. I'm currently on the high dose 44. I'm handling the side effects pretty well, practically no flu like effects anymore. But it doesn't seem to be doing anything to the # of my attacks. I basically get an attack every 1 - 1.5 months. Most of them just give me numbness, with mild perm damage(fingers crossed that it stays that way). How long does Rebif take to work?, ...
Read more : not working? | Views : 2660 | Replies : 2

Site reactions?

I've now had 5 injections of 22mcg (legs & rear , belly in one hours time !!), but have not had any injection site reactions....yet.

Is this common when first starting?
Read more : Site reactions? | Views : 2575 | Replies : 2


I've started taking Rebif this week, using the Rebiject II. I've been sent 4 weeks supply of 44mg syringes, but really need 22mg. The MS nurse that came to show me how to inject opened each syringe and simply squirted out half, put the needle cap back on, and put them back into the fridge.

When I did my second injection (stung a LOT more that the first one), I noticed that the needle (when ...
Read more : Tritation | Views : 2926 | Replies : 3

Getting off of Rebif??

When I was first diagnosed with MS I was getting MS attacks about once every three months. I then got onto Rebif and my attacks increased to about one every month. I've been on it since August of '04 and it seems that my MS symptoms have only gotten worse. My legs are constantly heavy and my balance is horrible. I have to get steroids often just so I can feel halfway normal, but this ...
Read more : Getting off of Rebif?? | Views : 4127 | Replies : 1

Hair-loss ....

Hi all,
I've been on Rebif since Dec last year and I have been experiencing a lot of droppage of hair recently and the rate & the amount of hair that is dropping is quite alarming to me. Never experiencing this LOTS of hair falling off frm my head before. I've asked my doctor if this might be a side-effect of rebif and his answer was that this kind of side-effect has been reported before ...
Read more : Hair-loss .... | Views : 16091 | Replies : 19

Thyroid Issues and interferon

Just followed an interesting line of research about thyroid problems and MS--since thryoid runs in my family. I found a study that says up to 24% of the people on interferon 1-a and 1-b develop hypothyroidism within the first year of treatment. Hypothyroidism can cause hair loss.

This study suggests you get tested if you're using interferon. ... 004-2326v1

Have any of you had your doc test you ...
Read more : Thyroid Issues and interferon | Views : 2978 | Replies : 2


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