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Tell us what you are using to treat your MS-- and how you are doing.


Ocrevus

Hi there. My husband was diagnosed with RRMS back in May, but now the doctor thinks he may have PPMS. He suggested that we look into Ocrevus. I have been reading about it a little and it sounds scary (could cause cancer, could lead to death), but it's the only MS drug out there that treats PPMS. Anyone have any experience with it?
Read more : Ocrevus | Views : 605 | Replies : 1


Blood test results

Hi everyone,
I have MS since 11 years ago. Had two relapses over these years with full recovery and have never taken any medication (despite my neurologist's advice)

Since 1 year ago I have changed dramatically my diet: No gluten, no dairy, no red meat, loads of vegetables, little sugar and calcium. Swim 3/4 days a week, pilates, mindfulness and take few supplements on a daily basis:

Vit D 10000uI since 3 months ago (before ...
Read more : Blood test results | Views : 615 | Replies : 5


Topamax for nerve pain?

Has anyone any experience using Topamax for nerve pain?
Read more : Topamax for nerve pain? | Views : 787 | Replies : 1


Baclofen and alcohol

Hi all. I am on 5 mg of Baclofen twice a day for muscle spasms (so 10 mg total per day). I have been told not to drink while on this drug because it can cause sleepiness, but I have a friend who takes it for hereditary spastic paraplegia and she said she has no problems at all drinking while on the Baclofen. Just wondering what your experiences are. Any trouble taking Baclofen and having ...
Read more : Baclofen and alcohol | Views : 1388 | Replies : 8


Tecfidera

Hi all. After first being diagnosed with clinically isolated syndrome back in June, my neurologist decided to change the diagnosis to RRMS yesterday, following the receipt of normal EMG and nerve conduction study results. He also took another closer look at my MRIs and decided that several lesions on my MRI are characteristic of MS. Anyway, after asking me how I would do with giving myself shots and me kind of balking at that prospect, ...
Read more : Tecfidera | Views : 1067 | Replies : 4


Fatigue relief in MS patien studies

Hello,

The following is a link to public information on a randomized control study of patients using Bemer Electro Magnetic Therapy. These studies show a marked improvement in general fatigue as you can see.

https://www.ncbi.nlm.nih.gov/pubmed/19422286

Best!
Read more : Fatigue relief in MS patien studies | Views : 1258 | Replies : 0


RE UNPUBLISHED DATA MAY POINT TO LINK BETWEEN LEMTRADE AND O

HI Friends please read

Unpublished Data May Point to Link Between Lemtrada and Other Autoimmune Diseases in MS Patients
https://multiplesclerosisnewstoday.com/ ... -diseases/

Previously unpublished results of clinical trials of Lemtrada (alemtuzumab) appears to contain key information as to why many multiple sclerosis patients who use it develop other autoimmune diseases.

Researchers looked at the immune cell mix after Lemtrada depleted many of those cells. They discovered that certain B-cells ...
Read more : RE UNPUBLISHED DATA MAY POINT TO LINK BETWEEN LEMTRADE AND O | Views : 1109 | Replies : 0


Prosthetics

Do prosthetics really work for those with Multiple Sclerosis.
Read more : Prosthetics | Views : 1150 | Replies : 3


Have not started yet.

I am currently taking 50,000 IU of D 2 x/week. B complex, and Fish oil 3, 6, 9.

My JCV test came back borderline positive. I am eligible for Tsyabri, and I am considering Plegerdy. Is there anything else I should consider. I will of course check with the Doc at my appointment in a couple of weeks. I also live with a nurse.
Read more : Have not started yet. | Views : 1840 | Replies : 10


 

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